Guest guest Posted August 25, 2011 Report Share Posted August 25, 2011 Tina I will keep you in my prayers. Hugs nne To the world you might be one person, but to one person you just might be the world""May the Lord Bless you and keep you,May the Lord Make his face shine upon you, and give you Peace...Forever"Breast Cancer Patients Soul Mates for Lifehttp://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancerhttp://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancerAngel Feather Loomerwww.angelfeatherloomer.blogspot.comThe Cancer Clubwww.cancerclub.com -----Original Message-----From: spydre74@...Sent: Thu, 25 Aug 2011 00:01:30 -0500To: mserslife Subject: Oh & ^%* Well, I knew it was going to happen. I was off Copaxone for three weeks before starting the blessed Tysabri. Missing 5 doses in one month started my relapse in January. So of course not being medicated for three weeks would. Of course, it's too early for the Tysabri to have prevented it - just had the Tysabri last Wednesday. For the past couple of days I've had nagging signs of an oncoming attack. It started with wrist pain, and in bed, I would have to be very careful about how I positioned my arm or it would get the tingling. Yesterday, I started getting pain and cramping when I was typing. Today, all that, plus cramping when using both hands, pain in my shoulder. The muscle spasming and weakness. It can't be from the heat because I didn't actually get HOT today except for maybe 20 minutes. As today is hubby's birthday, I cheerfully ignored the signs, until the pain in my shoulder hit, and then when I noticed the superficial numbness in my hand.I guess I call the doctor tomorrow if the symptoms are still there when I get up. She'll need to know about it anyway, even if it's not a bad one, because the Tysabri nurses ask about relapses before each infusion - if the doctor doesn't know about it, they won't do the infusion, and they'll page her. And well, if this gets worse, as my relapses have been this year, then I may need steroids....and well, it plain worries me that this started up 5 days after Tysabri. So I want to make sure.God, I was sooooo hoping that this wouldn't happen, that I would make it through the washout period without any relapses. My relapse in January was four weeks, and it took another six to recover from it. My relapse in what was it, April, May, was 6 weeks. When I first started my MS journey out, my diagnosing flare came six months after my first symptoms. Even on Avonex, it was averaging six months between relapses - so after I was on Copaxone hubby and I figured it was like I wasn't even medicated, that the six month interval was probably my normal relapse interval. This is my third relapse in what six, seven months?Tina Send any screenshot to your friends in seconds... Works in all emails, instant messengers, blogs, forums and social networks. Try IM ToolPack at www.imtoolpack.com for FREE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2011 Report Share Posted August 25, 2011 Oh joy. Just tested for a UTI to be on the safe side. Yes, I have a very " light " UTI - which according to the symptoms, I may have been living with for weeks. I've had urinary hesitancy, not a lot coming out, and frequent trips to the bathroom. I just though I needed a trip to the urologist, as this has been going on several weeks, and was pretty consistent. I still think that I'm having a relapse on top it. I have some new symptoms that I've not had before (I know pseudo-exacerbations from UTI's can't cause new symptoms). So I have a call into my doctor with my symptoms, the fact that I have a very light UTI (my last relapse I got a UTI right in the middle of it), and hopefully my doc will call me back in the afternoon, when I'm not at the psychiatrist. Another thing is....got my cooling vest, but the cooling packs take up about 1/4 of the room in the freezer! There is a freezer in the basement of our house that hubby wants me to make sure it works and store them in there, but with the water leaking into our basement, I'm not so sure. Hubby went totally ballistic when I made the appointment to check for the UTI. He's tired of driving me around, and he's pissed off at last minute sh & & . He claims he didn't hear me when I told him I was calling either the urologist or my regular doctor to get checked for a UTI, since Dr. Parks (my MS doc) would anyway. Frustrated, not feeling good, and I'm generally pissy right now. Think I'm gonna lie down for a bit, see if that helps, but I can't lie down too long, because I have my psychiatrist appointment at 1. Tina Well, I knew it was going to happen. I was off Copaxone for three weeks before starting the blessed Tysabri. Missing 5 doses in one month started my relapse in January. So of course not being medicated for three weeks would. Of course, it's too early for the Tysabri to have prevented it - just had the Tysabri last Wednesday. For the past couple of days I've had nagging signs of an oncoming attack. It started with wrist pain, and in bed, I would have to be very careful about how I positioned my arm or it would get the tingling. Yesterday, I started getting pain and cramping when I was typing. Today, all that, plus cramping when using both hands, pain in my shoulder. The muscle spasming and weakness. It can't be from the heat because I didn't actually get HOT today except for maybe 20 minutes. As today is hubby's birthday, I cheerfully ignored the signs, until the pain in my shoulder hit, and then when I noticed the superficial numbness in my hand. I guess I call the doctor tomorrow if the symptoms are still there when I get up. She'll need to know about it anyway, even if it's not a bad one, because the Tysabri nurses ask about relapses before each infusion - if the doctor doesn't know about it, they won't do the infusion, and they'll page her. And well, if this gets worse, as my relapses have been this year, then I may need steroids....and well, it plain worries me that this started up 5 days after Tysabri. So I want to make sure. God, I was sooooo hoping that this wouldn't happen, that I would make it through the washout period without any relapses. My relapse in January was four weeks, and it took another six to recover from it. My relapse in what was it, April, May, was 6 weeks. When I first started my MS journey out, my diagnosing flare came six months after my first symptoms. Even on Avonex, it was averaging six months between relapses - so after I was on Copaxone hubby and I figured it was like I wasn't even medicated, that the six month interval was probably my normal relapse interval. This is my third relapse in what six, seven months? Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2011 Report Share Posted August 25, 2011 Oh joy. Just tested for a UTI to be on the safe side. Yes, I have a very " light " UTI - which according to the symptoms, I may have been living with for weeks. I've had urinary hesitancy, not a lot coming out, and frequent trips to the bathroom. I just though I needed a trip to the urologist, as this has been going on several weeks, and was pretty consistent. I still think that I'm having a relapse on top it. I have some new symptoms that I've not had before (I know pseudo-exacerbations from UTI's can't cause new symptoms). So I have a call into my doctor with my symptoms, the fact that I have a very light UTI (my last relapse I got a UTI right in the middle of it), and hopefully my doc will call me back in the afternoon, when I'm not at the psychiatrist. Another thing is....got my cooling vest, but the cooling packs take up about 1/4 of the room in the freezer! There is a freezer in the basement of our house that hubby wants me to make sure it works and store them in there, but with the water leaking into our basement, I'm not so sure. Hubby went totally ballistic when I made the appointment to check for the UTI. He's tired of driving me around, and he's pissed off at last minute sh & & . He claims he didn't hear me when I told him I was calling either the urologist or my regular doctor to get checked for a UTI, since Dr. Parks (my MS doc) would anyway. Frustrated, not feeling good, and I'm generally pissy right now. Think I'm gonna lie down for a bit, see if that helps, but I can't lie down too long, because I have my psychiatrist appointment at 1. Tina Well, I knew it was going to happen. I was off Copaxone for three weeks before starting the blessed Tysabri. Missing 5 doses in one month started my relapse in January. So of course not being medicated for three weeks would. Of course, it's too early for the Tysabri to have prevented it - just had the Tysabri last Wednesday. For the past couple of days I've had nagging signs of an oncoming attack. It started with wrist pain, and in bed, I would have to be very careful about how I positioned my arm or it would get the tingling. Yesterday, I started getting pain and cramping when I was typing. Today, all that, plus cramping when using both hands, pain in my shoulder. The muscle spasming and weakness. It can't be from the heat because I didn't actually get HOT today except for maybe 20 minutes. As today is hubby's birthday, I cheerfully ignored the signs, until the pain in my shoulder hit, and then when I noticed the superficial numbness in my hand. I guess I call the doctor tomorrow if the symptoms are still there when I get up. She'll need to know about it anyway, even if it's not a bad one, because the Tysabri nurses ask about relapses before each infusion - if the doctor doesn't know about it, they won't do the infusion, and they'll page her. And well, if this gets worse, as my relapses have been this year, then I may need steroids....and well, it plain worries me that this started up 5 days after Tysabri. So I want to make sure. God, I was sooooo hoping that this wouldn't happen, that I would make it through the washout period without any relapses. My relapse in January was four weeks, and it took another six to recover from it. My relapse in what was it, April, May, was 6 weeks. When I first started my MS journey out, my diagnosing flare came six months after my first symptoms. Even on Avonex, it was averaging six months between relapses - so after I was on Copaxone hubby and I figured it was like I wasn't even medicated, that the six month interval was probably my normal relapse interval. This is my third relapse in what six, seven months? Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2011 Report Share Posted August 25, 2011 Oh joy. Just tested for a UTI to be on the safe side. Yes, I have a very " light " UTI - which according to the symptoms, I may have been living with for weeks. I've had urinary hesitancy, not a lot coming out, and frequent trips to the bathroom. I just though I needed a trip to the urologist, as this has been going on several weeks, and was pretty consistent. I still think that I'm having a relapse on top it. I have some new symptoms that I've not had before (I know pseudo-exacerbations from UTI's can't cause new symptoms). So I have a call into my doctor with my symptoms, the fact that I have a very light UTI (my last relapse I got a UTI right in the middle of it), and hopefully my doc will call me back in the afternoon, when I'm not at the psychiatrist. Another thing is....got my cooling vest, but the cooling packs take up about 1/4 of the room in the freezer! There is a freezer in the basement of our house that hubby wants me to make sure it works and store them in there, but with the water leaking into our basement, I'm not so sure. Hubby went totally ballistic when I made the appointment to check for the UTI. He's tired of driving me around, and he's pissed off at last minute sh & & . He claims he didn't hear me when I told him I was calling either the urologist or my regular doctor to get checked for a UTI, since Dr. Parks (my MS doc) would anyway. Frustrated, not feeling good, and I'm generally pissy right now. Think I'm gonna lie down for a bit, see if that helps, but I can't lie down too long, because I have my psychiatrist appointment at 1. Tina Well, I knew it was going to happen. I was off Copaxone for three weeks before starting the blessed Tysabri. Missing 5 doses in one month started my relapse in January. So of course not being medicated for three weeks would. Of course, it's too early for the Tysabri to have prevented it - just had the Tysabri last Wednesday. For the past couple of days I've had nagging signs of an oncoming attack. It started with wrist pain, and in bed, I would have to be very careful about how I positioned my arm or it would get the tingling. Yesterday, I started getting pain and cramping when I was typing. Today, all that, plus cramping when using both hands, pain in my shoulder. The muscle spasming and weakness. It can't be from the heat because I didn't actually get HOT today except for maybe 20 minutes. As today is hubby's birthday, I cheerfully ignored the signs, until the pain in my shoulder hit, and then when I noticed the superficial numbness in my hand. I guess I call the doctor tomorrow if the symptoms are still there when I get up. She'll need to know about it anyway, even if it's not a bad one, because the Tysabri nurses ask about relapses before each infusion - if the doctor doesn't know about it, they won't do the infusion, and they'll page her. And well, if this gets worse, as my relapses have been this year, then I may need steroids....and well, it plain worries me that this started up 5 days after Tysabri. So I want to make sure. God, I was sooooo hoping that this wouldn't happen, that I would make it through the washout period without any relapses. My relapse in January was four weeks, and it took another six to recover from it. My relapse in what was it, April, May, was 6 weeks. When I first started my MS journey out, my diagnosing flare came six months after my first symptoms. Even on Avonex, it was averaging six months between relapses - so after I was on Copaxone hubby and I figured it was like I wasn't even medicated, that the six month interval was probably my normal relapse interval. This is my third relapse in what six, seven months? Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2011 Report Share Posted August 25, 2011 Oh Tina... I am so sorry to hear this news from you. How are you doing today? Did you call the doc? MS is a crappy disease sometimes for sure.big hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: mserslife <mserslife >Sent: Wednesday, August 24, 2011 10:01 PMSubject: Oh & ^%* Well, I knew it was going to happen. I was off Copaxone for three weeks before starting the blessed Tysabri. Missing 5 doses in one month started my relapse in January. So of course not being medicated for three weeks would. Of course, it's too early for the Tysabri to have prevented it - just had the Tysabri last Wednesday. For the past couple of days I've had nagging signs of an oncoming attack. It started with wrist pain, and in bed, I would have to be very careful about how I positioned my arm or it would get the tingling. Yesterday, I started getting pain and cramping when I was typing. Today, all that, plus cramping when using both hands, pain in my shoulder. The muscle spasming and weakness. It can't be from the heat because I didn't actually get HOT today except for maybe 20 minutes. As today is hubby's birthday, I cheerfully ignored the signs, until the pain in my shoulder hit, and then when I noticed the superficial numbness in my hand. I guess I call the doctor tomorrow if the symptoms are still there when I get up. She'll need to know about it anyway, even if it's not a bad one, because the Tysabri nurses ask about relapses before each infusion - if the doctor doesn't know about it, they won't do the infusion, and they'll page her. And well, if this gets worse, as my relapses have been this year, then I may need steroids....and well, it plain worries me that this started up 5 days after Tysabri. So I want to make sure. God, I was sooooo hoping that this wouldn't happen, that I would make it through the washout period without any relapses. My relapse in January was four weeks, and it took another six to recover from it. My relapse in what was it, April, May, was 6 weeks. When I first started my MS journey out, my diagnosing flare came six months after my first symptoms. Even on Avonex, it was averaging six months between relapses - so after I was on Copaxone hubby and I figured it was like I wasn't even medicated, that the six month interval was probably my normal relapse interval. This is my third relapse in what six, seven months? Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2011 Report Share Posted August 25, 2011 Oh Tina... I am so sorry to hear this news from you. How are you doing today? Did you call the doc? MS is a crappy disease sometimes for sure.big hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: mserslife <mserslife >Sent: Wednesday, August 24, 2011 10:01 PMSubject: Oh & ^%* Well, I knew it was going to happen. I was off Copaxone for three weeks before starting the blessed Tysabri. Missing 5 doses in one month started my relapse in January. So of course not being medicated for three weeks would. Of course, it's too early for the Tysabri to have prevented it - just had the Tysabri last Wednesday. For the past couple of days I've had nagging signs of an oncoming attack. It started with wrist pain, and in bed, I would have to be very careful about how I positioned my arm or it would get the tingling. Yesterday, I started getting pain and cramping when I was typing. Today, all that, plus cramping when using both hands, pain in my shoulder. The muscle spasming and weakness. It can't be from the heat because I didn't actually get HOT today except for maybe 20 minutes. As today is hubby's birthday, I cheerfully ignored the signs, until the pain in my shoulder hit, and then when I noticed the superficial numbness in my hand. I guess I call the doctor tomorrow if the symptoms are still there when I get up. She'll need to know about it anyway, even if it's not a bad one, because the Tysabri nurses ask about relapses before each infusion - if the doctor doesn't know about it, they won't do the infusion, and they'll page her. And well, if this gets worse, as my relapses have been this year, then I may need steroids....and well, it plain worries me that this started up 5 days after Tysabri. So I want to make sure. God, I was sooooo hoping that this wouldn't happen, that I would make it through the washout period without any relapses. My relapse in January was four weeks, and it took another six to recover from it. My relapse in what was it, April, May, was 6 weeks. When I first started my MS journey out, my diagnosing flare came six months after my first symptoms. Even on Avonex, it was averaging six months between relapses - so after I was on Copaxone hubby and I figured it was like I wasn't even medicated, that the six month interval was probably my normal relapse interval. This is my third relapse in what six, seven months? Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2011 Report Share Posted August 25, 2011 Yeah, I just made another post about. I definitely have a UTI (the nurse practitioner said slight, I took that to mean barely over the threshold for what's considered a UTI), but I think I'm having a relapse too. It's mostly addressed in my other post, but I didn't get any UTI symptoms until today, plus I have new issues - and the MS flare feeling hit last night, when I told my hubby at around 8. TinaPS: The doctor's office told me that being off the copaxone for three weeks SHOULDN'T have caused my flare. But if missing 5 doses caused a flare, it makes sense that three weeks without medication would cause it. The clinical coordinator said I probably would have had the flare anyway, if that's what it is. Oh Tina... I am so sorry to hear this news from you. How are you doing today? Did you call the doc? MS is a crappy disease sometimes for sure.big hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: mserslife <mserslife > Sent: Wednesday, August 24, 2011 10:01 PMSubject: Oh & ^%* Well, I knew it was going to happen. I was off Copaxone for three weeks before starting the blessed Tysabri. Missing 5 doses in one month started my relapse in January. So of course not being medicated for three weeks would. Of course, it's too early for the Tysabri to have prevented it - just had the Tysabri last Wednesday. For the past couple of days I've had nagging signs of an oncoming attack. It started with wrist pain, and in bed, I would have to be very careful about how I positioned my arm or it would get the tingling. Yesterday, I started getting pain and cramping when I was typing. Today, all that, plus cramping when using both hands, pain in my shoulder. The muscle spasming and weakness. It can't be from the heat because I didn't actually get HOT today except for maybe 20 minutes. As today is hubby's birthday, I cheerfully ignored the signs, until the pain in my shoulder hit, and then when I noticed the superficial numbness in my hand. I guess I call the doctor tomorrow if the symptoms are still there when I get up. She'll need to know about it anyway, even if it's not a bad one, because the Tysabri nurses ask about relapses before each infusion - if the doctor doesn't know about it, they won't do the infusion, and they'll page her. And well, if this gets worse, as my relapses have been this year, then I may need steroids....and well, it plain worries me that this started up 5 days after Tysabri. So I want to make sure. God, I was sooooo hoping that this wouldn't happen, that I would make it through the washout period without any relapses. My relapse in January was four weeks, and it took another six to recover from it. My relapse in what was it, April, May, was 6 weeks. When I first started my MS journey out, my diagnosing flare came six months after my first symptoms. Even on Avonex, it was averaging six months between relapses - so after I was on Copaxone hubby and I figured it was like I wasn't even medicated, that the six month interval was probably my normal relapse interval. This is my third relapse in what six, seven months? Tina Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2011 Report Share Posted August 25, 2011 Yeah, I just made another post about. I definitely have a UTI (the nurse practitioner said slight, I took that to mean barely over the threshold for what's considered a UTI), but I think I'm having a relapse too. It's mostly addressed in my other post, but I didn't get any UTI symptoms until today, plus I have new issues - and the MS flare feeling hit last night, when I told my hubby at around 8. TinaPS: The doctor's office told me that being off the copaxone for three weeks SHOULDN'T have caused my flare. But if missing 5 doses caused a flare, it makes sense that three weeks without medication would cause it. The clinical coordinator said I probably would have had the flare anyway, if that's what it is. Oh Tina... I am so sorry to hear this news from you. How are you doing today? Did you call the doc? MS is a crappy disease sometimes for sure.big hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: mserslife <mserslife > Sent: Wednesday, August 24, 2011 10:01 PMSubject: Oh & ^%* Well, I knew it was going to happen. I was off Copaxone for three weeks before starting the blessed Tysabri. Missing 5 doses in one month started my relapse in January. So of course not being medicated for three weeks would. Of course, it's too early for the Tysabri to have prevented it - just had the Tysabri last Wednesday. For the past couple of days I've had nagging signs of an oncoming attack. It started with wrist pain, and in bed, I would have to be very careful about how I positioned my arm or it would get the tingling. Yesterday, I started getting pain and cramping when I was typing. Today, all that, plus cramping when using both hands, pain in my shoulder. The muscle spasming and weakness. It can't be from the heat because I didn't actually get HOT today except for maybe 20 minutes. As today is hubby's birthday, I cheerfully ignored the signs, until the pain in my shoulder hit, and then when I noticed the superficial numbness in my hand. I guess I call the doctor tomorrow if the symptoms are still there when I get up. She'll need to know about it anyway, even if it's not a bad one, because the Tysabri nurses ask about relapses before each infusion - if the doctor doesn't know about it, they won't do the infusion, and they'll page her. And well, if this gets worse, as my relapses have been this year, then I may need steroids....and well, it plain worries me that this started up 5 days after Tysabri. So I want to make sure. God, I was sooooo hoping that this wouldn't happen, that I would make it through the washout period without any relapses. My relapse in January was four weeks, and it took another six to recover from it. My relapse in what was it, April, May, was 6 weeks. When I first started my MS journey out, my diagnosing flare came six months after my first symptoms. Even on Avonex, it was averaging six months between relapses - so after I was on Copaxone hubby and I figured it was like I wasn't even medicated, that the six month interval was probably my normal relapse interval. This is my third relapse in what six, seven months? Tina Quote Link to comment Share on other sites More sharing options...
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