Guest guest Posted July 6, 2011 Report Share Posted July 6, 2011 Very cool to have a husband on here! After eight years mine is still in denial. I'm one of those "but you don't look sick" MSers and Dave keeps telling me to "wish it away". If only!!! Subject: Re: NEW MEMBER --"bic_gram"/ IV placesTo: MSersLife Date: Monday, July 4, 2011, 8:54 AM When (my wife) had her IV steroids they didn't have private rooms. However they did have a choice of either a room with beds, where you could lay down, or a more of a lounge area kind of place, if you wanted to either sit or walk about a little bit (as much as you can when you have an IV attached to you, of course....). And they also offered hot and cold drinks, and snacks/meals. I thought the place was quite nice. But I am afraid we disturbed the other patients a bit the first day when we listened to the "Hitchhiker's guide to the galaxy" on 's mp3-player. We used headphones, so the listening wouldn't have disturbed anyone. The bursting out laughing every now and again might have been more of an annoyance though... Hard to stop oneself from laughing when listening to . We brought something else the other days... Welcome to the list, by the way! I am Reb, and I live in Sweden. I don't have MS, but my wife, , does. love /Reb > > >  > > > > > Welcome to the group, from Kate in the lovely Historic lower Hudson Valley, NY.> I never heard of the new med you're on...tell us more.> hugs,> Kate> > > > > > > > To: Group mserslife > Sent: Sat, July 2, 2011 4:16:18 PM> Subject: NEW MEMBER --"bic_gram"> >  > > > > Comment from new member "bic_gram":> Diagnosed in 2003. Started on Copaxone, went to Betaseron after a year, now starting> Gilenya.> > > > > > > > > > > > > > Group: please join me in extending a warm welcome to our newest member here at MSersLife! I know we all look forward to getting to know our new member here on the group! > > Bic_Gram:> Please feel free to send an introduction as soon as you wish, with your name so we don't keep calling you "bic_gram". Share your experiences with all of us and just jump into the conversations! >  Sharon (group creator/owner) > > This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.> > > > > > Valley, NY.> I never heard of the new med you're on...tell us more.> hugs,> Kate> > > > > > > > To: Group mserslife > Sent: Sat, July 2, 2011 4:16:18 PM> Subject: NEW MEMBER --"bic_gram"> >  > > > > Comment from new member "bic_gram":> Diagnosed in 2003. Started on Copaxone, went to Betaseron after a year, now starting> Gilenya.> > > > > > > > > > > > > > Group: please join me in extending a warm welcome to our newest member here at MSersLife! I know we all look forward to getting to know our new member here on the group! > > Bic_Gram:> Please feel free to send an introduction as soon as you wish, with your name so we don't keep calling you "bic_gram". Share your experiences with all of us and just jump into the conversations! >  Sharon (group creator/owner) > > This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.> > > > > > > > Valley, NY.> I never heard of the new med you're on...tell us more.> hugs,> Kate> > > > > > > > To: Group mserslife > Sent: Sat, July 2, 2011 4:16:18 PM> Subject: NEW MEMBER --"bic_gram"> >  > > > > Comment from new member "bic_gram":> Diagnosed in 2003. Started on Copaxone, went to Betaseron after a year, now starting> Gilenya.> > > > > > > > > > > > > > Group: please join me in extending a warm welcome to our newest member here at MSersLife! I know we all look forward to getting to know our new member here on the group! > > Bic_Gram:> Please feel free to send an introduction as soon as you wish, with your name so we don't keep calling you "bic_gram". Share your experiences with all of us and just jump into the conversations! >  Sharon (group creator/owner) > > This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.> > > > > > Valley, NY.> I never heard of the new med you're on...tell us more.> hugs,> Kate> > > > > > > > To: Group mserslife > Sent: Sat, July 2, 2011 4:16:18 PM> Subject: NEW MEMBER --"bic_gram"> >  > > > > Comment from new member "bic_gram":> Diagnosed in 2003. Started on Copaxone, went to Betaseron after a year, now starting> Gilenya.> > > > > > > > > > > > > > Group: please join me in extending a warm welcome to our newest member here at MSersLife! I know we all look forward to getting to know our new member here on the group! > > Bic_Gram:> Please feel free to send an introduction as soon as you wish, with your name so we don't keep calling you "bic_gram". Share your experiences with all of us and just jump into the conversations! >  Sharon (group creator/owner) > > This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.> > > > > > > > > NY.> I never heard of the new med you're on...tell us more.> hugs,> Kate> > > > > > > > To: Group mserslife > Sent: Sat, July 2, 2011 4:16:18 PM> Subject: NEW MEMBER --"bic_gram"> >  > > > > Comment from new member "bic_gram":> Diagnosed in 2003. Started on Copaxone, went to Betaseron after a year, now starting> Gilenya.> > > > > > > > > > > > > > Group: please join me in extending a warm welcome to our newest member here at MSersLife! I know we all look forward to getting to know our new member here on the group! > > Bic_Gram:> Please feel free to send an introduction as soon as you wish, with your name so we don't keep calling you "bic_gram". Share your experiences with all of us and just jump into the conversations! >  Sharon (group creator/owner) > > This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.> > > > > > Valley, NY.> I never heard of the new med you're on...tell us more.> hugs,> Kate> > > > > > > > To: Group mserslife > Sent: Sat, July 2, 2011 4:16:18 PM> Subject: NEW MEMBER --"bic_gram"> >  > > > > Comment from new member "bic_gram":> Diagnosed in 2003. Started on Copaxone, went to Betaseron after a year, now starting> Gilenya.> > > > > > > > > > > > > > Group: please join me in extending a warm welcome to our newest member here at MSersLife! I know we all look forward to getting to know our new member here on the group! > > Bic_Gram:> Please feel free to send an introduction as soon as you wish, with your name so we don't keep calling you "bic_gram". Share your experiences with all of us and just jump into the conversations! >  Sharon (group creator/owner) > > This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2011 Report Share Posted July 11, 2011 Well... was hospitalized with walking difficulties in the MS flare up that led to her diagnosis, not much choice but to take that seriously... But I think being in denial may be a sign of caring as much as of not caring. Mean that perhaps the whole MS thing is too scary to take in? Anyway, glad to be welcome here!love/Reb> > > > > >  > > > > > > > > > > Welcome to the group, from Kate in the lovely Historic lower Hudson Valley, NY.> > I never heard of the new med you're on...tell us more.> > hugs,> > Kate> > > > > > > > > > > > > > > > From: Sharon wobbletowalk@> > To: Group mserslife > > Sent: Sat, July 2, 2011 4:16:18 PM> > Subject: NEW MEMBER --"bic_gram"> > > >  > > > > > > > > Comment from new member "bic_gram":> > Diagnosed in 2003. Started on Copaxone, went to Betaseron after a year, now starting> > Gilenya.> > > > > > > > > > > > > > > > > > > > > > > > > > > > Group: please join me in extending a warm welcome to our newest member here at MSersLife! I know we all look forward to getting to know our new member here on the group! > > > > Bic_Gram:> > Please feel free to send an introduction as soon as you wish, with your name so we don't keep calling you "bic_gram". Share your experiences with all of us and just jump into the conversations! > >  Sharon (group creator/owner) > > > > This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.> > > > > > > > > > > > Valley, NY.> > I never heard of the new med you're on...tell us more.> > hugs,> > Kate> > > > > > > > > > > > > > > > From: Sharon wobbletowalk@> > To: Group mserslife > > Sent: Sat, July 2, 2011 4:16:18 PM> > Subject: NEW MEMBER --"bic_gram"> > > >  > > > > > > > > Comment from new member "bic_gram":> > Diagnosed in 2003. Started on Copaxone, went to Betaseron after a year, now starting> > Gilenya.> > > > > > > > > > > > > > > > > > > > > > > > > > > > Group: please join me in extending a warm welcome to our newest member here at MSersLife! I know we all look forward to getting to know our new member here on the group! > > > > Bic_Gram:> > Please feel free to send an introduction as soon as you wish, with your name so we don't keep calling you "bic_gram". Share your experiences with all of us and just jump into the conversations! > >  Sharon (group creator/owner) > > > > This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.> > > > > > > > > > > > > > > > Valley, NY.> > I never heard of the new med you're on...tell us more.> > hugs,> > Kate> > > > > > > > > > > > > > > > From: Sharon wobbletowalk@> > To: Group mserslife > > Sent: Sat, July 2, 2011 4:16:18 PM> > Subject: NEW MEMBER --"bic_gram"> > > >  > > > > > > > > Comment from new member "bic_gram":> > Diagnosed in 2003. Started on Copaxone, went to Betaseron after a year, now starting> > Gilenya.> > > > > > > > > > > > > > > > > > > > > > > > > > > > Group: please join me in extending a warm welcome to our newest member here at MSersLife! I know we all look forward to getting to know our new member here on the group! > > > > Bic_Gram:> > Please feel free to send an introduction as soon as you wish, with your name so we don't keep calling you "bic_gram". Share your experiences with all of us and just jump into the conversations! > >  Sharon (group creator/owner) > > > > This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.> > > > > > > > > > > > Valley, NY.> > I never heard of the new med you're on...tell us more.> > hugs,> > Kate> > > > > > > > > > > > > > > > From: Sharon wobbletowalk@> > To: Group mserslife > > Sent: Sat, July 2, 2011 4:16:18 PM> > Subject: NEW MEMBER --"bic_gram"> > > >  > > > > > > > > Comment from new member "bic_gram":> > Diagnosed in 2003. Started on Copaxone, went to Betaseron after a year, now starting> > Gilenya.> > > > > > > > > > > > > > > > > > > > > > > > > > > > Group: please join me in extending a warm welcome to our newest member here at MSersLife! I know we all look forward to getting to know our new member here on the group! > > > > Bic_Gram:> > Please feel free to send an introduction as soon as you wish, with your name so we don't keep calling you "bic_gram". Share your experiences with all of us and just jump into the conversations! > >  Sharon (group creator/owner) > > > > This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.> > > > > > > > > > > > > > > > > > NY.> > I never heard of the new med you're on...tell us more.> > hugs,> > Kate> > > > > > > > > > > > > > > > From: Sharon wobbletowalk@> > To: Group mserslife > > Sent: Sat, July 2, 2011 4:16:18 PM> > Subject: NEW MEMBER --"bic_gram"> > > >  > > > > > > > > Comment from new member "bic_gram":> > Diagnosed in 2003. Started on Copaxone, went to Betaseron after a year, now starting> > Gilenya.> > > > > > > > > > > > > > > > > > > > > > > > > > > > Group: please join me in extending a warm welcome to our newest member here at MSersLife! I know we all look forward to getting to know our new member here on the group! > > > > Bic_Gram:> > Please feel free to send an introduction as soon as you wish, with your name so we don't keep calling you "bic_gram". Share your experiences with all of us and just jump into the conversations! > >  Sharon (group creator/owner) > > > > This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.> > > > > > > > > > > > Valley, NY.> > I never heard of the new med you're on...tell us more.> > hugs,> > Kate> > > > > > > > > > > > > > > > From: Sharon wobbletowalk@> > To: Group mserslife > > Sent: Sat, July 2, 2011 4:16:18 PM> > Subject: NEW MEMBER --"bic_gram"> > > >  > > > > > > > > Comment from new member "bic_gram":> > Diagnosed in 2003. Started on Copaxone, went to Betaseron after a year, now starting> > Gilenya.> > > > > > > > > > > > > > > > > > > > > > > > > > > > Group: please join me in extending a warm welcome to our newest member here at MSersLife! I know we all look forward to getting to know our new member here on the group! > > > > Bic_Gram:> > Please feel free to send an introduction as soon as you wish, with your name so we don't keep calling you "bic_gram". Share your experiences with all of us and just jump into the conversations! > >  Sharon (group creator/owner) > > > > This email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects.> >> Quote Link to comment Share on other sites More sharing options...
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