A note from our daughter Claire

August 1, 2004

Our daughter, Claire, has asked me to let you all know that she is no longer

able to send/receive e-mails, as the e-mail service she subscribed to ended

yesterday.

Claire was able to join ceda, thanks to Jill's help, & read all your posts

this past year, but had frequent difficulties in sending e-mails thru' this

service they tried ( accessing e-mails thru' a set up box on their TV ), so

has decided not to continue with it.

Thank you all for making her feel welcome; I know she learnt a lot from

everyone, as well as enjoying writing to a couple of you privately.

Jill, please can you unsubscribe her, if necessary, or let me know what to

do on her behalf.

Claire is expecting her second baby girl on 25th August. All appears to be

well, & she has the same excellent obstetrician as before, who has taken

on-board that Claire now has a confirmed diagnosis of EDS ( & remembered

that our family is also affected by Chiari 1 Malformation ).

Thanks everyone,

Gail

North Yorkshire, U.K.

August 1, 2004

Hi Gail,

Please pass on my love to Claire and let her know I'll drop her a

snail mail soon. I promise to ring you as well as it's been way too

long since we had a good natter! I'm so sorry for not having been in

touch much, I hope you will forgive my tardiness but things have

been pretty manic of late. I'll give you a bell in the next few days

so we can catch up fully. Maybe we could even meet up for a coffee

one day before the summer completely deserts us! ;-)

Thinking of you and looking forward to catching up with you soon.

Love and hugs....Jo

xx

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