Guest guest Posted August 1, 2004 Report Share Posted August 1, 2004 Our daughter, Claire, has asked me to let you all know that she is no longer able to send/receive e-mails, as the e-mail service she subscribed to ended yesterday. Claire was able to join ceda, thanks to Jill's help, & read all your posts this past year, but had frequent difficulties in sending e-mails thru' this service they tried ( accessing e-mails thru' a set up box on their TV ), so has decided not to continue with it. Thank you all for making her feel welcome; I know she learnt a lot from everyone, as well as enjoying writing to a couple of you privately. Jill, please can you unsubscribe her, if necessary, or let me know what to do on her behalf. Claire is expecting her second baby girl on 25th August. All appears to be well, & she has the same excellent obstetrician as before, who has taken on-board that Claire now has a confirmed diagnosis of EDS ( & remembered that our family is also affected by Chiari 1 Malformation ). Thanks everyone, Gail North Yorkshire, U.K. Quote Link to comment Share on other sites More sharing options...
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