Re: Kate.....RE: High pain days

[Guest guest]

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great time on their trip!

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High pain days

Hi friends,…I have been having so much pain all thru-out my body for some time

now. Since I have several illnesses its hard to know which one its coming from.

I think it might be mostly from the RSD, because I have quite a bit of swelling

and skin pain in my right leg/foot and that is typical for some types of RSD.

[reflex sympathetic dystrophy]. My left leg and thigh use to be my good side but

the thigh muscle [quadriceps] seems to be weakening and the more I use it the

more painful and weak it gets. This is a new symptom for me. I noticed it a few

weeks ago how hard it was to walk back from the fridge to my desk and make it

into my chair. I hang onto a walker so I have some support. But man it was

really painful. I also have a disease that develops painful lumps under my skin

and connective tissue and I am wondering if they are growing deeper to affect

the muscles. That happens as well as they can wrap around nerves too. See what I

mean about not knowing what’s what? The Dr’s don’t know either which

illness is causing which symptoms. If it can be tested then they would know.

This is just so frustrating to me. I can be lying in bed and the pain in both

legs all the way from my feet to my thighs/pelvic area is aching so bad I

can’t sleep. I’ve now been sleeping during the day at my desk, so that makes

2 naps now. You would think laying down would relieve the pain, but it seems to

be worse then. And not the parts that I’m lying on. I can only lay on my back

now, and it’s the front of my body that hurts the worse. Go figure.

Our weather has been very high humidity and low pressure, and not very warm but

the humidity bothers me quite a bit. Tonight I can smell the swamp like smell

from the lake and expect “Yoda†to walk thru my door any

minute…..lol…inject a little humor here! ☺ [Yoda is the little green

creature from the movie Star Wars for those not familiar with him, and he came

from a swamp]

One thing that I was wondering, do any of you have any skin involvement that

creates extremely dry skin? My dr. said it was Icthymotosis [sp], or something

like that. It’s only in areas that are the most painful, and all the

moisturizing doesn’t seem to penetrate.

So I guess that’s my update. I just don’t know what I will do if I lose my

ability to walk altogether. Steve can take an early retirement, but the SS would

be peanuts. ☹ the pains in my legs are so bad I can’t even get into the

shower we had modified with grab bars, to take a shower. A bath tub is out of

the question. Too bad they don’t make people washes like car washes!

Wouldn’t that be FUN! Lol..

Love and hugs to all, Jackie

[Guest guest]

You just keep taking those lovely baths, Jackie. Yes, I agree with you that you should arrange a special tub for yourself. Money shouldn't hold you back from that.Gee, your SIL sounds...well, I won't say. But to have road rage with his wife and wee one in the car is just despicable. How horrible. I forget if you take anything for the depression? I know you are sensitive to meds and you need be careful, but perhaps a low dose abilify or wellbutrin or... (those are the 2 I'm personally on!) may help you. Depression is definitely a slippery slope. For me, it's hard to tease out how much is situational, how much is MS, and what part is real clinical depression.So, you take your blood every day? I don't know if I'd be able to do that...I think it would

push me over the edge. I have a hard enough time with the Copaxone injections. I got a call from Accredo, the place that sends the Copaxone, asking if I'd like a delivery...well, not only do I not need one right now, I still have a months supply! So I think in all, I've missed a total of 3 wks worth of shots. That's due to forgetfulness as well as plain ol' 'not again'!Here's to many more, stress-free and pain-free days for you my friend.Love,KateTo: MSersLife Sent: Friday, August 12, 2011 10:16 AMSubject: Kate.....RE: High pain days

Hi Kate,.just knowing that you and the others understand helps me be able to get thru my day. The pain isn’t as intense as it was when I first posted this, but last night I was feeling a little puny, and my blood sugars were high. But we took it again this morning and it was down, so I probably had too much carbs yesterday, plus stress can cause high readings too. Seems like I’m never too far from some drama event. Nothing high this time, just worried about my daughter and grandson. Her hubby is so mean to her and as cute as Doodles is, he is a handful. They stopped by here yesterday morning on their way up to Whidbey Island, [a 5 hour trip] for Tina’s 20th school reunion, and when she called last night she said he [doodles aka, Christian] didn’t do very well on the ride. First really long trip he’s been on, and his dad

has road rage, so I can imagine what type of driving he was doing. I just hope he [her hubby] can enjoy the beauty of the Island, and not decide he wants to come home because he can’t stand her friends. She has all her friends she left behind when we moved, and never really connected with any girlfriends down here like she had there. So this was a really big deal for Tina, and I’m just afraid he will spoil it for her. He can’t seem to take the attention off of him, so I’m just waiting for that call saying they are coming back early. I know I shouldn’t worry so much about stuff like this, but when my children hurt I hurt. L Anyhooo, yes taking a nice foo foo bath ALWAYS relaxed me,

it was my stress reliever. I think I am going to push for one of those walk in baths. Even if we have to make payments. Its getting to the point where I have to do something about this dry skin problem. My skin has never been like this and I think its because I always took oil and herbal baths. Its weird because my skin color was always olive and when growing up I tanned, never burned, and never had dry skin. But after I had my kids my skin changed. Dang kids……lol… ;-)I don’t think its psoriasis, but I do have scalp patches that could be, or its just seborrhea dermatitis. I really need to see a dermatologist. Thanks for the offer of the Eucerin cream. I can even get my Dr. to prescribe it and then my HSA card would pay for it. Steve tries to be as supportive as well as he can. He has

his own high pain to contend to and its all he can do to get thru the day. So I try to keep my problems at a minimum when I share with him. I have to keep him well because he’s the bread winner, and so my energy goes in to making sure he doesn’t overdo. Yes I have been having more depression, but I listen to a wonderful Christian music station and it really helps me. JThank you for caring. Love and hugs, Jackie From: MSersLife [mailto:MSersLife ] On Behalf Of Kate

RothschildSent: Tuesday, August 09, 2011 7:17 AMTo: MSersLife Subject: Re: High pain days Oh Jackie I am SO sorry you are in so much pain my friend. I wish I were there to help you out sweetie. That must be so frustrating to not know where the pain is coming from. Stupid doctors! Are there any tests that they can perform to try and hone in on what's what as you say?I think that just stinks that you have so much pain you can't even lesirely take a shower or bath!My sister with MS, has psoriasis (sp?)--that is of an autoimmune disorder as well, perhaps that is what you may have? Worth looking into.Thanks for sharing what you are going through, Jackie. You must feel so depressed that this is all going on. I hope at least that Steve is strong and supportive to you. You need all the help and encouragement and nurturing you can get--and deserve!I love you,Kate To: MSersLife Sent: Sunday, August 7, 2011 3:50 AMSubject: High pain days Hi friends,…I have been having so much pain all thru-out my body for some time now. Since I have several illnesses its hard to know which one its coming from. I think it might be mostly from the RSD, because I have quite

a bit of swelling and skin pain in my right leg/foot and that is typical for some types of RSD. [reflex sympathetic dystrophy]. My left leg and thigh use to be my good side but the thigh muscle [quadriceps] seems to be weakening and the more I use it the more painful and weak it gets. This is a new symptom for me. I noticed it a few weeks ago how hard it was to walk back from the fridge to my desk and make it into my chair. I hang onto a walker so I have some support. But man it was really painful. I also have a disease that develops painful lumps under my skin and connective tissue and I am wondering if they are growing deeper to affect the muscles. That happens as well as they can wrap around nerves too. See what I mean about not knowing what’s what? The Dr’s don’t know either which illness is causing which symptoms. If it can be tested then they would know. This is just so frustrating to me. I can be lying in bed and the pain in both legs all

the way from my feet to my thighs/pelvic area is aching so bad I can’t sleep. I’ve now been sleeping during the day at my desk, so that makes 2 naps now. You would think laying down would relieve the pain, but it seems to be worse then. And not the parts that I’m lying on. I can only lay on my back now, and it’s the front of my body that hurts the worse. Go figure. Our weather has been very high humidity and low pressure, and not very warm but the humidity bothers me quite a bit. Tonight I can smell the swamp like smell from the lake and expect “Yoda†to walk thru my door any minute…..lol…inject a little humor here! J [Yoda is the little green creature

from the movie Star Wars for those not familiar with him, and he came from a swamp]One thing that I was wondering, do any of you have any skin involvement that creates extremely dry skin? My dr. said it was Icthymotosis [sp], or something like that. It’s only in areas that are the most painful, and all the moisturizing doesn’t seem to penetrate. So I guess that’s my update. I just don’t know what I will do if I lose my ability to walk altogether. Steve can take an early retirement, but the SS would be peanuts. L the pains in my legs are so bad I can’t even get into the shower we had modified with grab bars, to take a shower. A bath tub is out of the question. Too bad they don’t make people washes like car washes! Wouldn’t that be FUN! Lol..Love and hugs to all, Jackie

[Guest guest]

That’s the problem Kate, I can’t take them until we get one I can get in and out of. That’s why the walk in would be perfect, but we are wanting to move to a MFH we found and we don’t want to go to the expense of putting the tub in here if we are planning on moving soon. [i hope soon!] so its not the money. We can always finance it. Yeah I worry about SIL road rage too. Tina called last night and said they are coming back early. Its cold up there and I am thinking SIL is grousing too much about being bored, and having to take care of the baby too much by himself. But she said she saw everyone she wanted to, and she was ready to come home. No I don’t take anything for the depression. Tried a few years ago and they really mess with my head. I figure most of the depression is situational anyhow. Because when things are going the way they should go I am okay. Its just frustrating having to depend on others to do things I use to do very easily. Now I can’t hardly do anything and so lots doesn’t get done. Not blaming Steve, and there are things I can hire stuff out, but that takes trust and money. We did find a good furnace/heat pump guy off from Angies List, and he came out last week and come to find out our system had MOLD spores growing in the coils that were not assembled right when we had it installed 10 years ago. No wonder I’ve been having so many allergy symptoms all these years. So he cleaned all of that up, and fixed the coils, and now everything runs a lot better. Yup sometimes I take my blood 3 times a day. It really doesn’t hurt if I pick the right area. Steve does it for me, cuz a little hard to do it one handed, and so we use 3 fingers on my left hand. And if I’m not satisfied of the results we pick one of the other 3, and I get a different result. Don’t know why? My thumb gives the lowest, so I go with that number usually. Lol…. ;-) Thanks for the well wishes, you too eh! Hugs and love, Jackie From: MSersLife [mailto:MSersLife ] On Behalf Of Kate RothschildSent: Saturday, August 13, 2011 2:08 PMTo: MSersLife Subject: Re: Kate.....RE: High pain days You just keep taking those lovely baths, Jackie. Yes, I agree with you that you should arrange a special tub for yourself. Money shouldn't hold you back from that.Gee, your SIL sounds...well, I won't say. But to have road rage with his wife and wee one in the car is just despicable. How horrible. I forget if you take anything for the depression? I know you are sensitive to meds and you need be careful, but perhaps a low dose abilify or wellbutrin or... (those are the 2 I'm personally on!) may help you. Depression is definitely a slippery slope. For me, it's hard to tease out how much is situational, how much is MS, and what part is real clinical depression.So, you take your blood every day? I don't know if I'd be able to do that...I think it would push me over the edge. I have a hard enough time with the Copaxone injections. I got a call from Accredo, the place that sends the Copaxone, asking if I'd like a delivery...well, not only do I not need one right now, I still have a months supply! So I think in all, I've missed a total of 3 wks worth of shots. That's due to forgetfulness as well as plain ol' 'not again'!Here's to many more, stress-free and pain-free days for you my friend.Love,Kate To: MSersLife Sent: Friday, August 12, 2011 10:16 AMSubject: Kate.....RE: High pain days Hi Kate,.just knowing that you and the others understand helps me be able to get thru my day. The pain isn’t as intense as it was when I first posted this, but last night I was feeling a little puny, and my blood sugars were high. But we took it again this morning and it was down, so I probably had too much carbs yesterday, plus stress can cause high readings too. Seems like I’m never too far from some drama event. Nothing high this time, just worried about my daughter and grandson. Her hubby is so mean to her and as cute as Doodles is, he is a handful. They stopped by here yesterday morning on their way up to Whidbey Island, [a 5 hour trip] for Tina’s 20th school reunion, and when she called last night she said he [doodles aka, Christian] didn’t do very well on the ride. First really long trip he’s been on, and his dad has road rage, so I can imagine what type of driving he was doing. I just hope he [her hubby] can enjoy the beauty of the Island, and not decide he wants to come home because he can’t stand her friends. She has all her friends she left behind when we moved, and never really connected with any girlfriends down here like she had there. So this was a really big deal for Tina, and I’m just afraid he will spoil it for her. He can’t seem to take the attention off of him, so I’m just waiting for that call saying they are coming back early. I know I shouldn’t worry so much about stuff like this, but when my children hurt I hurt. L Anyhooo, yes taking a nice foo foo bath ALWAYS relaxed me, it was my stress reliever. I think I am going to push for one of those walk in baths. Even if we have to make payments. Its getting to the point where I have to do something about this dry skin problem. My skin has never been like this and I think its because I always took oil and herbal baths. Its weird because my skin color was always olive and when growing up I tanned, never burned, and never had dry skin. But after I had my kids my skin changed. Dang kids……lol… ;-)I don’t think its psoriasis, but I do have scalp patches that could be, or its just seborrhea dermatitis. I really need to see a dermatologist. Thanks for the offer of the Eucerin cream. I can even get my Dr. to prescribe it and then my HSA card would pay for it. Steve tries to be as supportive as well as he can. He has his own high pain to contend to and its all he can do to get thru the day. So I try to keep my problems at a minimum when I share with him. I have to keep him well because he’s the bread winner, and so my energy goes in to making sure he doesn’t overdo. Yes I have been having more depression, but I listen to a wonderful Christian music station and it really helps me. JThank you for caring. Love and hugs, Jackie From: MSersLife [mailto:MSersLife ] On Behalf Of Kate RothschildSent: Tuesday, August 09, 2011 7:17 AMTo: MSersLife Subject: Re: High pain days Oh Jackie I am SO sorry you are in so much pain my friend. I wish I were there to help you out sweetie. That must be so frustrating to not know where the pain is coming from. Stupid doctors! Are there any tests that they can perform to try and hone in on what's what as you say?I think that just stinks that you have so much pain you can't even lesirely take a shower or bath!My sister with MS, has psoriasis (sp?)--that is of an autoimmune disorder as well, perhaps that is what you may have? Worth looking into.Thanks for sharing what you are going through, Jackie. You must feel so depressed that this is all going on. I hope at least that Steve is strong and supportive to you. You need all the help and encouragement and nurturing you can get--and deserve!I love you,Kate To: MSersLife Sent: Sunday, August 7, 2011 3:50 AMSubject: High pain days Hi friends,…I have been having so much pain all thru-out my body for some time now. Since I have several illnesses its hard to know which one its coming from. I think it might be mostly from the RSD, because I have quite a bit of swelling and skin pain in my right leg/foot and that is typical for some types of RSD. [reflex sympathetic dystrophy]. My left leg and thigh use to be my good side but the thigh muscle [quadriceps] seems to be weakening and the more I use it the more painful and weak it gets. This is a new symptom for me. I noticed it a few weeks ago how hard it was to walk back from the fridge to my desk and make it into my chair. I hang onto a walker so I have some support. But man it was really painful. I also have a disease that develops painful lumps under my skin and connective tissue and I am wondering if they are growing deeper to affect the muscles. That happens as well as they can wrap around nerves too. See what I mean about not knowing what’s what? The Dr’s don’t know either which illness is causing which symptoms. If it can be tested then they would know. This is just so frustrating to me. I can be lying in bed and the pain in both legs all the way from my feet to my thighs/pelvic area is aching so bad I can’t sleep. I’ve now been sleeping during the day at my desk, so that makes 2 naps now. You would think laying down would relieve the pain, but it seems to be worse then. And not the parts that I’m lying on. I can only lay on my back now, and it’s the front of my body that hurts the worse. Go figure. Our weather has been very high humidity and low pressure, and not very warm but the humidity bothers me quite a bit. Tonight I can smell the swamp like smell from the lake and expect “Yoda†to walk thru my door any minute…..lol…inject a little humor here! J [Yoda is the little green creature from the movie Star Wars for those not familiar with him, and he came from a swamp]One thing that I was wondering, do any of you have any skin involvement that creates extremely dry skin? My dr. said it was Icthymotosis [sp], or something like that. It’s only in areas that are the most painful, and all the moisturizing doesn’t seem to penetrate. So I guess that’s my update. I just don’t know what I will do if I lose my ability to walk altogether. Steve can take an early retirement, but the SS would be peanuts. L the pains in my legs are so bad I can’t even get into the shower we had modified with grab bars, to take a shower. A bath tub is out of the question. Too bad they don’t make people washes like car washes! Wouldn’t that be FUN! Lol..Love and hugs to all, Jackie

[Guest guest]

That’s the problem Kate, I can’t take them until we get one I can get in and out of. That’s why the walk in would be perfect, but we are wanting to move to a MFH we found and we don’t want to go to the expense of putting the tub in here if we are planning on moving soon. [i hope soon!] so its not the money. We can always finance it. Yeah I worry about SIL road rage too. Tina called last night and said they are coming back early. Its cold up there and I am thinking SIL is grousing too much about being bored, and having to take care of the baby too much by himself. But she said she saw everyone she wanted to, and she was ready to come home. No I don’t take anything for the depression. Tried a few years ago and they really mess with my head. I figure most of the depression is situational anyhow. Because when things are going the way they should go I am okay. Its just frustrating having to depend on others to do things I use to do very easily. Now I can’t hardly do anything and so lots doesn’t get done. Not blaming Steve, and there are things I can hire stuff out, but that takes trust and money. We did find a good furnace/heat pump guy off from Angies List, and he came out last week and come to find out our system had MOLD spores growing in the coils that were not assembled right when we had it installed 10 years ago. No wonder I’ve been having so many allergy symptoms all these years. So he cleaned all of that up, and fixed the coils, and now everything runs a lot better. Yup sometimes I take my blood 3 times a day. It really doesn’t hurt if I pick the right area. Steve does it for me, cuz a little hard to do it one handed, and so we use 3 fingers on my left hand. And if I’m not satisfied of the results we pick one of the other 3, and I get a different result. Don’t know why? My thumb gives the lowest, so I go with that number usually. Lol…. ;-) Thanks for the well wishes, you too eh! Hugs and love, Jackie From: MSersLife [mailto:MSersLife ] On Behalf Of Kate RothschildSent: Saturday, August 13, 2011 2:08 PMTo: MSersLife Subject: Re: Kate.....RE: High pain days You just keep taking those lovely baths, Jackie. Yes, I agree with you that you should arrange a special tub for yourself. Money shouldn't hold you back from that.Gee, your SIL sounds...well, I won't say. But to have road rage with his wife and wee one in the car is just despicable. How horrible. I forget if you take anything for the depression? I know you are sensitive to meds and you need be careful, but perhaps a low dose abilify or wellbutrin or... (those are the 2 I'm personally on!) may help you. Depression is definitely a slippery slope. For me, it's hard to tease out how much is situational, how much is MS, and what part is real clinical depression.So, you take your blood every day? I don't know if I'd be able to do that...I think it would push me over the edge. I have a hard enough time with the Copaxone injections. I got a call from Accredo, the place that sends the Copaxone, asking if I'd like a delivery...well, not only do I not need one right now, I still have a months supply! So I think in all, I've missed a total of 3 wks worth of shots. That's due to forgetfulness as well as plain ol' 'not again'!Here's to many more, stress-free and pain-free days for you my friend.Love,Kate To: MSersLife Sent: Friday, August 12, 2011 10:16 AMSubject: Kate.....RE: High pain days Hi Kate,.just knowing that you and the others understand helps me be able to get thru my day. The pain isn’t as intense as it was when I first posted this, but last night I was feeling a little puny, and my blood sugars were high. But we took it again this morning and it was down, so I probably had too much carbs yesterday, plus stress can cause high readings too. Seems like I’m never too far from some drama event. Nothing high this time, just worried about my daughter and grandson. Her hubby is so mean to her and as cute as Doodles is, he is a handful. They stopped by here yesterday morning on their way up to Whidbey Island, [a 5 hour trip] for Tina’s 20th school reunion, and when she called last night she said he [doodles aka, Christian] didn’t do very well on the ride. First really long trip he’s been on, and his dad has road rage, so I can imagine what type of driving he was doing. I just hope he [her hubby] can enjoy the beauty of the Island, and not decide he wants to come home because he can’t stand her friends. She has all her friends she left behind when we moved, and never really connected with any girlfriends down here like she had there. So this was a really big deal for Tina, and I’m just afraid he will spoil it for her. He can’t seem to take the attention off of him, so I’m just waiting for that call saying they are coming back early. I know I shouldn’t worry so much about stuff like this, but when my children hurt I hurt. L Anyhooo, yes taking a nice foo foo bath ALWAYS relaxed me, it was my stress reliever. I think I am going to push for one of those walk in baths. Even if we have to make payments. Its getting to the point where I have to do something about this dry skin problem. My skin has never been like this and I think its because I always took oil and herbal baths. Its weird because my skin color was always olive and when growing up I tanned, never burned, and never had dry skin. But after I had my kids my skin changed. Dang kids……lol… ;-)I don’t think its psoriasis, but I do have scalp patches that could be, or its just seborrhea dermatitis. I really need to see a dermatologist. Thanks for the offer of the Eucerin cream. I can even get my Dr. to prescribe it and then my HSA card would pay for it. Steve tries to be as supportive as well as he can. He has his own high pain to contend to and its all he can do to get thru the day. So I try to keep my problems at a minimum when I share with him. I have to keep him well because he’s the bread winner, and so my energy goes in to making sure he doesn’t overdo. Yes I have been having more depression, but I listen to a wonderful Christian music station and it really helps me. JThank you for caring. Love and hugs, Jackie From: MSersLife [mailto:MSersLife ] On Behalf Of Kate RothschildSent: Tuesday, August 09, 2011 7:17 AMTo: MSersLife Subject: Re: High pain days Oh Jackie I am SO sorry you are in so much pain my friend. I wish I were there to help you out sweetie. That must be so frustrating to not know where the pain is coming from. Stupid doctors! Are there any tests that they can perform to try and hone in on what's what as you say?I think that just stinks that you have so much pain you can't even lesirely take a shower or bath!My sister with MS, has psoriasis (sp?)--that is of an autoimmune disorder as well, perhaps that is what you may have? Worth looking into.Thanks for sharing what you are going through, Jackie. You must feel so depressed that this is all going on. I hope at least that Steve is strong and supportive to you. You need all the help and encouragement and nurturing you can get--and deserve!I love you,Kate To: MSersLife Sent: Sunday, August 7, 2011 3:50 AMSubject: High pain days Hi friends,…I have been having so much pain all thru-out my body for some time now. Since I have several illnesses its hard to know which one its coming from. I think it might be mostly from the RSD, because I have quite a bit of swelling and skin pain in my right leg/foot and that is typical for some types of RSD. [reflex sympathetic dystrophy]. My left leg and thigh use to be my good side but the thigh muscle [quadriceps] seems to be weakening and the more I use it the more painful and weak it gets. This is a new symptom for me. I noticed it a few weeks ago how hard it was to walk back from the fridge to my desk and make it into my chair. I hang onto a walker so I have some support. But man it was really painful. I also have a disease that develops painful lumps under my skin and connective tissue and I am wondering if they are growing deeper to affect the muscles. That happens as well as they can wrap around nerves too. See what I mean about not knowing what’s what? The Dr’s don’t know either which illness is causing which symptoms. If it can be tested then they would know. This is just so frustrating to me. I can be lying in bed and the pain in both legs all the way from my feet to my thighs/pelvic area is aching so bad I can’t sleep. I’ve now been sleeping during the day at my desk, so that makes 2 naps now. You would think laying down would relieve the pain, but it seems to be worse then. And not the parts that I’m lying on. I can only lay on my back now, and it’s the front of my body that hurts the worse. Go figure. Our weather has been very high humidity and low pressure, and not very warm but the humidity bothers me quite a bit. Tonight I can smell the swamp like smell from the lake and expect “Yoda†to walk thru my door any minute…..lol…inject a little humor here! J [Yoda is the little green creature from the movie Star Wars for those not familiar with him, and he came from a swamp]One thing that I was wondering, do any of you have any skin involvement that creates extremely dry skin? My dr. said it was Icthymotosis [sp], or something like that. It’s only in areas that are the most painful, and all the moisturizing doesn’t seem to penetrate. So I guess that’s my update. I just don’t know what I will do if I lose my ability to walk altogether. Steve can take an early retirement, but the SS would be peanuts. L the pains in my legs are so bad I can’t even get into the shower we had modified with grab bars, to take a shower. A bath tub is out of the question. Too bad they don’t make people washes like car washes! Wouldn’t that be FUN! Lol..Love and hugs to all, Jackie

[Guest guest]

That’s the problem Kate, I can’t take them until we get one I can get in and out of. That’s why the walk in would be perfect, but we are wanting to move to a MFH we found and we don’t want to go to the expense of putting the tub in here if we are planning on moving soon. [i hope soon!] so its not the money. We can always finance it. Yeah I worry about SIL road rage too. Tina called last night and said they are coming back early. Its cold up there and I am thinking SIL is grousing too much about being bored, and having to take care of the baby too much by himself. But she said she saw everyone she wanted to, and she was ready to come home. No I don’t take anything for the depression. Tried a few years ago and they really mess with my head. I figure most of the depression is situational anyhow. Because when things are going the way they should go I am okay. Its just frustrating having to depend on others to do things I use to do very easily. Now I can’t hardly do anything and so lots doesn’t get done. Not blaming Steve, and there are things I can hire stuff out, but that takes trust and money. We did find a good furnace/heat pump guy off from Angies List, and he came out last week and come to find out our system had MOLD spores growing in the coils that were not assembled right when we had it installed 10 years ago. No wonder I’ve been having so many allergy symptoms all these years. So he cleaned all of that up, and fixed the coils, and now everything runs a lot better. Yup sometimes I take my blood 3 times a day. It really doesn’t hurt if I pick the right area. Steve does it for me, cuz a little hard to do it one handed, and so we use 3 fingers on my left hand. And if I’m not satisfied of the results we pick one of the other 3, and I get a different result. Don’t know why? My thumb gives the lowest, so I go with that number usually. Lol…. ;-) Thanks for the well wishes, you too eh! Hugs and love, Jackie From: MSersLife [mailto:MSersLife ] On Behalf Of Kate RothschildSent: Saturday, August 13, 2011 2:08 PMTo: MSersLife Subject: Re: Kate.....RE: High pain days You just keep taking those lovely baths, Jackie. Yes, I agree with you that you should arrange a special tub for yourself. Money shouldn't hold you back from that.Gee, your SIL sounds...well, I won't say. But to have road rage with his wife and wee one in the car is just despicable. How horrible. I forget if you take anything for the depression? I know you are sensitive to meds and you need be careful, but perhaps a low dose abilify or wellbutrin or... (those are the 2 I'm personally on!) may help you. Depression is definitely a slippery slope. For me, it's hard to tease out how much is situational, how much is MS, and what part is real clinical depression.So, you take your blood every day? I don't know if I'd be able to do that...I think it would push me over the edge. I have a hard enough time with the Copaxone injections. I got a call from Accredo, the place that sends the Copaxone, asking if I'd like a delivery...well, not only do I not need one right now, I still have a months supply! So I think in all, I've missed a total of 3 wks worth of shots. That's due to forgetfulness as well as plain ol' 'not again'!Here's to many more, stress-free and pain-free days for you my friend.Love,Kate To: MSersLife Sent: Friday, August 12, 2011 10:16 AMSubject: Kate.....RE: High pain days Hi Kate,.just knowing that you and the others understand helps me be able to get thru my day. The pain isn’t as intense as it was when I first posted this, but last night I was feeling a little puny, and my blood sugars were high. But we took it again this morning and it was down, so I probably had too much carbs yesterday, plus stress can cause high readings too. Seems like I’m never too far from some drama event. Nothing high this time, just worried about my daughter and grandson. Her hubby is so mean to her and as cute as Doodles is, he is a handful. They stopped by here yesterday morning on their way up to Whidbey Island, [a 5 hour trip] for Tina’s 20th school reunion, and when she called last night she said he [doodles aka, Christian] didn’t do very well on the ride. First really long trip he’s been on, and his dad has road rage, so I can imagine what type of driving he was doing. I just hope he [her hubby] can enjoy the beauty of the Island, and not decide he wants to come home because he can’t stand her friends. She has all her friends she left behind when we moved, and never really connected with any girlfriends down here like she had there. So this was a really big deal for Tina, and I’m just afraid he will spoil it for her. He can’t seem to take the attention off of him, so I’m just waiting for that call saying they are coming back early. I know I shouldn’t worry so much about stuff like this, but when my children hurt I hurt. L Anyhooo, yes taking a nice foo foo bath ALWAYS relaxed me, it was my stress reliever. I think I am going to push for one of those walk in baths. Even if we have to make payments. Its getting to the point where I have to do something about this dry skin problem. My skin has never been like this and I think its because I always took oil and herbal baths. Its weird because my skin color was always olive and when growing up I tanned, never burned, and never had dry skin. But after I had my kids my skin changed. Dang kids……lol… ;-)I don’t think its psoriasis, but I do have scalp patches that could be, or its just seborrhea dermatitis. I really need to see a dermatologist. Thanks for the offer of the Eucerin cream. I can even get my Dr. to prescribe it and then my HSA card would pay for it. Steve tries to be as supportive as well as he can. He has his own high pain to contend to and its all he can do to get thru the day. So I try to keep my problems at a minimum when I share with him. I have to keep him well because he’s the bread winner, and so my energy goes in to making sure he doesn’t overdo. Yes I have been having more depression, but I listen to a wonderful Christian music station and it really helps me. JThank you for caring. Love and hugs, Jackie From: MSersLife [mailto:MSersLife ] On Behalf Of Kate RothschildSent: Tuesday, August 09, 2011 7:17 AMTo: MSersLife Subject: Re: High pain days Oh Jackie I am SO sorry you are in so much pain my friend. I wish I were there to help you out sweetie. That must be so frustrating to not know where the pain is coming from. Stupid doctors! Are there any tests that they can perform to try and hone in on what's what as you say?I think that just stinks that you have so much pain you can't even lesirely take a shower or bath!My sister with MS, has psoriasis (sp?)--that is of an autoimmune disorder as well, perhaps that is what you may have? Worth looking into.Thanks for sharing what you are going through, Jackie. You must feel so depressed that this is all going on. I hope at least that Steve is strong and supportive to you. You need all the help and encouragement and nurturing you can get--and deserve!I love you,Kate To: MSersLife Sent: Sunday, August 7, 2011 3:50 AMSubject: High pain days Hi friends,…I have been having so much pain all thru-out my body for some time now. Since I have several illnesses its hard to know which one its coming from. I think it might be mostly from the RSD, because I have quite a bit of swelling and skin pain in my right leg/foot and that is typical for some types of RSD. [reflex sympathetic dystrophy]. My left leg and thigh use to be my good side but the thigh muscle [quadriceps] seems to be weakening and the more I use it the more painful and weak it gets. This is a new symptom for me. I noticed it a few weeks ago how hard it was to walk back from the fridge to my desk and make it into my chair. I hang onto a walker so I have some support. But man it was really painful. I also have a disease that develops painful lumps under my skin and connective tissue and I am wondering if they are growing deeper to affect the muscles. That happens as well as they can wrap around nerves too. See what I mean about not knowing what’s what? The Dr’s don’t know either which illness is causing which symptoms. If it can be tested then they would know. This is just so frustrating to me. I can be lying in bed and the pain in both legs all the way from my feet to my thighs/pelvic area is aching so bad I can’t sleep. I’ve now been sleeping during the day at my desk, so that makes 2 naps now. You would think laying down would relieve the pain, but it seems to be worse then. And not the parts that I’m lying on. I can only lay on my back now, and it’s the front of my body that hurts the worse. Go figure. Our weather has been very high humidity and low pressure, and not very warm but the humidity bothers me quite a bit. Tonight I can smell the swamp like smell from the lake and expect “Yoda†to walk thru my door any minute…..lol…inject a little humor here! J [Yoda is the little green creature from the movie Star Wars for those not familiar with him, and he came from a swamp]One thing that I was wondering, do any of you have any skin involvement that creates extremely dry skin? My dr. said it was Icthymotosis [sp], or something like that. It’s only in areas that are the most painful, and all the moisturizing doesn’t seem to penetrate. So I guess that’s my update. I just don’t know what I will do if I lose my ability to walk altogether. Steve can take an early retirement, but the SS would be peanuts. L the pains in my legs are so bad I can’t even get into the shower we had modified with grab bars, to take a shower. A bath tub is out of the question. Too bad they don’t make people washes like car washes! Wouldn’t that be FUN! Lol..Love and hugs to all, Jackie