Re: What type of Doc?

[Guest guest]

I sent a message to my chiari group asking about anybody who had had postive

experiences with one, especially pediatric ones, I'll see what sort of

response i get and let you know.

What type of Doc?

>

> Due to the findings at NIH, Dylan needs to see some specialists. For the

> C7 spine laxity, and bulging disk, and the L shoulder with reduced

> reflex from the cervical or shoulder joint, plus the broken spinus

> process at L3 right over the nerve that runs to his R knee pain, Does he

> see a Neurologist or Neurosurgeon? The primary today was no help. He

> doesn't understand all this and doesn't want to. So I can ask for what

> ever Doc and tests I want. I was very upset with him today for his

> response to the problems found. That's a whole other story. Dylan's EKG

> today still showed him in Bradycardia still,(Two weeks now that I know

> of) which no-one is taking seriously. His HR during that 1 minute test

> was 46. He is not a trained athlete, he is a child that has laid in bed

> for two years. Drives me crazy! My gut tells me this is a problem. A big

> problem. We got back late from the Doc's so, Monday I'll call a

> cardiologist. I can only find one Dr in Michigan that treats autonomic

> dysfunction but I don't know if he is a heart Dr. I'll find out Monday.

> I don't want him to have a pacemaker if the Autonomic dysfunction isn't

> addressed at the same time. From what I have read, the autonomic

> dysfunction can cause the bradycardia, and then he'd have a pace maker

> when the heart was never the problem. This is all getting so darned

> complicated. I'm afraid if I take him to a regular heart Dr, they'd want

> to put in the pacemaker. We just have to get to Dr Grubbs!. I am

> changing insurance to better suit Dylan's needs, but it doesn't start

> till Oct 1. Till then, I'm stuck with who ever is in my book. How in

> the heck do you pick a name of a Dr. in a book? More things show up

> every day. Today he has been dizzy. Yesterday his foot zapped him

> everytime he put weight on it. Sorry this is getting long, but I'm

> frustrated. He's 17 and the Dang Doc just isn't helpful with these new

> problems found. He admitted it was over his head. I like that a Doc can

> admit that but where do I go from here? I have to start Monday. I know

> there are nurses in this group, where do I take him?

> Cindylouwho

>

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