Re: Betty ~ good news at last!!!!!!!!!!!!!

[Guest guest]

TJ

Thanks so much for your email, and you take your time to reply....just

concentrate on looking after yourself first. I know exactly how you feel

about your other kids. And yes we are so happy about . Tomorrow would

have been Danny's 15th birthday so a sad time once again (well just another

sad day I have alot). I will still make a cake and we will release helium

balloons in the provincial park he loved so much to play in. It is about 5

minutes from our house and he had many adventures there with his friends.

Anyway will talk to you later. Hope you were able to open the attachment

(picture).

(((((((((((HUGS))))))))))))

Betty

Betty ~ good news at last!!!!!!!!!!!!!

>

> PTL Betty -------- ( PTL = Praise The Lord )

>

> I can just bet how much lesser the weight feels- I have yet to wonder

about my younger one- well - both boys actually but out of the 2 - the

younger is more like his mama - translucent skin, easy bruiser- and even had

in past had micro-aneurysms in his bladder but the dr said they dissapate

and not to worry about it ?1? but this was before Ehlers was dx'd in our

family..........

>

> With him being only 11 though- and Kenny passed at age 12- I just can't

throw that fearful probability in his life- especially knowing there is no

cure- and he is not complaining about any pain or anything- at least he does

know that Mama has it and that his brother passed from it- so if there are

any hospitalizations and I am not around there with him............ I do

know he will state- My Mother has Vascular Ehlers Danlos Syndrome....... so

that they will be more careful with him..... no matter what his dad says is

not true. ( His dad says I'm a fake lol - don't I wish ).

>

> But definitely glad to hear that is out of the woods so to

speak......

>

> And its normal to wonder why Danny had it and didn't........ that

is just something we will never know until we are greeted by them when its

our time to go..... I owe you a couple letters , just wanted to let you

know- that I did receive them and I hope to get back to you soon on

them...... I've not been feeling well enough to much get out of bed the past

3 days but am feeling some better now- but you should see this inbox

lol....... scareyyyyyy........ So will respond soon......

>

> Love - Hugs and Blessings-

> TJ

>

>

>

>

> Hello all

> I just recieved the best news of all and Lord knows I needed this.....my

older boy does not have VEDS. He does not have the gene mutation that

I have and my younger boy had. My husband & I feel like a huge weight has

been lifted. ALthough I was very emotional when I heard today, I did have

thoughts like why did Danny get it and pass away from it and doesn't

have it. (not that I wanted KEvin to have it) but this is such a crazy

syndrome. Anyway just wanted to share some happy

news!!!!!!!!!!!!!!!!!!!!!!!!!!!!

> Betty

>

>

>

>