Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Betty, I am SO GLAD for you and for your whole family! :-) Thanks so much for letting us know! And thank God! Love Lana 0:-) good news at last!!!!!!!!!!!!! Hello all I just recieved the best news of all and Lord knows I needed this.....my older boy does not have VEDS. He does not have the gene mutation that I have and my younger boy had. My husband & I feel like a huge weight has been lifted. ALthough I was very emotional when I heard today, I did have thoughts like why did Danny get it and pass away from it and doesn't have it. (not that I wanted KEvin to have it) but this is such a crazy syndrome. Anyway just wanted to share some happy news!!!!!!!!!!!!!!!!!!!!!!!!!!!! Betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Betty, I am SO GLAD for you and for your whole family! :-) Thanks so much for letting us know! And thank God! Love Lana 0:-) good news at last!!!!!!!!!!!!! Hello all I just recieved the best news of all and Lord knows I needed this.....my older boy does not have VEDS. He does not have the gene mutation that I have and my younger boy had. My husband & I feel like a huge weight has been lifted. ALthough I was very emotional when I heard today, I did have thoughts like why did Danny get it and pass away from it and doesn't have it. (not that I wanted KEvin to have it) but this is such a crazy syndrome. Anyway just wanted to share some happy news!!!!!!!!!!!!!!!!!!!!!!!!!!!! Betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Oh Betty I am so pleased for you and your family! I know this muct be a huge releif to you all although I can completely understnd your mixed emotions too. Please know that you will all continue to be in my thoughts and prayers. Love and hugs....Jo xxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Oh Betty I am so pleased for you and your family! I know this muct be a huge releif to you all although I can completely understnd your mixed emotions too. Please know that you will all continue to be in my thoughts and prayers. Love and hugs....Jo xxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Thanks Lana and yes I do thank God every second. Betty good news at last!!!!!!!!!!!!! > > > > Hello all > I just recieved the best news of all and Lord knows I needed this.....my > older boy does not have VEDS. He does not have the gene mutation that > I have and my younger boy had. My husband & I feel like a huge weight has > been lifted. ALthough I was very emotional when I heard today, I did have > thoughts like why did Danny get it and pass away from it and doesn't > have it. (not that I wanted KEvin to have it) but this is such a crazy > syndrome. Anyway just wanted to share some happy > news!!!!!!!!!!!!!!!!!!!!!!!!!!!! > Betty > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Thanks so much Jo and hope you are well. Always in my thoughts Betty Re: good news at last!!!!!!!!!!!!! > Oh Betty I am so pleased for you and your family! I know this muct > be a huge releif to you all although I can completely understnd your > mixed emotions too. Please know that you will all continue to be in > my thoughts and prayers. > > Love and hugs....Jo > xxx > > > > > To learn more about EDS, visit our website: http://www.ehlersdanlos.ca > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Doing the conga-rats dance for you! What a relief!!! Hang in there! good news at last!!!!!!!!!!!!! Hello all I just recieved the best news of all and Lord knows I needed this.....my older boy does not have VEDS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Doing the conga-rats dance for you! What a relief!!! Hang in there! good news at last!!!!!!!!!!!!! Hello all I just recieved the best news of all and Lord knows I needed this.....my older boy does not have VEDS. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Thank Goodness!!!!!!!!! Oh Betty I am so happy to hear this! What a relief for your family. Mega Big (((HUGS))) -Rhea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Oh this is such great news Betty, I am so pleased for you and your family! Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Absolutely wonderful news Betty!!! I'm so happy for you all. This is the best news! Cindylouwho good news at last!!!!!!!!!!!!! Hello all I just recieved the best news of all and Lord knows I needed this.....my older boy does not have VEDS. He does not have the gene mutation that I have and my younger boy had. My husband & I feel like a huge weight has been lifted. ALthough I was very emotional when I heard today, I did have thoughts like why did Danny get it and pass away from it and doesn't have it. (not that I wanted KEvin to have it) but this is such a crazy syndrome. Anyway just wanted to share some happy news!!!!!!!!!!!!!!!!!!!!!!!!!!!! Betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Oh Betty! That is such great news Yea and thank God! I bet you feel just wonderful! I am so pleased for you and your son! Blessings for a long and *normal* EDS fun filled life! Love. Debbi good news at last!!!!!!!!!!!!! Hello all I just recieved the best news of all and Lord knows I needed this.....my older boy does not have VEDS. He does not have the gene mutation that I have and my younger boy had. My husband & I feel like a huge weight has been lifted. ALthough I was very emotional when I heard today, I did have thoughts like why did Danny get it and pass away from it and doesn't have it. (not that I wanted KEvin to have it) but this is such a crazy syndrome. Anyway just wanted to share some happy news!!!!!!!!!!!!!!!!!!!!!!!!!!!! Betty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Thanks so much good news at last!!!!!!!!!!!!! > > > Hello all > I just recieved the best news of all and Lord knows I needed this.....my older boy does not have VEDS. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Thank you Jill. I was also going to ask you whereabouts you live...you can email me off list. As we will be in Ontario and driving up to the cottage from Toronto maybe we can meet. It will be on the 23rd of July. Betty Re: good news at last!!!!!!!!!!!!! > Oh this is such great news Betty, I am so pleased for you and your family! > > Jill > > > > > > > To learn more about EDS, visit our website: http://www.ehlersdanlos.ca > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Thanks Rhea, and hope all is well with you. Betty Re: good news at last!!!!!!!!!!!!! > Thank Goodness!!!!!!!!! Oh Betty I am so happy to hear this! What a > relief for your family. > > Mega Big (((HUGS))) > > -Rhea > > > > > To learn more about EDS, visit our website: http://www.ehlersdanlos.ca > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Dear Betty, This is absolutely fantastic news, that doesn't have it! I'm so happy for you and your family! Sincerely, S. good news at last!!!!!!!!!!!!! > Hello all > I just recieved the best news of all and Lord knows I needed this.....my older boy does not have VEDS. He does not have the gene mutation that I have and my younger boy had. My husband & I feel like a huge weight has been lifted. ALthough I was very emotional when I heard today, I did have thoughts like why did Danny get it and pass away from it and doesn't have it. (not that I wanted KEvin to have it) but this is such a crazy syndrome. Anyway just wanted to share some happy news!!!!!!!!!!!!!!!!!!!!!!!!!!!! > Betty > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Thanks very much, we are very very happy. good news at last!!!!!!!!!!!!! > > > Hello all > I just recieved the best news of all and Lord knows I needed this.....my older boy does not have VEDS. He does not have the gene mutation that I have and my younger boy had. My husband & I feel like a huge weight has been lifted. ALthough I was very emotional when I heard today, I did have thoughts like why did Danny get it and pass away from it and doesn't have it. (not that I wanted KEvin to have it) but this is such a crazy syndrome. Anyway just wanted to share some happy news!!!!!!!!!!!!!!!!!!!!!!!!!!!! > Betty > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Thanks very much, we are very very happy. good news at last!!!!!!!!!!!!! > > > Hello all > I just recieved the best news of all and Lord knows I needed this.....my older boy does not have VEDS. He does not have the gene mutation that I have and my younger boy had. My husband & I feel like a huge weight has been lifted. ALthough I was very emotional when I heard today, I did have thoughts like why did Danny get it and pass away from it and doesn't have it. (not that I wanted KEvin to have it) but this is such a crazy syndrome. Anyway just wanted to share some happy news!!!!!!!!!!!!!!!!!!!!!!!!!!!! > Betty > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Thanks so much Debbi good news at last!!!!!!!!!!!!! > > > > Hello all > I just recieved the best news of all and Lord knows I needed this.....my > older boy does not have VEDS. He does not have the gene mutation that > I have and my younger boy had. My husband & I feel like a huge weight has > been lifted. ALthough I was very emotional when I heard today, I did have > thoughts like why did Danny get it and pass away from it and doesn't > have it. (not that I wanted KEvin to have it) but this is such a crazy > syndrome. Anyway just wanted to share some happy > news!!!!!!!!!!!!!!!!!!!!!!!!!!!! > Betty > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 8, 2004 Report Share Posted July 8, 2004 Thanks so much !! good news at last!!!!!!!!!!!!! > > > > Hello all > > I just recieved the best news of all and Lord knows I needed this.....my > older boy does not have VEDS. He does not have the gene mutation that > I have and my younger boy had. My husband & I feel like a huge weight has > been lifted. ALthough I was very emotional when I heard today, I did have > thoughts like why did Danny get it and pass away from it and doesn't > have it. (not that I wanted KEvin to have it) but this is such a crazy > syndrome. Anyway just wanted to share some happy > news!!!!!!!!!!!!!!!!!!!!!!!!!!!! > > Betty > > > > Quote Link to comment Share on other sites More sharing options...
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