Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 LOL!! What a laugh that is!!! They should try talking to some of us....their results may end up a bit different. If this is accurate---I should have less arthritis...so guess I should be grateful I do have loose joints or it would be worse!!!! Pray tell how it could be worse at 54..... I have arthritis in every joint that's been hypermobile. .That's a heck of alot of arthritic joints! Geez.....this ticks me off!!! And it keeps cropping up---just to give the dumb docs a chance to see it, and to go on thinking it's all in our heads..........grrrrrrrrrrrrrrrrrrrrrr (Now that I've blown off some steam over something that's been reported many times from many studies,my rant is over....BUT it sure felt good to " carry on " a bit today. ) CindyH Wisc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 LOL!! What a laugh that is!!! They should try talking to some of us....their results may end up a bit different. If this is accurate---I should have less arthritis...so guess I should be grateful I do have loose joints or it would be worse!!!! Pray tell how it could be worse at 54..... I have arthritis in every joint that's been hypermobile. .That's a heck of alot of arthritic joints! Geez.....this ticks me off!!! And it keeps cropping up---just to give the dumb docs a chance to see it, and to go on thinking it's all in our heads..........grrrrrrrrrrrrrrrrrrrrrr (Now that I've blown off some steam over something that's been reported many times from many studies,my rant is over....BUT it sure felt good to " carry on " a bit today. ) CindyH Wisc. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 God, I'm with ya Cindy!!! I am FUMING that articles like this are allowed to come out!! Why don't they go to 'THE' source - meaning EDSers and probably Marfans?!?!?!? It's crap like this that makes doctors THINK they know what they're reading/talking about! I may try to write a letter to this doctor - I am really pi - -ed off! Love Lana p.s. my hands hurt all the time, esp. my thumbs. > LOL!! What a laugh that is!!! > They should try talking to some of us....their results may end up a bit different. > > If this is accurate---I should have less arthritis...so guess I should be grateful I do have loose joints or it would be worse!!!! > Pray tell how it could be worse at 54..... I have arthritis in every joint that's been hypermobile. .That's a heck of alot of arthritic joints! > > Geez.....this ticks me off!!! And it keeps cropping up---just to give the dumb docs a chance to see it, and to go on thinking it's all in our heads..........grrrrrrrrrrrrrrrrrrrrrr > > (Now that I've blown off some steam over something that's been reported many times from many studies,my rant is over....BUT it sure felt good to " carry on " a bit today. ) > CindyH > Wisc. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 I can't help but notice they seemed to base their results soley on X- rays. From what I've read on EDS, many times x-rays appear normal, even when damage is present (I know I've experienced this first-hand in more than one joint). I wonder how many of the people in the study had x-rays that showed no arthritis but still had pain, stiffness or other symptoms in their finger joints. Hmmm... > > Each volunteer's joints were examined and scored for the degree of > double-jointedness. X-rays of the finger joints determined the existence of > joint damage from osteoarthritis. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 My EDS son's doctors, the genecticist, rheumy, and the osteo all told me not to allow hyperextension of his joints because that can cause arthritis in the future. I'm glad they are well informed at least about that. Now about the other stuff... ~Duv Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 My EDS son's doctors, the genecticist, rheumy, and the osteo all told me not to allow hyperextension of his joints because that can cause arthritis in the future. I'm glad they are well informed at least about that. Now about the other stuff... ~Duv Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 I thought I would poke around and find a bit more about who wrote the article; and who reviewed it. I am wondering after looking at some of the other articles she has written who funds her writing; and WebMD http://my.webmd.com/content/biography/7/1756_50703 Jeanie Lerche has been with WebMD since 1999. She researches, reports, and writes daily news stories and health features. Ms. handled media relations for several museums in Illinois and Virginia before focusing her writing career on health and medicine in 1990. In Houston, she wrote for the University of Texas M.D. Cancer Center and St. Luke's Episcopal Hospital/Texas Heart Institute. She moved to Atlanta in early 1996 and wrote for the American Cancer Society, Emory University Health Sciences Center, the Atlanta Business Chronicle, and others. She has received numerous awards, most recently a 2003 Circle of Exellence Media Award from the American Society for Plastic Surgeons for a feature on trends in cosmetic surgery. http://my.webmd.com/content/Biography/7/40428.htm Brunilda Nazario, MD, is responsible for reviewing WebMD news and feature stories and graphics to ensure their medical accuracy. She joined WebMD in 2002. After obtaining her medical degree at the University of Noreste School of Medicine in Mexico, Brunilda Nazario, MD, completed her residency in internal medicine at Mount Sinai Medical Center in New York City and a fellowship in endocrinology and metabolism at the University of California in Irvine. Her fellowship involved research of vascular peptides and their interaction, for which she received the Merck Fellow Award in 1994. After her fellowship, Nazario joined the faculty of the University of California in Irvine. Later, she joined the faculty at the University of New Mexico in Albuquerque. She also had a private practice in Santa Fe, N.M. In 1995, Dr. Nazario accepted a position as a consultant in endocrinology, focusing on hypertension, lipid and diabetes management, nutritional and weight management, and endocrine gland disorders. She also worked with many women suffering from reproductive endocrine issues such as polycystic ovary syndrome, hirsutism, basic infertility management, and menopausal management with special focus on osteoporosis. She was invited to be a consultant for the Therapeutic Options for Menopausal Health in 1999 and 2000 and the Council on Hormone Education in 2002. Recently, special interest in lipid disorders has led to her involvement in the s Hopkins University of Medicine Lipid Disorders Training Center Program. Dr. Nazario is board-certified in both internal medicine, and endocrinology and metabolism. She is also affiliated with numerous organizations including the American college of Physicians, The Endocrine Society, and the American Diabetes Association for Health Professionals. http://www.vrselfhelp.com/education/articles/general.asp http://my.webmd.com/content/article/83/97714.htm http://webcenter.health.webmd.netscape.com/content/article/61/67347.htm Chemicals Not Linked to Gulf War Illness No Evidence That Solvents, Insecticides Caused Veterans' Symptoms by Jeanie Lerche http://my.webmd.com/content/pages/8/3045_143 Since its inception, WebMD has sought sponsorships from trusted and credible research organizations, manufacturers, and other leaders dedicated to treating and managing your health. Although there is a commercial benefit for WebMD, sponsor information also benefits WebMD users by providing them with the most up-to-date information on medications, medical devices, health services, and therapies in the marketplace. ... Many times, third parties offer to provide funding for the creation of WebMD original Editorial content without having any influence over it. ... http://my.webmd.com/content/article/60/67018.htm The WebMD Editorial staff gets its stories from an array of sources: peer-reviewed medical journals, medical conferences, federal or state government actions, and enterprise material derived from interviews with medical experts. The majority of stories originate from studies published in peer-reviewed medical journals. WebMD also believes that valuable content is available from WebMD sponsors, advertisers, and partners, but that such content must be clearly labeled. Each completed story to be published is reviewed by a medical editor for accuracy, appropriateness of medical language, and proper characterization of the findings. The story is next reviewed by an Assistant Managing Editor who edits it for style, flow, punctuation, and readability. Finally, the story moves from editing to publishing, where it is converted to HTML and published to the site... On 7/7/04 2:15 PM, " ceda " ceda > wrote: > > Subject: Re: Double-Jointed? You May Have Less Arthritis > > ...! I may > try to write a letter to this doctor ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 I thought I would poke around and find a bit more about who wrote the article; and who reviewed it. I am wondering after looking at some of the other articles she has written who funds her writing; and WebMD http://my.webmd.com/content/biography/7/1756_50703 Jeanie Lerche has been with WebMD since 1999. She researches, reports, and writes daily news stories and health features. Ms. handled media relations for several museums in Illinois and Virginia before focusing her writing career on health and medicine in 1990. In Houston, she wrote for the University of Texas M.D. Cancer Center and St. Luke's Episcopal Hospital/Texas Heart Institute. She moved to Atlanta in early 1996 and wrote for the American Cancer Society, Emory University Health Sciences Center, the Atlanta Business Chronicle, and others. She has received numerous awards, most recently a 2003 Circle of Exellence Media Award from the American Society for Plastic Surgeons for a feature on trends in cosmetic surgery. http://my.webmd.com/content/Biography/7/40428.htm Brunilda Nazario, MD, is responsible for reviewing WebMD news and feature stories and graphics to ensure their medical accuracy. She joined WebMD in 2002. After obtaining her medical degree at the University of Noreste School of Medicine in Mexico, Brunilda Nazario, MD, completed her residency in internal medicine at Mount Sinai Medical Center in New York City and a fellowship in endocrinology and metabolism at the University of California in Irvine. Her fellowship involved research of vascular peptides and their interaction, for which she received the Merck Fellow Award in 1994. After her fellowship, Nazario joined the faculty of the University of California in Irvine. Later, she joined the faculty at the University of New Mexico in Albuquerque. She also had a private practice in Santa Fe, N.M. In 1995, Dr. Nazario accepted a position as a consultant in endocrinology, focusing on hypertension, lipid and diabetes management, nutritional and weight management, and endocrine gland disorders. She also worked with many women suffering from reproductive endocrine issues such as polycystic ovary syndrome, hirsutism, basic infertility management, and menopausal management with special focus on osteoporosis. She was invited to be a consultant for the Therapeutic Options for Menopausal Health in 1999 and 2000 and the Council on Hormone Education in 2002. Recently, special interest in lipid disorders has led to her involvement in the s Hopkins University of Medicine Lipid Disorders Training Center Program. Dr. Nazario is board-certified in both internal medicine, and endocrinology and metabolism. She is also affiliated with numerous organizations including the American college of Physicians, The Endocrine Society, and the American Diabetes Association for Health Professionals. http://www.vrselfhelp.com/education/articles/general.asp http://my.webmd.com/content/article/83/97714.htm http://webcenter.health.webmd.netscape.com/content/article/61/67347.htm Chemicals Not Linked to Gulf War Illness No Evidence That Solvents, Insecticides Caused Veterans' Symptoms by Jeanie Lerche http://my.webmd.com/content/pages/8/3045_143 Since its inception, WebMD has sought sponsorships from trusted and credible research organizations, manufacturers, and other leaders dedicated to treating and managing your health. Although there is a commercial benefit for WebMD, sponsor information also benefits WebMD users by providing them with the most up-to-date information on medications, medical devices, health services, and therapies in the marketplace. ... Many times, third parties offer to provide funding for the creation of WebMD original Editorial content without having any influence over it. ... http://my.webmd.com/content/article/60/67018.htm The WebMD Editorial staff gets its stories from an array of sources: peer-reviewed medical journals, medical conferences, federal or state government actions, and enterprise material derived from interviews with medical experts. The majority of stories originate from studies published in peer-reviewed medical journals. WebMD also believes that valuable content is available from WebMD sponsors, advertisers, and partners, but that such content must be clearly labeled. Each completed story to be published is reviewed by a medical editor for accuracy, appropriateness of medical language, and proper characterization of the findings. The story is next reviewed by an Assistant Managing Editor who edits it for style, flow, punctuation, and readability. Finally, the story moves from editing to publishing, where it is converted to HTML and published to the site... On 7/7/04 2:15 PM, " ceda " ceda > wrote: > > Subject: Re: Double-Jointed? You May Have Less Arthritis > > ...! I may > try to write a letter to this doctor ... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 All my docs have said the same thing. Advances the chances of having more bone on bone with causes the inflammation. Keeping it in the socket is always the best! Re: Double-Jointed? You May Have Less Arthritis My EDS son's doctors, the genecticist, rheumy, and the osteo all told me not to allow hyperextension of his joints because that can cause arthritis in the future. I'm glad they are well informed at least about that. Now about the other stuff... ~Duv To learn more about EDS, visit our website: http://www.ehlersdanlos.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 You are right however NORMAL joints will show this on an x-ray. It is just about the only way to Dx save the symptoms of pain and clicking and swelling. That is why EDS is so silent especially as we age. Re: Double-Jointed? You May Have Less Arthritis I can't help but notice they seemed to base their results soley on X- rays. From what I've read on EDS, many times x-rays appear normal, even when damage is present (I know I've experienced this first-hand in more than one joint). I wonder how many of the people in the study had x-rays that showed no arthritis but still had pain, stiffness or other symptoms in their finger joints. Hmmm... > > Each volunteer's joints were examined and scored for the degree of > double-jointedness. X-rays of the finger joints determined the existence of > joint damage from osteoarthritis. > To learn more about EDS, visit our website: http://www.ehlersdanlos.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 You are right however NORMAL joints will show this on an x-ray. It is just about the only way to Dx save the symptoms of pain and clicking and swelling. That is why EDS is so silent especially as we age. Re: Double-Jointed? You May Have Less Arthritis I can't help but notice they seemed to base their results soley on X- rays. From what I've read on EDS, many times x-rays appear normal, even when damage is present (I know I've experienced this first-hand in more than one joint). I wonder how many of the people in the study had x-rays that showed no arthritis but still had pain, stiffness or other symptoms in their finger joints. Hmmm... > > Each volunteer's joints were examined and scored for the degree of > double-jointedness. X-rays of the finger joints determined the existence of > joint damage from osteoarthritis. > To learn more about EDS, visit our website: http://www.ehlersdanlos.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 You are right however NORMAL joints will show this on an x-ray. It is just about the only way to Dx save the symptoms of pain and clicking and swelling. That is why EDS is so silent especially as we age. Re: Double-Jointed? You May Have Less Arthritis I can't help but notice they seemed to base their results soley on X- rays. From what I've read on EDS, many times x-rays appear normal, even when damage is present (I know I've experienced this first-hand in more than one joint). I wonder how many of the people in the study had x-rays that showed no arthritis but still had pain, stiffness or other symptoms in their finger joints. Hmmm... > > Each volunteer's joints were examined and scored for the degree of > double-jointedness. X-rays of the finger joints determined the existence of > joint damage from osteoarthritis. > To learn more about EDS, visit our website: http://www.ehlersdanlos.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Remember Lana.. As much as we have had bad experiences with docs. The one thing they DO have in common is that they take what they read *and they do read a bunch* with a grain of salt. If they took what they read as gospel all the time there would be EVEN more confusion in the *practice* of medicine. In my years of teaching physicians the one common thread is that they questioned EVERYTHING and never let an article or two or study or three sway them. That is.. Of course.. If they were diligent and that is the ONLY kind of docs we want to be managing our EDS. Debbi Re: Double-Jointed? You May Have Less Arthritis God, I'm with ya Cindy!!! I am FUMING that articles like this are allowed to come out!! Why don't they go to 'THE' source - meaning EDSers and probably Marfans?!?!?!? It's crap like this that makes doctors THINK they know what they're reading/talking about! I may try to write a letter to this doctor - I am really pi - -ed off! Love Lana p.s. my hands hurt all the time, esp. my thumbs. > LOL!! What a laugh that is!!! > They should try talking to some of us....their results may end up a bit different. > > If this is accurate---I should have less arthritis...so guess I should be grateful I do have loose joints or it would be worse!!!! > Pray tell how it could be worse at 54..... I have arthritis in every joint that's been hypermobile. .That's a heck of alot of arthritic joints! > > Geez.....this ticks me off!!! And it keeps cropping up---just to give the dumb docs a chance to see it, and to go on thinking it's all in our heads..........grrrrrrrrrrrrrrrrrrrrrr > > (Now that I've blown off some steam over something that's been reported many times from many studies,my rant is over....BUT it sure felt good to " carry on " a bit today. ) > CindyH > Wisc. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Remember Lana.. As much as we have had bad experiences with docs. The one thing they DO have in common is that they take what they read *and they do read a bunch* with a grain of salt. If they took what they read as gospel all the time there would be EVEN more confusion in the *practice* of medicine. In my years of teaching physicians the one common thread is that they questioned EVERYTHING and never let an article or two or study or three sway them. That is.. Of course.. If they were diligent and that is the ONLY kind of docs we want to be managing our EDS. Debbi Re: Double-Jointed? You May Have Less Arthritis God, I'm with ya Cindy!!! I am FUMING that articles like this are allowed to come out!! Why don't they go to 'THE' source - meaning EDSers and probably Marfans?!?!?!? It's crap like this that makes doctors THINK they know what they're reading/talking about! I may try to write a letter to this doctor - I am really pi - -ed off! Love Lana p.s. my hands hurt all the time, esp. my thumbs. > LOL!! What a laugh that is!!! > They should try talking to some of us....their results may end up a bit different. > > If this is accurate---I should have less arthritis...so guess I should be grateful I do have loose joints or it would be worse!!!! > Pray tell how it could be worse at 54..... I have arthritis in every joint that's been hypermobile. .That's a heck of alot of arthritic joints! > > Geez.....this ticks me off!!! And it keeps cropping up---just to give the dumb docs a chance to see it, and to go on thinking it's all in our heads..........grrrrrrrrrrrrrrrrrrrrrr > > (Now that I've blown off some steam over something that's been reported many times from many studies,my rant is over....BUT it sure felt good to " carry on " a bit today. ) > CindyH > Wisc. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Well, Deb, that is true also. Whew, glad you pointed that out to me. It still makes me mad they don't try to find the real sufferers when doing this kind of a study. Love Lana 0:-) Re: Double-Jointed? You May Have Less Arthritis God, I'm with ya Cindy!!! I am FUMING that articles like this are allowed to come out!! Why don't they go to 'THE' source - meaning EDSers and probably Marfans?!?!?!? It's crap like this that makes doctors THINK they know what they're reading/talking about! I may try to write a letter to this doctor - I am really pi - -ed off! Love Lana p.s. my hands hurt all the time, esp. my thumbs. > LOL!! What a laugh that is!!! > They should try talking to some of us....their results may end up a bit different. > > If this is accurate---I should have less arthritis...so guess I should be grateful I do have loose joints or it would be worse!!!! > Pray tell how it could be worse at 54..... I have arthritis in every joint that's been hypermobile. .That's a heck of alot of arthritic joints! > > Geez.....this ticks me off!!! And it keeps cropping up---just to give the dumb docs a chance to see it, and to go on thinking it's all in our heads..........grrrrrrrrrrrrrrrrrrrrrr > > (Now that I've blown off some steam over something that's been reported many times from many studies,my rant is over....BUT it sure felt good to " carry on " a bit today. ) > CindyH > Wisc. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Well, Deb, that is true also. Whew, glad you pointed that out to me. It still makes me mad they don't try to find the real sufferers when doing this kind of a study. Love Lana 0:-) Re: Double-Jointed? You May Have Less Arthritis God, I'm with ya Cindy!!! I am FUMING that articles like this are allowed to come out!! Why don't they go to 'THE' source - meaning EDSers and probably Marfans?!?!?!? It's crap like this that makes doctors THINK they know what they're reading/talking about! I may try to write a letter to this doctor - I am really pi - -ed off! Love Lana p.s. my hands hurt all the time, esp. my thumbs. > LOL!! What a laugh that is!!! > They should try talking to some of us....their results may end up a bit different. > > If this is accurate---I should have less arthritis...so guess I should be grateful I do have loose joints or it would be worse!!!! > Pray tell how it could be worse at 54..... I have arthritis in every joint that's been hypermobile. .That's a heck of alot of arthritic joints! > > Geez.....this ticks me off!!! And it keeps cropping up---just to give the dumb docs a chance to see it, and to go on thinking it's all in our heads..........grrrrrrrrrrrrrrrrrrrrrr > > (Now that I've blown off some steam over something that's been reported many times from many studies,my rant is over....BUT it sure felt good to " carry on " a bit today. ) > CindyH > Wisc. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Thanks for all this information!! I've cooled down, but I still do want to write to them, just to point out a few things about 'us'. I appreciate it! Love Lana 0:-) Re: Double-Jointed? You May Have Less Arthritis > > ...! I may > try to write a letter to this doctor ... To learn more about EDS, visit our website: http://www.ehlersdanlos.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Thanks for all this information!! I've cooled down, but I still do want to write to them, just to point out a few things about 'us'. I appreciate it! Love Lana 0:-) Re: Double-Jointed? You May Have Less Arthritis > > ...! I may > try to write a letter to this doctor ... To learn more about EDS, visit our website: http://www.ehlersdanlos.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Yea I agree! Re: Double-Jointed? You May Have Less Arthritis God, I'm with ya Cindy!!! I am FUMING that articles like this are allowed to come out!! Why don't they go to 'THE' source - meaning EDSers and probably Marfans?!?!?!? It's crap like this that makes doctors THINK they know what they're reading/talking about! I may try to write a letter to this doctor - I am really pi - -ed off! Love Lana p.s. my hands hurt all the time, esp. my thumbs. > LOL!! What a laugh that is!!! > They should try talking to some of us....their results may end up a bit different. > > If this is accurate---I should have less arthritis...so guess I should be grateful I do have loose joints or it would be worse!!!! > Pray tell how it could be worse at 54..... I have arthritis in every joint that's been hypermobile. .That's a heck of alot of arthritic joints! > > Geez.....this ticks me off!!! And it keeps cropping up---just to give the dumb docs a chance to see it, and to go on thinking it's all in our heads..........grrrrrrrrrrrrrrrrrrrrrr > > (Now that I've blown off some steam over something that's been reported many times from many studies,my rant is over....BUT it sure felt good to " carry on " a bit today. ) > CindyH > Wisc. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Yea I agree! Re: Double-Jointed? You May Have Less Arthritis God, I'm with ya Cindy!!! I am FUMING that articles like this are allowed to come out!! Why don't they go to 'THE' source - meaning EDSers and probably Marfans?!?!?!? It's crap like this that makes doctors THINK they know what they're reading/talking about! I may try to write a letter to this doctor - I am really pi - -ed off! Love Lana p.s. my hands hurt all the time, esp. my thumbs. > LOL!! What a laugh that is!!! > They should try talking to some of us....their results may end up a bit different. > > If this is accurate---I should have less arthritis...so guess I should be grateful I do have loose joints or it would be worse!!!! > Pray tell how it could be worse at 54..... I have arthritis in every joint that's been hypermobile. .That's a heck of alot of arthritic joints! > > Geez.....this ticks me off!!! And it keeps cropping up---just to give the dumb docs a chance to see it, and to go on thinking it's all in our heads..........grrrrrrrrrrrrrrrrrrrrrr > > (Now that I've blown off some steam over something that's been reported many times from many studies,my rant is over....BUT it sure felt good to " carry on " a bit today. ) > CindyH > Wisc. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 7, 2004 Report Share Posted July 7, 2004 Yea I agree! Re: Double-Jointed? You May Have Less Arthritis God, I'm with ya Cindy!!! I am FUMING that articles like this are allowed to come out!! Why don't they go to 'THE' source - meaning EDSers and probably Marfans?!?!?!? It's crap like this that makes doctors THINK they know what they're reading/talking about! I may try to write a letter to this doctor - I am really pi - -ed off! Love Lana p.s. my hands hurt all the time, esp. my thumbs. > LOL!! What a laugh that is!!! > They should try talking to some of us....their results may end up a bit different. > > If this is accurate---I should have less arthritis...so guess I should be grateful I do have loose joints or it would be worse!!!! > Pray tell how it could be worse at 54..... I have arthritis in every joint that's been hypermobile. .That's a heck of alot of arthritic joints! > > Geez.....this ticks me off!!! And it keeps cropping up---just to give the dumb docs a chance to see it, and to go on thinking it's all in our heads..........grrrrrrrrrrrrrrrrrrrrrr > > (Now that I've blown off some steam over something that's been reported many times from many studies,my rant is over....BUT it sure felt good to " carry on " a bit today. ) > CindyH > Wisc. > > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.