Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Becky, take a look at post #28590. It might help answer some of your questions. > Hi > > I have a CHD of both hips, but only my right is painful. I was > wondering if anyone has chosen to have resurfacing over an osteotomy > for a dysplasic hip? I'm worried that because the socket it smaller > than normal this might cause a problem if I had resurfacing. Also, > I'm only 26 and concerned of the life of a resurface. But then, > noone can actually answer that since it's been less than ~10yrs > since the first was ever done. Being a scientist too, I understand > the need for expts, but do I wanna be one of them??! I was part of > an expt as a child that got me into this mess - they decided not to > put me into a cast as a baby thinking the joint might grow as i > started to crawl. No-ones fault, no-ones fault....time to deal with > it now. > > Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Becky, take a look at post #28590. It might help answer some of your questions. > Hi > > I have a CHD of both hips, but only my right is painful. I was > wondering if anyone has chosen to have resurfacing over an osteotomy > for a dysplasic hip? I'm worried that because the socket it smaller > than normal this might cause a problem if I had resurfacing. Also, > I'm only 26 and concerned of the life of a resurface. But then, > noone can actually answer that since it's been less than ~10yrs > since the first was ever done. Being a scientist too, I understand > the need for expts, but do I wanna be one of them??! I was part of > an expt as a child that got me into this mess - they decided not to > put me into a cast as a baby thinking the joint might grow as i > started to crawl. No-ones fault, no-ones fault....time to deal with > it now. > > Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Hiya Becky I'm 23 and developed OA in my right hip as the result of CHD and was resurfaced on the 1st June. I'm very glad I had it done, I'm totally happy with the result! I suppose it depends how much pain you are in at the moment - I was in a LOT! But if you're considering having it done don't leave it too late or you might miss your window of opportunity. I know that my operation was more complex for the surgeon as I was at a very late stage of OA and also because my socket was smaller due to CHD - but so far so good! Of course I worry too about the life of the resurface. If mine fails I'll have to have a difficult operation to remove the screws that have been in my femur since I was six months old and then wait at least two years to recover before I could ever consider a hip replacement. However my arthritis was affecting every aspect of my life as I was in so much constant pain. Since 1 week post op I have been in no pain at all so for me the risk has been totally worth it - even if it does fail (touch wood). No matter what, unless you are unlucky, a resurfacing is likely to last you longer than a replacement would, and still leave you with a good bone stock so that a replacement could be performed in the future. I may be corrected on this by others in this group who know a lot more that me, but I don't think hip resurfacing is really considered 'experimental' any more. In fact I think I've heard on this site that in Austrailia it might be becoming the standard operation to fix OA in the hips of all middle aged/young people. I know how annoying it is when the medical profession messes things up for you! I was misdiagnosed for years and as a result when I was finally diagnosed it was far too late to save my own hip. - It was almost too late to have a resurfacing! ANd in fact someone I saw privately was treating me in a way that I'm SURE made my situation much worse. But docs can't get it right all the time and there's no point dwelling on it - there's nothing to be done now apart from rectify the situation by the best means possible. Which, by having a hip resurfacing, I feel I have done!! Cheers Morag Right BHR 1st June 04 Treacy > > I have a CHD of both hips, but only my right is painful. I was > wondering if anyone has chosen to have resurfacing over an osteotomy > for a dysplasic hip? I'm worried that because the socket it smaller > than normal this might cause a problem if I had resurfacing. Also, > I'm only 26 and concerned of the life of a resurface. But then, > noone can actually answer that since it's been less than ~10yrs > since the first was ever done. Being a scientist too, I understand > the need for expts, but do I wanna be one of them??! I was part of > an expt as a child that got me into this mess - they decided not to > put me into a cast as a baby thinking the joint might grow as i > started to crawl. No-ones fault, no-ones fault....time to deal with > it now. > > Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Hiya Becky I'm 23 and developed OA in my right hip as the result of CHD and was resurfaced on the 1st June. I'm very glad I had it done, I'm totally happy with the result! I suppose it depends how much pain you are in at the moment - I was in a LOT! But if you're considering having it done don't leave it too late or you might miss your window of opportunity. I know that my operation was more complex for the surgeon as I was at a very late stage of OA and also because my socket was smaller due to CHD - but so far so good! Of course I worry too about the life of the resurface. If mine fails I'll have to have a difficult operation to remove the screws that have been in my femur since I was six months old and then wait at least two years to recover before I could ever consider a hip replacement. However my arthritis was affecting every aspect of my life as I was in so much constant pain. Since 1 week post op I have been in no pain at all so for me the risk has been totally worth it - even if it does fail (touch wood). No matter what, unless you are unlucky, a resurfacing is likely to last you longer than a replacement would, and still leave you with a good bone stock so that a replacement could be performed in the future. I may be corrected on this by others in this group who know a lot more that me, but I don't think hip resurfacing is really considered 'experimental' any more. In fact I think I've heard on this site that in Austrailia it might be becoming the standard operation to fix OA in the hips of all middle aged/young people. I know how annoying it is when the medical profession messes things up for you! I was misdiagnosed for years and as a result when I was finally diagnosed it was far too late to save my own hip. - It was almost too late to have a resurfacing! ANd in fact someone I saw privately was treating me in a way that I'm SURE made my situation much worse. But docs can't get it right all the time and there's no point dwelling on it - there's nothing to be done now apart from rectify the situation by the best means possible. Which, by having a hip resurfacing, I feel I have done!! Cheers Morag Right BHR 1st June 04 Treacy > > I have a CHD of both hips, but only my right is painful. I was > wondering if anyone has chosen to have resurfacing over an osteotomy > for a dysplasic hip? I'm worried that because the socket it smaller > than normal this might cause a problem if I had resurfacing. Also, > I'm only 26 and concerned of the life of a resurface. But then, > noone can actually answer that since it's been less than ~10yrs > since the first was ever done. Being a scientist too, I understand > the need for expts, but do I wanna be one of them??! I was part of > an expt as a child that got me into this mess - they decided not to > put me into a cast as a baby thinking the joint might grow as i > started to crawl. No-ones fault, no-ones fault....time to deal with > it now. > > Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Hi, Becky. I had CHD in both hips and was treated for it as a child in the late 1950's, in the Children's Hospital in Boston (Mass.). A lot of surgery, and that famous cast, ensured that I lived perfectly normally until the age of 46. Which is pretty good going (and my other hip is still fine). In my 46th year my left hip started seizing up and deteriorated at an incredible rate: there was only one year between learning that my stiffness was caused by osteoarthritis till the surgery itself, and by that stage I was longing for the knife due to the constant pain. De Smet (Gent) didn't envisage any particular problem and did my resurfacing in September of 2003. He has done a number of patients with less than perfect sockets and it shows. I'm delighted with the result for a number of reasons: the joy of being released from pain as of day one, walking without a limp (I'd developed a huge limp over that last year) and, last but not least, he really improved on that scar which I had on that hip for the past 44 years, tidied it up nicely and the new scar is a lot less obvious than the old one was! Colette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Hi, Becky. I had CHD in both hips and was treated for it as a child in the late 1950's, in the Children's Hospital in Boston (Mass.). A lot of surgery, and that famous cast, ensured that I lived perfectly normally until the age of 46. Which is pretty good going (and my other hip is still fine). In my 46th year my left hip started seizing up and deteriorated at an incredible rate: there was only one year between learning that my stiffness was caused by osteoarthritis till the surgery itself, and by that stage I was longing for the knife due to the constant pain. De Smet (Gent) didn't envisage any particular problem and did my resurfacing in September of 2003. He has done a number of patients with less than perfect sockets and it shows. I'm delighted with the result for a number of reasons: the joy of being released from pain as of day one, walking without a limp (I'd developed a huge limp over that last year) and, last but not least, he really improved on that scar which I had on that hip for the past 44 years, tidied it up nicely and the new scar is a lot less obvious than the old one was! Colette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Hi Colette, I'm glad your pain has gone now with the resurfacing. I feel stuck between a rock and a hard place at the moment having to make a decision between a PAO or resurfacing, my OS says I'm eligible for both but I need to go for a CT scan soon to assess further. I don't want to 'miss my window of opportunity' as it were. The cartilage in my right hip is in pretty good nick (which makes me wonder where on earth the pain comes from) but I do have a cyst on the bone and I guess in some people the degenerative changes can occur very very rapidly, as it seems to have with yourself? I'm worried if that happens to me and I miss my opportunity. I limp with the dysplasia, which was noticeable since I was very small, my hips sort of 'swing' oddly at I walk and I'm very self conscious of this. The pain has become more severe over the last 4 yrs, it jars a lot and I've been back to the physio a lot to stop crepitace (clicking as you walk). How aware of the new joint are you? Odd question, is it heavy? Ooooh, I just need to take a chill pill!! Need to relax, little scared by all this, but information is better than no information. BTW - I'm from Scotland, but Boston has always been my favourite city that I'd love to relocate too, a lot of my friends live there. Once I get my hip 'fixed'! Take care of you, Becky > Hi, Becky. > I had CHD in both hips and was treated for it as a child in the late > 1950's, in the Children's Hospital in Boston (Mass.). A lot of > surgery, and that famous cast, ensured that I lived perfectly > normally until the age of 46. Which is pretty good going (and my > other hip is still fine). > > In my 46th year my left hip started seizing up and deteriorated at > an incredible rate: there was only one year between learning that my > stiffness was caused by osteoarthritis till the surgery itself, and > by that stage I was longing for the knife due to the constant pain. > > De Smet (Gent) didn't envisage any particular problem and did my > resurfacing in September of 2003. He has done a number of patients > with less than perfect sockets and it shows. I'm delighted with > the result for a number of reasons: the joy of being released from > pain as of day one, walking without a limp (I'd developed a huge > limp over that last year) and, last but not least, he really > improved on that scar which I had on that hip for the past 44 years, > tidied it up nicely and the new scar is a lot less obvious than the > old one was! > > Colette Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 > Hi > > I have a CHD of both hips, but only my right is painful. I was > wondering if anyone has chosen to have resurfacing over an osteotomy > for a dysplasic hip? I'm worried that because the socket it smaller > than normal this might cause a problem if I had resurfacing. Also, > I'm only 26 and concerned of the life of a resurface. But then, > noone can actually answer that since it's been less than ~10yrs > since the first was ever done. Being a scientist too, I understand > the need for expts, but do I wanna be one of them??! I was part of > an expt as a child that got me into this mess - they decided not to > put me into a cast as a baby thinking the joint might grow as i > started to crawl. No-ones fault, no-ones fault....time to deal with > it now. > > Becky Dear Becky, I was born with hip dysplasia in my left hip and put in body casts as an infant. All was well until my twenties, when I started having pain. After it became severe, I had a double osteotomy. Although it was a difficult operation and long recovery, it allowed me to keep all my " parts " and gave me complete freedom to enjoy life completely. Now that I am in my fifties, I am once again in pain and facing surgery. Dr. De Smet says he can do a resurfacing in spite of my unusual hip, so I am going to Belgium in September! If you are thinking about an osteotomy, feel free to talk to me about it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 > Hi > > I have a CHD of both hips, but only my right is painful. I was > wondering if anyone has chosen to have resurfacing over an osteotomy > for a dysplasic hip? I'm worried that because the socket it smaller > than normal this might cause a problem if I had resurfacing. Also, > I'm only 26 and concerned of the life of a resurface. But then, > noone can actually answer that since it's been less than ~10yrs > since the first was ever done. Being a scientist too, I understand > the need for expts, but do I wanna be one of them??! I was part of > an expt as a child that got me into this mess - they decided not to > put me into a cast as a baby thinking the joint might grow as i > started to crawl. No-ones fault, no-ones fault....time to deal with > it now. > > Becky Dear Becky, I was born with hip dysplasia in my left hip and put in body casts as an infant. All was well until my twenties, when I started having pain. After it became severe, I had a double osteotomy. Although it was a difficult operation and long recovery, it allowed me to keep all my " parts " and gave me complete freedom to enjoy life completely. Now that I am in my fifties, I am once again in pain and facing surgery. Dr. De Smet says he can do a resurfacing in spite of my unusual hip, so I am going to Belgium in September! If you are thinking about an osteotomy, feel free to talk to me about it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 Hi , I find it interesting to hear that although you were in a cast as a child the pain still crept up on you in your twenties. I say this because for many years I blamed the doctors for using me as a guinea- pig when I was a child, saying 'we'll not put her in a cast as the bone may grow more when she starts to crawl'....it didn't happen, and most of my pain accelerated from the age of 20, I'm 26 now. But I learned a long time ago that sometimes this doesn't happen so.... At the moment I'm having to make a decision between a PAO and resurf of my right hip. According to my OS I'm a candidate for both. To me, the recovery from PAO is off-putting, whilst the uncertainly of resurf lifespan is off-putting. On the PAO side, there is that time window that I'm afraid of missing. My cartilage is in decent nick as it were. Do you feel that having the osteotomies has affected your range of motion at all? I know that it will take a long time to regain all of those motions, I'm just scared that I'd never be able to 'kiss my knees' anymore! I've heard that resurfing is better than replacement because you get greater movement ability than say with the replacement as there's a risk of dislocation. I should also put into perspective that right now I'm tryign to finish my phd, which combined with this, I'm very stressed out, not sleeping well. I'm finding it very hard to come to the right decision, if there is one. It may be possible that having either of these surgeries will do me as well as the other, its just the uncertainty I have to deal with. I do wonder how many young people are presented with PAO or resurf now? oh, dear I do babble on! I have to say that its comforting to know that resurf is possible after you've had a PAO, thankyou for telling me. Take care, best wishes Becky :-) > > Hi > > > > I have a CHD of both hips, but only my right is painful. I was > > wondering if anyone has chosen to have resurfacing over an osteotomy > > for a dysplasic hip? I'm worried that because the socket it smaller > > than normal this might cause a problem if I had resurfacing. Also, > > I'm only 26 and concerned of the life of a resurface. But then, > > noone can actually answer that since it's been less than ~10yrs > > since the first was ever done. Being a scientist too, I understand > > the need for expts, but do I wanna be one of them??! I was part of > > an expt as a child that got me into this mess - they decided not to > > put me into a cast as a baby thinking the joint might grow as i > > started to crawl. No-ones fault, no-ones fault....time to deal with > > it now. > > > > Becky > > Dear Becky, > I was born with hip dysplasia in my left hip and put in body casts as > an infant. All was well until my twenties, when I started having pain. > After it became severe, I had a double osteotomy. Although it was a > difficult operation and long recovery, it allowed me to keep all my > " parts " and gave me complete freedom to enjoy life completely. > > Now that I am in my fifties, I am once again in pain and facing > surgery. Dr. De Smet says he can do a resurfacing in spite of my > unusual hip, so I am going to Belgium in September! > > If you are thinking about an osteotomy, feel free to talk to me about > it. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 Hi , I find it interesting to hear that although you were in a cast as a child the pain still crept up on you in your twenties. I say this because for many years I blamed the doctors for using me as a guinea- pig when I was a child, saying 'we'll not put her in a cast as the bone may grow more when she starts to crawl'....it didn't happen, and most of my pain accelerated from the age of 20, I'm 26 now. But I learned a long time ago that sometimes this doesn't happen so.... At the moment I'm having to make a decision between a PAO and resurf of my right hip. According to my OS I'm a candidate for both. To me, the recovery from PAO is off-putting, whilst the uncertainly of resurf lifespan is off-putting. On the PAO side, there is that time window that I'm afraid of missing. My cartilage is in decent nick as it were. Do you feel that having the osteotomies has affected your range of motion at all? I know that it will take a long time to regain all of those motions, I'm just scared that I'd never be able to 'kiss my knees' anymore! I've heard that resurfing is better than replacement because you get greater movement ability than say with the replacement as there's a risk of dislocation. I should also put into perspective that right now I'm tryign to finish my phd, which combined with this, I'm very stressed out, not sleeping well. I'm finding it very hard to come to the right decision, if there is one. It may be possible that having either of these surgeries will do me as well as the other, its just the uncertainty I have to deal with. I do wonder how many young people are presented with PAO or resurf now? oh, dear I do babble on! I have to say that its comforting to know that resurf is possible after you've had a PAO, thankyou for telling me. Take care, best wishes Becky :-) > > Hi > > > > I have a CHD of both hips, but only my right is painful. I was > > wondering if anyone has chosen to have resurfacing over an osteotomy > > for a dysplasic hip? I'm worried that because the socket it smaller > > than normal this might cause a problem if I had resurfacing. Also, > > I'm only 26 and concerned of the life of a resurface. But then, > > noone can actually answer that since it's been less than ~10yrs > > since the first was ever done. Being a scientist too, I understand > > the need for expts, but do I wanna be one of them??! I was part of > > an expt as a child that got me into this mess - they decided not to > > put me into a cast as a baby thinking the joint might grow as i > > started to crawl. No-ones fault, no-ones fault....time to deal with > > it now. > > > > Becky > > Dear Becky, > I was born with hip dysplasia in my left hip and put in body casts as > an infant. All was well until my twenties, when I started having pain. > After it became severe, I had a double osteotomy. Although it was a > difficult operation and long recovery, it allowed me to keep all my > " parts " and gave me complete freedom to enjoy life completely. > > Now that I am in my fifties, I am once again in pain and facing > surgery. Dr. De Smet says he can do a resurfacing in spite of my > unusual hip, so I am going to Belgium in September! > > If you are thinking about an osteotomy, feel free to talk to me about > it. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 Hi Becky and I am 28 and still hoping to have a resurfacing soon. I had a CDH and did lots of damage. I was just wondering what PAO is and whether it is a better option than a resurfacing? I am so confused by all of this Cheers in advance Liney ___________________________________________________________ALL-NEW Yahoo! Messenger - sooooo many all-new ways to express yourself http://uk.messenger.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 Hi Becky and I am 28 and still hoping to have a resurfacing soon. I had a CDH and did lots of damage. I was just wondering what PAO is and whether it is a better option than a resurfacing? I am so confused by all of this Cheers in advance Liney ___________________________________________________________ALL-NEW Yahoo! Messenger - sooooo many all-new ways to express yourself http://uk.messenger.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 Hi Liney, I am in exactly the position at the moment. It's only been a week since I was told that I do need this surgery now (I've had consultations in the past). Like you am also confused and have spent most of the past week on this website and others (hipwomen on yahoo and hipuniverse on msn groups are also very very helpful). A PAO or periacetabular osteotomy is a recognised treatment for CHD's. It involves cutting the pelvis around the socket (acetabulum) and realigning the socket over the ball head of the femur. If you type in periacetaular osteotomy into a search engine you'll get loads of info. It's designed to preserve the bone that we have so an artificial option can be administered at a later date when need be. From what I've read so far, that can be anywhere between 8-20yrs. But I do think that there is a small window of opportunity with this treatment, I think that there has to be as little degenerative change as possible? I think it would be worth mentioning it to your OS and they can tell you if it's a viable option. I was told that I'm a candidate for both which has confused me and I would really love to meet someone else who has been offered both and what they opted for. I am very scared but all this, which is natural, and being given the freedom of choice without being dictated to by any one doctor has helped - because I'm more receptive to the doctor and I trust him more as I feel he's not hiding anything. Doesn't make it any easier to choose!! I'm glad to have met someone else at the point where I am! I think you definately need to read lots on this site and others. The hipwomen site on yahoo is for women with chd and there's lots of info on PAO. Below is a link to a pdf file that talks of the options for young adults with hip pain, you might have to copy and paste it www.jri-oh.com/pdf/Dr_Beaule_article_new.pdf Let me know how your getting on, never be afraid to ask questions of anyone....its your hip and your life! Take care the now, Becky ) > Hi Becky and > > I am 28 and still hoping to have a resurfacing soon. > I had a CDH and did lots of damage. I was just > wondering what PAO is and whether it is a better > option than a resurfacing? I am so confused by all of > this > > Cheers in advance > Liney > > > > > > > > ___________________________________________________________ALL-NEW Yahoo! Messenger - sooooo many all-new ways to express yourself http://uk.messenger.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2004 Report Share Posted July 10, 2004 Hi Liney, I am in exactly the position at the moment. It's only been a week since I was told that I do need this surgery now (I've had consultations in the past). Like you am also confused and have spent most of the past week on this website and others (hipwomen on yahoo and hipuniverse on msn groups are also very very helpful). A PAO or periacetabular osteotomy is a recognised treatment for CHD's. It involves cutting the pelvis around the socket (acetabulum) and realigning the socket over the ball head of the femur. If you type in periacetaular osteotomy into a search engine you'll get loads of info. It's designed to preserve the bone that we have so an artificial option can be administered at a later date when need be. From what I've read so far, that can be anywhere between 8-20yrs. But I do think that there is a small window of opportunity with this treatment, I think that there has to be as little degenerative change as possible? I think it would be worth mentioning it to your OS and they can tell you if it's a viable option. I was told that I'm a candidate for both which has confused me and I would really love to meet someone else who has been offered both and what they opted for. I am very scared but all this, which is natural, and being given the freedom of choice without being dictated to by any one doctor has helped - because I'm more receptive to the doctor and I trust him more as I feel he's not hiding anything. Doesn't make it any easier to choose!! I'm glad to have met someone else at the point where I am! I think you definately need to read lots on this site and others. The hipwomen site on yahoo is for women with chd and there's lots of info on PAO. Below is a link to a pdf file that talks of the options for young adults with hip pain, you might have to copy and paste it www.jri-oh.com/pdf/Dr_Beaule_article_new.pdf Let me know how your getting on, never be afraid to ask questions of anyone....its your hip and your life! Take care the now, Becky ) > Hi Becky and > > I am 28 and still hoping to have a resurfacing soon. > I had a CDH and did lots of damage. I was just > wondering what PAO is and whether it is a better > option than a resurfacing? I am so confused by all of > this > > Cheers in advance > Liney > > > > > > > > ___________________________________________________________ALL-NEW Yahoo! Messenger - sooooo many all-new ways to express yourself http://uk.messenger.yahoo.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2004 Report Share Posted July 11, 2004 Hi Morag I'm 25 and also had CDH in my right hip. I have a hip resurfacing op coming up on 21 July and I'm quite nervous. Your message has given me a lot of reassurance not only in that everything worked out for you but also, that you are young too. It will be so nice to be pain free! I have a couple of questions which I hope you will answer for me. Was it difficult to remember and abide by all the dos and donts during recovery. E.g don't twist or lean forward past 90 degrees to legs, don't cross legs, don't let operated leg pass the mid line etc! I'm worried that I will forget. How did you find using a bath board, raised chair etc? When did you return to work? Sorry for so many questions but it is such a relief to hear of someone in the same position! Jacqui > Hiya Becky > > I'm 23 and developed OA in my right hip as the result of CHD and was > resurfaced on the 1st June. > > I'm very glad I had it done, I'm totally happy with the result! I > suppose it depends how much pain you are in at the moment - I was in > a LOT! But if you're considering having it done don't leave it too > late or you might miss your window of opportunity. > > I know that my operation was more complex for the surgeon as I was > at a very late stage of OA and also because my socket was smaller > due to CHD - but so far so good! > > Of course I worry too about the life of the resurface. If mine fails > I'll have to have a difficult operation to remove the screws that > have been in my femur since I was six months old and then wait at > least two years to recover before I could ever consider a hip > replacement. However my arthritis was affecting every aspect of my > life as I was in so much constant pain. Since 1 week post op I have > been in no pain at all so for me the risk has been totally worth it - > even if it does fail (touch wood). No matter what, unless you are > unlucky, a resurfacing is likely to last you longer than a > replacement would, and still leave you with a good bone stock so > that a replacement could be performed in the future. > > I may be corrected on this by others in this group who know a lot > more that me, but I don't think hip resurfacing is really > considered 'experimental' any more. In fact I think I've heard on > this site that in Austrailia it might be becoming the standard > operation to fix OA in the hips of all middle aged/young people. > > I know how annoying it is when the medical profession messes things > up for you! I was misdiagnosed for years and as a result when I was > finally diagnosed it was far too late to save my own hip. - It was > almost too late to have a resurfacing! ANd in fact someone I saw > privately was treating me in a way that I'm SURE made my situation > much worse. > > But docs can't get it right all the time and there's no point > dwelling on it - there's nothing to be done now apart from rectify > the situation by the best means possible. Which, by having a hip > resurfacing, I feel I have done!! > > Cheers > > Morag > > Right BHR 1st June 04 Treacy > > > > I have a CHD of both hips, but only my right is painful. I was > > wondering if anyone has chosen to have resurfacing over an > osteotomy > > for a dysplasic hip? I'm worried that because the socket it > smaller > > than normal this might cause a problem if I had resurfacing. Also, > > I'm only 26 and concerned of the life of a resurface. But then, > > noone can actually answer that since it's been less than ~10yrs > > since the first was ever done. Being a scientist too, I understand > > the need for expts, but do I wanna be one of them??! I was part of > > an expt as a child that got me into this mess - they decided not > to > > put me into a cast as a baby thinking the joint might grow as i > > started to crawl. No-ones fault, no-ones fault....time to deal > with > > it now. > > > > Becky Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2004 Report Share Posted July 11, 2004 Hi Becky, I will start by saying I am no expert.............so this is an opinion from one who has had a few hip hassles......... As some else said it is thought best to hold onto your natural stuff as long as possible with the proviso that 1. Your natural stuff isn't causing big time damage in other directions........... which generally it does for the over 40's and can involve ending up with arthritis all through the spine........... which isn't too easily fixed either at this point and very painful. 2. You have something worth preserving...........meaning there is still viable cartilage on the femoral head plus acumbulum area..... Again with most there isn't and cartilage doesn't have a direct blood supply and simply doesn't grow back once damaged beyond a certain point. This is what scientists are madly wanting stem cell research to play with trying to sort out........... 3. You understand completely what they are meaning to do with the hip meantime and what that is going to mean in terms of maintaining your physical fitness etc. i.e. as I understand what you are saying about the operation they will be moving the acumbulum cup area.......... now unless they plan to put a metal cup in there you will be then left with your femoral head cartilage rubbing up against what will be then bone - as it will not be possible for them to put smooth cartilage in all the top area.......... this is the bit you need to get them to tell you very very clearly...........just what will that femoral head be rubbing against.......... And this is my guess about how you will get either 8 years or 38 years out of it........... bone isn't smooth and it will wear that femoral head cartilage away in due course. So if you can get all the muscles around your hip area working very well you can get a nice little gap happening in there and keep the femoral head off directly hitting the top area bone...........thus prolong the life of the femoral head..........(frankly I don't understand why they don't put a metal or plastic cup in there - a question worth asking your surgeon.) If your situation doesn't look too bad in terms of above and if you can get a reasonably working set of muscles etc and are prepared to keep them that way, my opinion would be wait......... 8 to 10 years down the track your body still will not be that old and the scientists may have pulled off some tricks......... I had my hip fused at 18............ and it remained that way for 35 years......... in the last 10 the situation did dreadful damage to my body.......... and no surgeon would do anything citing the osteomylitis history, no muscles left etc......... with fusion one cannot exercise the muscles so they just shrink and disappear......... But science caught up with the problem and I have a resurface which, in my situation, made much more sense than a THR.........less bone interference and better dislocation rates. So in a sense I was glad I hadn't been able to have a THR........as it could have been quite messy for little gain. my surgeon had only been putting BHR's in fused hips for 2 yrs so when I found out I hadn't miss all that much.............and got a far better solution for me...... But as I said at the top all this is my 6c worth........and don't forget you can seek several doctors opinions. Edith LBHR Dr. L Walter Syd Aust 8/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Hi Thankyou for your advice! All is taken aboard and thought about. In particular the cartilage issue. From very recent x-rays i've been informed that the cartilage is in good nick. I do have one query from what you said - there is cartilage lining both the socket and the femur head, I don't think they remove that cartilage in the socket, they just move the acetabulum. I will make sure I have that confirmed with the OS though, thanks again! I know this sounds terrible, but I'd rather surrender my mobility at the 'other end' of my life, to be able to have my youth back now. Carpe diem! I am, myself, a scientist, and trust that by the time I need a replacement there will be better options - look what appeared in the last 10 with resurfacing!! Good luck! Becky > Hi Becky, > > I will start by saying I am no expert.............so this is an opinion from > one who has had a few hip hassles......... > > As some else said it is thought best to hold onto your natural stuff as long > as possible with the proviso that > > 1. Your natural stuff isn't causing big time damage in other > directions........... which generally it does for the over 40's and can > involve ending up with arthritis all through the spine........... which > isn't too easily fixed either at this point and very painful. > > 2. You have something worth preserving...........meaning there is still > viable cartilage on the femoral head plus acumbulum area..... Again with > most there isn't and cartilage doesn't have a direct blood supply and simply > doesn't grow back once damaged beyond a certain point. This is what > scientists are madly wanting stem cell research to play with trying to sort > out........... > > 3. You understand completely what they are meaning to do with the hip > meantime and what that is going to mean in terms of maintaining your > physical fitness etc. i.e. as I understand what you are saying about the > operation they will be moving the acumbulum cup area.......... now unless > they plan to put a metal cup in there you will be then left with your > femoral head cartilage rubbing up against what will be then bone - as it > will not be possible for them to put smooth cartilage in all the top > area.......... this is the bit you need to get them to tell you very very > clearly...........just what will that femoral head be rubbing > against.......... > > And this is my guess about how you will get either 8 years or 38 years out > of it........... bone isn't smooth and it will wear that femoral head > cartilage away in due course. So if you can get all the muscles around your > hip area working very well you can get a nice little gap happening in there > and keep the femoral head off directly hitting the top area > bone...........thus prolong the life of the femoral head.......... (frankly I > don't understand why they don't put a metal or plastic cup in there - a > question worth asking your surgeon.) > > If your situation doesn't look too bad in terms of above and if you can get > a reasonably working set of muscles etc and are prepared to keep them that > way, my opinion would be wait......... 8 to 10 years down the track your > body still will not be that old and the scientists may have pulled off some > tricks......... > > I had my hip fused at 18............ and it remained that way for 35 > years......... in the last 10 the situation did dreadful damage to my > body.......... and no surgeon would do anything citing the osteomylitis > history, no muscles left etc......... with fusion one cannot exercise the > muscles so they just shrink and disappear......... But science caught up > with the problem and I have a resurface which, in my situation, made much > more sense than a THR.........less bone interference and better dislocation > rates. So in a sense I was glad I hadn't been able to have a THR........as > it could have been quite messy for little gain. my surgeon had only been > putting BHR's in fused hips for 2 yrs so when I found out I hadn't miss all > that much.............and got a far better solution for me...... > > But as I said at the top all this is my 6c worth........and don't forget you > can seek several doctors opinions. > > Edith LBHR Dr. L Walter Syd Aust 8/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Hi Thankyou for your advice! All is taken aboard and thought about. In particular the cartilage issue. From very recent x-rays i've been informed that the cartilage is in good nick. I do have one query from what you said - there is cartilage lining both the socket and the femur head, I don't think they remove that cartilage in the socket, they just move the acetabulum. I will make sure I have that confirmed with the OS though, thanks again! I know this sounds terrible, but I'd rather surrender my mobility at the 'other end' of my life, to be able to have my youth back now. Carpe diem! I am, myself, a scientist, and trust that by the time I need a replacement there will be better options - look what appeared in the last 10 with resurfacing!! Good luck! Becky > Hi Becky, > > I will start by saying I am no expert.............so this is an opinion from > one who has had a few hip hassles......... > > As some else said it is thought best to hold onto your natural stuff as long > as possible with the proviso that > > 1. Your natural stuff isn't causing big time damage in other > directions........... which generally it does for the over 40's and can > involve ending up with arthritis all through the spine........... which > isn't too easily fixed either at this point and very painful. > > 2. You have something worth preserving...........meaning there is still > viable cartilage on the femoral head plus acumbulum area..... Again with > most there isn't and cartilage doesn't have a direct blood supply and simply > doesn't grow back once damaged beyond a certain point. This is what > scientists are madly wanting stem cell research to play with trying to sort > out........... > > 3. You understand completely what they are meaning to do with the hip > meantime and what that is going to mean in terms of maintaining your > physical fitness etc. i.e. as I understand what you are saying about the > operation they will be moving the acumbulum cup area.......... now unless > they plan to put a metal cup in there you will be then left with your > femoral head cartilage rubbing up against what will be then bone - as it > will not be possible for them to put smooth cartilage in all the top > area.......... this is the bit you need to get them to tell you very very > clearly...........just what will that femoral head be rubbing > against.......... > > And this is my guess about how you will get either 8 years or 38 years out > of it........... bone isn't smooth and it will wear that femoral head > cartilage away in due course. So if you can get all the muscles around your > hip area working very well you can get a nice little gap happening in there > and keep the femoral head off directly hitting the top area > bone...........thus prolong the life of the femoral head.......... (frankly I > don't understand why they don't put a metal or plastic cup in there - a > question worth asking your surgeon.) > > If your situation doesn't look too bad in terms of above and if you can get > a reasonably working set of muscles etc and are prepared to keep them that > way, my opinion would be wait......... 8 to 10 years down the track your > body still will not be that old and the scientists may have pulled off some > tricks......... > > I had my hip fused at 18............ and it remained that way for 35 > years......... in the last 10 the situation did dreadful damage to my > body.......... and no surgeon would do anything citing the osteomylitis > history, no muscles left etc......... with fusion one cannot exercise the > muscles so they just shrink and disappear......... But science caught up > with the problem and I have a resurface which, in my situation, made much > more sense than a THR.........less bone interference and better dislocation > rates. So in a sense I was glad I hadn't been able to have a THR........as > it could have been quite messy for little gain. my surgeon had only been > putting BHR's in fused hips for 2 yrs so when I found out I hadn't miss all > that much.............and got a far better solution for me...... > > But as I said at the top all this is my 6c worth........and don't forget you > can seek several doctors opinions. > > Edith LBHR Dr. L Walter Syd Aust 8/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2004 Report Share Posted July 12, 2004 Hi Thankyou for your advice! All is taken aboard and thought about. In particular the cartilage issue. From very recent x-rays i've been informed that the cartilage is in good nick. I do have one query from what you said - there is cartilage lining both the socket and the femur head, I don't think they remove that cartilage in the socket, they just move the acetabulum. I will make sure I have that confirmed with the OS though, thanks again! I know this sounds terrible, but I'd rather surrender my mobility at the 'other end' of my life, to be able to have my youth back now. Carpe diem! I am, myself, a scientist, and trust that by the time I need a replacement there will be better options - look what appeared in the last 10 with resurfacing!! Good luck! Becky > Hi Becky, > > I will start by saying I am no expert.............so this is an opinion from > one who has had a few hip hassles......... > > As some else said it is thought best to hold onto your natural stuff as long > as possible with the proviso that > > 1. Your natural stuff isn't causing big time damage in other > directions........... which generally it does for the over 40's and can > involve ending up with arthritis all through the spine........... which > isn't too easily fixed either at this point and very painful. > > 2. You have something worth preserving...........meaning there is still > viable cartilage on the femoral head plus acumbulum area..... Again with > most there isn't and cartilage doesn't have a direct blood supply and simply > doesn't grow back once damaged beyond a certain point. This is what > scientists are madly wanting stem cell research to play with trying to sort > out........... > > 3. You understand completely what they are meaning to do with the hip > meantime and what that is going to mean in terms of maintaining your > physical fitness etc. i.e. as I understand what you are saying about the > operation they will be moving the acumbulum cup area.......... now unless > they plan to put a metal cup in there you will be then left with your > femoral head cartilage rubbing up against what will be then bone - as it > will not be possible for them to put smooth cartilage in all the top > area.......... this is the bit you need to get them to tell you very very > clearly...........just what will that femoral head be rubbing > against.......... > > And this is my guess about how you will get either 8 years or 38 years out > of it........... bone isn't smooth and it will wear that femoral head > cartilage away in due course. So if you can get all the muscles around your > hip area working very well you can get a nice little gap happening in there > and keep the femoral head off directly hitting the top area > bone...........thus prolong the life of the femoral head.......... (frankly I > don't understand why they don't put a metal or plastic cup in there - a > question worth asking your surgeon.) > > If your situation doesn't look too bad in terms of above and if you can get > a reasonably working set of muscles etc and are prepared to keep them that > way, my opinion would be wait......... 8 to 10 years down the track your > body still will not be that old and the scientists may have pulled off some > tricks......... > > I had my hip fused at 18............ and it remained that way for 35 > years......... in the last 10 the situation did dreadful damage to my > body.......... and no surgeon would do anything citing the osteomylitis > history, no muscles left etc......... with fusion one cannot exercise the > muscles so they just shrink and disappear......... But science caught up > with the problem and I have a resurface which, in my situation, made much > more sense than a THR.........less bone interference and better dislocation > rates. So in a sense I was glad I hadn't been able to have a THR........as > it could have been quite messy for little gain. my surgeon had only been > putting BHR's in fused hips for 2 yrs so when I found out I hadn't miss all > that much.............and got a far better solution for me...... > > But as I said at the top all this is my 6c worth........and don't forget you > can seek several doctors opinions. > > Edith LBHR Dr. L Walter Syd Aust 8/02 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2004 Report Share Posted July 13, 2004 Hi Becky, Yes it seems you are right there as another posting explained the operation as moving the acetabulum............ which should make it okay, though as she pointed out you have to get the angles pretty well near right apparently to prevent the rubbing that creates problems......... This is all something you need to have fully clear from the surgeon and how much of this he does and how successful he has been with his ops over time....... Some of these guys are wizards with moving bits around........... And from my own life I think you are quite right in what you are saying with feeling you would rather surrender your mobility at the 'other end' of your life......... It was sort of like that with mine though I just woke up with a fused hip - there was no choice given........ On balance it was for the best and I did have a lot of adventures in my life - which if I had had to struggle with septic arthritis in the hip for years I simply wouldn't have had......... So girl go have those adventures - it makes whatever happens at the end far more bearable........ one can say few regrets and plenty of fond memories.............. and even then if it does end up messy at the end - which it may not do - you may be saved by technology and a brilliant surgeon somewhere along that track............ All the best......... Edith LBHR Dr. L Walter Syd Aust 8/02 > > Thankyou for your advice! All is taken aboard and thought about. In > particular the cartilage issue. From very recent x-rays i've been > informed that the cartilage is in good nick. I do have one query > from what you said - there is cartilage lining both the socket and > the femur head, I don't think they remove that cartilage in the > socket, they just move the acetabulum. I will make sure I have that > confirmed with the OS though, thanks again! I know this sounds > terrible, but I'd rather surrender my mobility at the 'other end' of > my life, to be able to have my youth back now. Carpe diem! I am, > myself, a scientist, and trust that by the time I need a replacement > there will be better options - look what appeared in the last 10 > with resurfacing!! Good luck! > > Becky Quote Link to comment Share on other sites More sharing options...
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