Betty ~ good news at last!!!!!!!!!!!!!

[Guest guest]

PTL Betty -------- ( PTL = Praise The Lord )

I can just bet how much lesser the weight feels- I have yet to wonder about my

younger one- well - both boys actually but out of the 2 - the younger is more

like his mama - translucent skin, easy bruiser- and even had in past had

micro-aneurysms in his bladder but the dr said they dissapate and not to worry

about it ?1? but this was before Ehlers was dx'd in our family..........

With him being only 11 though- and Kenny passed at age 12- I just can't throw

that fearful probability in his life- especially knowing there is no cure- and

he is not complaining about any pain or anything- at least he does know that

Mama has it and that his brother passed from it- so if there are any

hospitalizations and I am not around there with him............ I do know he

will state- My Mother has Vascular Ehlers Danlos Syndrome....... so that they

will be more careful with him..... no matter what his dad says is not true. (

His dad says I'm a fake lol - don't I wish ).

But definitely glad to hear that is out of the woods so to speak......

And its normal to wonder why Danny had it and didn't........ that is

just something we will never know until we are greeted by them when its our time

to go..... I owe you a couple letters , just wanted to let you know- that I did

receive them and I hope to get back to you soon on them...... I've not been

feeling well enough to much get out of bed the past 3 days but am feeling some

better now- but you should see this inbox lol....... scareyyyyyy........ So

will respond soon......

Love - Hugs and Blessings-

TJ

Hello all

I just recieved the best news of all and Lord knows I needed this.....my older

boy does not have VEDS. He does not have the gene mutation that I have and

my younger boy had. My husband & I feel like a huge weight has been lifted.

ALthough I was very emotional when I heard today, I did have thoughts like why

did Danny get it and pass away from it and doesn't have it. (not that I

wanted KEvin to have it) but this is such a crazy syndrome. Anyway just wanted

to share some happy news!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Betty