RE: Acceptance... Re: Re: Re: Morphine/Laxity

[Guest guest]

From: Laxity

To: ceda

Sent: Wednesday, June 02, 2004 9:47 AM

Subject: Acceptance... Re: Re: Re: Morphine/Michellle/Lana

.......I think one of the many difficult things that I have found is

reaching this

for myself; then seeing my (adult/near adult) EDS child in pain and

not

knowing how to help as my resources and ability to intervene in their

behalf

becomes more and more limited with each passing day.

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Truely, so frustraiting, and leaves such a helpless feeling in me too.

I find it the hardest thing to cope with everyday.

Cindylouwho

Hi All:

Just found your words so true for myself also. I know there is no

greater pain for a mother than being unable to relieve the pain and

misery of one's child. The problem is the continuaous stress of it, on

and on, year after year that becomes so draining, with no little or no

acknowledgement of the condition by the medical profession. It doubles

the weight on ones' shoulders.

Bernie

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