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Re: Stuff!- A Need To Connect/

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Dear ,

I am so saddened to read of all the physical problems you are going through

right now. Strokes, that's really tough! Hurts my heart to read this about

what is going on with you. I'm so sorry for what you have to go through. My

thoughts and prayers are with you, our family friend!God Bless You! Take

Care and keep in touch with us when you can.

Love, S.

Re: Stuff!- A Need To Connect

> Hi all,

> Haven't been posting much at all of late. Three strokes this year since

> Xmas.

> Many heart problems (throwing blood clots to the brain); weakness and

some

> permanent vision loss from Amorosous Fugas type strokes. Quit 5

medications

> to try and quiten my nervous system (or, sanity) - you know; anti-this,

> anti-that, and stopped taking strong narcotic pain meds. Tough grind,

that

> one! Taking a moment to say that I care very much for you all, and I am

> just typing at this moment, I think, to try and reinforce that I 'AM'

> still.....still here. Jo...have been following your posts, and feel so,

so,

> deeply for you, and pray for you each and every night when I retire.

> This syndrome surely does test one's mental and physical endurance. God

> bless

> you all.

> Love,

>

>

>

>

>

> To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

>

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