Re: Wrist fusion information?

[Guest guest]

Hi Jo,

I can't share any personal info. Not any re. EDSers either. But I

know a lot of people with Psoriatic Arthritis (which I also have) and

other types of arthritis, who have done it. I have not heard one

single person be unhappy about it. Everybody says it is really

wonderful, gives instant relief. No more pain at all, and they soon

adjusted so that they could function well with it. It is awkward at

first not having movement in the wrist, but that you of course know

from being in casts so much of the time... Must be wonderful not

having to wear a cast or splint though... What is a concern though,

is the strain it will cause on surrounding joints, if that will be

too much and cause an increase in problems there. That th have talked

a bit about at the rare disorder center at a rehab hospital here,

they have been quite against fusions in general, for that reason. But

there is of course always exceptions from a general rule. But you may

have an idea about this already, from being in casts/splints so much?

Then there is of course the healing process. But you probably have an

idea about that too, since you have had several other surgeries,

including that thumb fusion...

I really hope that you can find relief soon, because having such an

untrustworthy and painful wrist, is really a royal pain in the

you-know-what... Makes so many things difficult... I am lucky, don't

have that kind of wrist problems. I often have subluxations and such

though, but can adjust them quite easily most of the time. I had real

bad problems with inflammation and quite bad pain earlier, before I

started using a wheelchair. You know, where even small things like

e.g. picking something out of your pocket, was quite impossible

because it hurt so much... Luckily not anymore...

Good luck!!!

Aase Marit

>I was just wondering if anyone here had undergone a wrist fusion at

>all and could offer some information and advice on the procedure,

>recovery and management please. It is looking very likely that

>fusion becoming the best option for my chronically unstable left

>wrist as I am spending more time in casts than out with it

>dislocating and breaking so easily.

>

>I know it will mean a loss of mobility in my worst and hand, but at

>the moment I'm pretty much stuck in a fusion position from the

>constant casting anyway, so it wouldn't be much of a trade off

>really. I've already had my left MCP thumb joint fused and I'm

>managing okay with that, but I know that the wrist is a much bigger

>and more involved prospect. I don't particularly want it fusing

>obviously but a rigid joint I can use has to be better than weak

>untrustworthy or splinted/casted one.

>

>I'm seeing my OS on Wednesday and intend talking over the situation

>with him then. So any personal info and opinion good or bad would be

>greatly appreciated. Thank you in advance.

>

>Love and hugs.....Jo

>xxx

>

>

>

>

>To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

>

[Guest guest]

Hi Jo,

I can't share any personal info. Not any re. EDSers either. But I

know a lot of people with Psoriatic Arthritis (which I also have) and

other types of arthritis, who have done it. I have not heard one

single person be unhappy about it. Everybody says it is really

wonderful, gives instant relief. No more pain at all, and they soon

adjusted so that they could function well with it. It is awkward at

first not having movement in the wrist, but that you of course know

from being in casts so much of the time... Must be wonderful not

having to wear a cast or splint though... What is a concern though,

is the strain it will cause on surrounding joints, if that will be

too much and cause an increase in problems there. That th have talked

a bit about at the rare disorder center at a rehab hospital here,

they have been quite against fusions in general, for that reason. But

there is of course always exceptions from a general rule. But you may

have an idea about this already, from being in casts/splints so much?

Then there is of course the healing process. But you probably have an

idea about that too, since you have had several other surgeries,

including that thumb fusion...

I really hope that you can find relief soon, because having such an

untrustworthy and painful wrist, is really a royal pain in the

you-know-what... Makes so many things difficult... I am lucky, don't

have that kind of wrist problems. I often have subluxations and such

though, but can adjust them quite easily most of the time. I had real

bad problems with inflammation and quite bad pain earlier, before I

started using a wheelchair. You know, where even small things like

e.g. picking something out of your pocket, was quite impossible

because it hurt so much... Luckily not anymore...

Good luck!!!

Aase Marit

>I was just wondering if anyone here had undergone a wrist fusion at

>all and could offer some information and advice on the procedure,

>recovery and management please. It is looking very likely that

>fusion becoming the best option for my chronically unstable left

>wrist as I am spending more time in casts than out with it

>dislocating and breaking so easily.

>

>I know it will mean a loss of mobility in my worst and hand, but at

>the moment I'm pretty much stuck in a fusion position from the

>constant casting anyway, so it wouldn't be much of a trade off

>really. I've already had my left MCP thumb joint fused and I'm

>managing okay with that, but I know that the wrist is a much bigger

>and more involved prospect. I don't particularly want it fusing

>obviously but a rigid joint I can use has to be better than weak

>untrustworthy or splinted/casted one.

>

>I'm seeing my OS on Wednesday and intend talking over the situation

>with him then. So any personal info and opinion good or bad would be

>greatly appreciated. Thank you in advance.

>

>Love and hugs.....Jo

>xxx

>

>

>

>

>To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

>

[Guest guest]

Hi Jo,

I can't share any personal info. Not any re. EDSers either. But I

know a lot of people with Psoriatic Arthritis (which I also have) and

other types of arthritis, who have done it. I have not heard one

single person be unhappy about it. Everybody says it is really

wonderful, gives instant relief. No more pain at all, and they soon

adjusted so that they could function well with it. It is awkward at

first not having movement in the wrist, but that you of course know

from being in casts so much of the time... Must be wonderful not

having to wear a cast or splint though... What is a concern though,

is the strain it will cause on surrounding joints, if that will be

too much and cause an increase in problems there. That th have talked

a bit about at the rare disorder center at a rehab hospital here,

they have been quite against fusions in general, for that reason. But

there is of course always exceptions from a general rule. But you may

have an idea about this already, from being in casts/splints so much?

Then there is of course the healing process. But you probably have an

idea about that too, since you have had several other surgeries,

including that thumb fusion...

I really hope that you can find relief soon, because having such an

untrustworthy and painful wrist, is really a royal pain in the

you-know-what... Makes so many things difficult... I am lucky, don't

have that kind of wrist problems. I often have subluxations and such

though, but can adjust them quite easily most of the time. I had real

bad problems with inflammation and quite bad pain earlier, before I

started using a wheelchair. You know, where even small things like

e.g. picking something out of your pocket, was quite impossible

because it hurt so much... Luckily not anymore...

Good luck!!!

Aase Marit

>I was just wondering if anyone here had undergone a wrist fusion at

>all and could offer some information and advice on the procedure,

>recovery and management please. It is looking very likely that

>fusion becoming the best option for my chronically unstable left

>wrist as I am spending more time in casts than out with it

>dislocating and breaking so easily.

>

>I know it will mean a loss of mobility in my worst and hand, but at

>the moment I'm pretty much stuck in a fusion position from the

>constant casting anyway, so it wouldn't be much of a trade off

>really. I've already had my left MCP thumb joint fused and I'm

>managing okay with that, but I know that the wrist is a much bigger

>and more involved prospect. I don't particularly want it fusing

>obviously but a rigid joint I can use has to be better than weak

>untrustworthy or splinted/casted one.

>

>I'm seeing my OS on Wednesday and intend talking over the situation

>with him then. So any personal info and opinion good or bad would be

>greatly appreciated. Thank you in advance.

>

>Love and hugs.....Jo

>xxx

>

>

>

>

>To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

>

[Guest guest]

I had a successful left wrist ulna/radial fusion in 1987.

What type of fusion will you be having?

I would love to tell you more but I am not feeling very well.

Thought it was fibro but now I am thinking my ulcer is back.

If you want to know more about my surgery, I would be happy to talk when I

am feeling a bit better,

What I can tell you that if you have a good surgeon you will not have

immobility.

My surgeon created a new " joint " in the ulna bone so that I have complete

rotation.

I would not wish this surgery on anyone because the post op is THE WORST

THERAPY I HAVE EVER HAD! I literally had to teach my brain to teach my

wrist to rotate in a totally new area.

More later if you want,

Debbi

Wrist fusion information?

I was just wondering if anyone here had undergone a wrist fusion at

all and could offer some information and advice on the procedure,

recovery and management please. It is looking very likely that

fusion becoming the best option for my chronically unstable left

wrist as I am spending more time in casts than out with it

dislocating and breaking so easily.

I know it will mean a loss of mobility in my worst and hand, but at

the moment I'm pretty much stuck in a fusion position from the

constant casting anyway, so it wouldn't be much of a trade off

really. I've already had my left MCP thumb joint fused and I'm

managing okay with that, but I know that the wrist is a much bigger

and more involved prospect. I don't particularly want it fusing

obviously but a rigid joint I can use has to be better than weak

untrustworthy or splinted/casted one.

I'm seeing my OS on Wednesday and intend talking over the situation

with him then. So any personal info and opinion good or bad would be

greatly appreciated. Thank you in advance.

Love and hugs.....Jo

xxx

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

[Guest guest]

I had a successful left wrist ulna/radial fusion in 1987.

What type of fusion will you be having?

I would love to tell you more but I am not feeling very well.

Thought it was fibro but now I am thinking my ulcer is back.

If you want to know more about my surgery, I would be happy to talk when I

am feeling a bit better,

What I can tell you that if you have a good surgeon you will not have

immobility.

My surgeon created a new " joint " in the ulna bone so that I have complete

rotation.

I would not wish this surgery on anyone because the post op is THE WORST

THERAPY I HAVE EVER HAD! I literally had to teach my brain to teach my

wrist to rotate in a totally new area.

More later if you want,

Debbi

Wrist fusion information?

I was just wondering if anyone here had undergone a wrist fusion at

all and could offer some information and advice on the procedure,

recovery and management please. It is looking very likely that

fusion becoming the best option for my chronically unstable left

wrist as I am spending more time in casts than out with it

dislocating and breaking so easily.

I know it will mean a loss of mobility in my worst and hand, but at

the moment I'm pretty much stuck in a fusion position from the

constant casting anyway, so it wouldn't be much of a trade off

really. I've already had my left MCP thumb joint fused and I'm

managing okay with that, but I know that the wrist is a much bigger

and more involved prospect. I don't particularly want it fusing

obviously but a rigid joint I can use has to be better than weak

untrustworthy or splinted/casted one.

I'm seeing my OS on Wednesday and intend talking over the situation

with him then. So any personal info and opinion good or bad would be

greatly appreciated. Thank you in advance.

Love and hugs.....Jo

xxx

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

[Guest guest]

I had a successful left wrist ulna/radial fusion in 1987.

What type of fusion will you be having?

I would love to tell you more but I am not feeling very well.

Thought it was fibro but now I am thinking my ulcer is back.

If you want to know more about my surgery, I would be happy to talk when I

am feeling a bit better,

What I can tell you that if you have a good surgeon you will not have

immobility.

My surgeon created a new " joint " in the ulna bone so that I have complete

rotation.

I would not wish this surgery on anyone because the post op is THE WORST

THERAPY I HAVE EVER HAD! I literally had to teach my brain to teach my

wrist to rotate in a totally new area.

More later if you want,

Debbi

Wrist fusion information?

I was just wondering if anyone here had undergone a wrist fusion at

all and could offer some information and advice on the procedure,

recovery and management please. It is looking very likely that

fusion becoming the best option for my chronically unstable left

wrist as I am spending more time in casts than out with it

dislocating and breaking so easily.

I know it will mean a loss of mobility in my worst and hand, but at

the moment I'm pretty much stuck in a fusion position from the

constant casting anyway, so it wouldn't be much of a trade off

really. I've already had my left MCP thumb joint fused and I'm

managing okay with that, but I know that the wrist is a much bigger

and more involved prospect. I don't particularly want it fusing

obviously but a rigid joint I can use has to be better than weak

untrustworthy or splinted/casted one.

I'm seeing my OS on Wednesday and intend talking over the situation

with him then. So any personal info and opinion good or bad would be

greatly appreciated. Thank you in advance.

Love and hugs.....Jo

xxx

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

[Guest guest]

Thank you for your information about wrist fusions - I really

appreciate it!

Aase - thank you for all your help, advice and information. I have

to admit that the idea of fusion does scare me but the thought of

reducing the pain, instability and not spending month after month in

casts and splints really appeals. It is great hearing of success

stories and knowing that it is possible to be pain free and function

with a rigid wrist joint. I am so glad that the fusion has been so

successful for your psoriasis arthritis colleagues and that the

inflammation issues had aren't so bad now. I can so equate to

the " even small things becoming and right royal pain "

situation....at the moment I get excited if I can tie my own shoes

laces! lol

The point you make about the stresses on other joints is a very good

one though, I know that since my thumb fusion the other joints in my

thumb have become looser. So the potential effects on my elbow and

recently reconstructed shoulder would have to be a major

consideration. As of course would the healing process too -

thankfully my thumb fusion healed perfectly, but I have had healing

issues in the past as well. I guess that there is an awful lot to

think and talk about with my surgeon before any decisions on what is

the right option for me. Thanks again for your support and help

Aase, I really appreciate it :-)

Debbi - thank you for your reply too Darl, especially when I know

you are not well and facing your own battles. My thoughts and

prayers are with you and I wish you luck and lots of healing hugs

right now. I really appreciate your information about your wrist

fusion operation, the formation of a new joint in ulna sounds

fascinating! I am not sure what kind of fusion I would be facing as

I have yet to discuss the options with my OS, but it's likely to be

a complete fusion as my entire wrist joint steps out, leaving my

palm flat against my forearm when it goes, popping most of the bones

(and fracturing some of them the last twice) I would be really

interested in talking some more with you about things, but only when

you are feeling better! Please feel free to drop me a line when you

feel more up to talking and know that I am sending you lots of get

well vibes!

Thanks again to you both for your replies and help - it has helped

me a lot to know where my pros and cons are and what areas I really

have to consider and talk over with my specialists. Take care and

know that I and my floppy little wrist are very grateful to you both!

Love and hugs.....Jo

xxx

[Guest guest]

Deb, if you get a chance, you should add this and others to the new database

Barb created. I would help people a lot. Get better first though,

girlfriend, and know I'm thinking of you and praying for you!

Love Lana 0:-)

Wrist fusion information?

I was just wondering if anyone here had undergone a wrist fusion at

all and could offer some information and advice on the procedure,

recovery and management please. It is looking very likely that

fusion becoming the best option for my chronically unstable left

wrist as I am spending more time in casts than out with it

dislocating and breaking so easily.

I know it will mean a loss of mobility in my worst and hand, but at

the moment I'm pretty much stuck in a fusion position from the

constant casting anyway, so it wouldn't be much of a trade off

really. I've already had my left MCP thumb joint fused and I'm

managing okay with that, but I know that the wrist is a much bigger

and more involved prospect. I don't particularly want it fusing

obviously but a rigid joint I can use has to be better than weak

untrustworthy or splinted/casted one.

I'm seeing my OS on Wednesday and intend talking over the situation

with him then. So any personal info and opinion good or bad would be

greatly appreciated. Thank you in advance.

Love and hugs.....Jo

xxx

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca