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I'm certainly going to try it -- I mean, I can't very well go to this

orthopedic surgeon, top floor of a Medical Center tower and large part of Baylor

College of Medicine's Arthritis Institute, Adult joint Reconstruction expert ...

anyway, go to him asking if he could help me manage the EDS part of my medical

work (a position no one in the County Hospital District wished to

assume), and then turn down the only thing he can offer.

www.dlionbergermd.com

Basically, that's it. Really there's nothing else for him TO offer, except

this possibility that this I'm high enough in the food chain now to get a decent

physical therapist who can actually give me something useable. Lionberger

spent a lot of time with me, I can't complain -- he worked over my shoulders

well

enough to require some rest after I got home (the flooding rains didn't

help), and said if anyone can do anything, the therapist he's sending me to can.

Lionberger will see me again in 6 months, and we'll do an appointment every 6

months until something changes, which is what I wanted -- someone reliably good

in case of an emergency situation, quite apart from someone who would be aware

of whatever options might become available in the future. By the way, he sees

Medicare patients for what Medicare pays him; I paid nothing extra for the

visit. This isn't a dodge, like the dentists -- I'm on the books, it's just not

costing me anything directly. More than I can say for the Hospital District,

actually. And my other question's answer is nothing can be done about my little

fingers apart from rendering them useless surgically; they twist in a way

that would defeat ring splints. Go body -- don't let those nasty solutions get

in

the way...

There is the annoying factor of my having gone through PT before only to wind

up with useless instructions that inevitably injured me ... I just don't want

to waste the precious time I have each day doing something that will hurt me.

I will have to define what my objectives are, and what restrictions I can see

being important, before going to the physical therapist, things I'll have to

think concretely about and discuss with my head therapist tomorrow.

When he joked getting old might help me, I didn't have the heart to tell him

that getting older wasn't helping -- for every really minor improvement (e.g.,

my thumbs will no longer STAY out when pulled out), there's been a

disproportionally greater increase in other problems (e.g., now my thumbs really

hurt

when they get pulled out) ... and there was good news: he Xrayed my left

shoulder, as the representative worst joint, and there's no visible damage,

despite

their continual displacements. This fits, because the damage I have would

probably be the result of the stretching and/or crushing of nerves etc. between

the

bones. I stretch a lot, but that in itself isn't the problem. Just the

results. OK, I guess this is good news, anyway.

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