Guest guest Posted July 23, 2004 Report Share Posted July 23, 2004 Hum?????? This sounds suspiciously like my So Cal EDSers doesn't it SHANNON? Ha! All I can say is you better not take So Cal EDSers pink flamingo symbol! HA! I crack my self up! ((((( but am totally serious!))) Us SoCal EDSers are a group all our own, living in the land of Mountains, Ocean, Desert, and glorious Disneyland all within arms reach (and you know how long our arms can get!) That was one long sentence! Anyway. I am happy to be the first to sign up for the California EDSers group. California EDSers A new on line group was started at Yahoo Groups titled CaliforniaEDS. This is a semi-moderated group for people in California with all types of the connective tissue disorder Ehlers Danlos Syndrome (EDS) or those who want to learn more about it. This is a place to share information, ask and answer questions, provide support, and just chat. We'd like to get more members into that group and start some polls to collect things like names of the doctors/health practitioners we see, casual get together events, and other resources available. Please join us there or email , the list owner, at jmnycricket22@... to request to be signed up to the list. Thanks, Maggie B. Walnut Creek, California To learn more about EDS, visit our website: http://www.ehlersdanlos.ca Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2004 Report Share Posted July 24, 2004 Thanks for promoting the new group, Maggie. As Maggie said, you can email me for an invitation to join, or you can submit your request to join directly from the group's website, which is http://health.groups.yahoo.com/group/CaliforniaEDS/ There is a " join now " button you can click, then follow the directions to submit your request. I set up the group with restricted membership and new members will be moderated for their first post to try and reduce the amount of spam. Unfortunately, I am not able to directly add members, so even if you email me with a request to join, I'll still have to send an invitation (and, unfortunately, I've noticed some email providers do not want to accept the invitations). This group is not meant to take members away from other groups (CEDA, EDSers, etc.) but is just another group people can join to talk about EDS and whatever else is on their mind with people who live nearby. Thanks, and I hope to see you Californian's there! > A new on line group was started at Yahoo Groups titled CaliforniaEDS. This > is a semi-moderated group for people in California with all types of the > connective tissue disorder Ehlers Danlos Syndrome (EDS) or those who want > to learn more about it. This is a place to share information, ask and answer > questions, provide support, and just chat. > > We'd like to get more members into that group and start some polls to collect > things like names of the doctors/health practitioners we see, casual get > together events, and other resources available. > > Please join us there or email , the list owner, at > jmnycricket22@y... to request to be signed up to the list. > > Thanks, > > Maggie B. > > Walnut Creek, California Quote Link to comment Share on other sites More sharing options...
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