Howdo I contact an EDSer my neighber met?

[Guest guest]

My neighbor met an EDSer at Shopko the other day, by merely helping her with the

door.

This lady was given only my first name- but gave my friend her first and last

name and the ortho doctor she goes to.

She explained to my neighbor that she's really been wanting to meet another

person with EDS-after being undiagnosed for 22 yrs....and being told it was in

her head.

Any ideas on how to contact her? And to let her know of CEDA and EDNF too.

We only live about 1-2 miles apart.

Cindy H

Wisc.