Read this book on EDS? The Official Patient's Sourcebook...

[Guest guest]

Hi guys,

For the second time I today watched the movie

" Jenifer " , about Jenifer Estess and her fight

against ALS (Lou Gehrig's Disease). As I often do

when I see movies like that these days, I went

online and searched for her name, to see what

happened to her after the movie was made etc.

Sadly she died last December, but she and her

sisters have done an amazing job in getting more

and significant research done on ALS.

Anyway, I saw mentioning of her memoirs, and went

on Amazon.co.uk to buy it. Did so, but then did a

search for EDS, to see what was there now. That

was when I found this book about EDS (and 8 other

books and booklets, most of them familiar), and

wondered if any of you have it. What do you think

about it? Is it worth $30-40 or something like

that? Does it offer any really useful

information? I am wondering if somebody haven't

posted about it here before... It is obviously

some real fat book, 404 pages...

Copy of Amazon info about the book below my sig...

Aase Marit

The Official Patient's Sourcebook on

Ehlers-Danlos Syndrome: A Revised and Updated

Directory for the Internet Age

Icon Health Publications

2 Used & New from £20.78

Availability: usually dispatched within 1 to 2 working days

See larger photo

Edition: Paperback

Browse our great selection of Books Special Offers and save ££s today.

More Product Details

------------------------------------------------------------------------

Product Details:

* Paperback 404 pages (August 1, 2002)

* Publisher: Icon Health

* ISBN: 0597833710

* Category(ies): Reference & Languages , Health, Family & Lifestyle