Guest guest Posted July 18, 2011 Report Share Posted July 18, 2011 Hi everyone. I was wondering if it wouldn’t be asking too much if everyone who is posting and hopefully those who aren’t might start, would you do another introductory of yourselves. I have noticed when I’ve been away for a while there’s new people who join, and when I come back I don’t know who they are or anything about them. I think it would be advantageous to all the new people too. YES? J So I’ll go first: I’m Jackie from the Northern part of Oregon. I live in a rural town, but am hoping to move closer into a town that has more to offer to disabled people. I am almost 61, and I’ve had MS since I was 31. My MS has been slow progressive, and I can still get around, but with a walker and a power chair. My husband Steve of almost 40 yrs, helps me with my bathing, getting up and down, and dressing me, and he is now chief cook and bottle washer with my guidance on how to prepare and cook our meals. I am hoping to move to an area where I have family that might offer him some respite care. When we first moved out here 10 yrs ago I was still mobile enough that I didn’t need assistance so it wasn’t an issue. We have found the perfect manufactured home in a wonderful park where Steve’s sister lives there too. For those who pray please put us on your list as we need someone to buy this house we are in now, so we can move into the other one ASAP. J I have 2 children, Tina 38, married to Jim and they have my only grandson Christian 2yrs. my son 35, divorced but has full custody of my 2 granddaughters 11, and Skylar 9. We would be 10 mins away from where he lives if we get the MFH. My journey with MS started in 1981, when I had a stroke like experience that left the right side of my body numb, and not being able to walk. I spent 10 days in the hosp, doing PT, and eventually I got the strength back in my legs and could walk again. Over the years I’ve picked up a few more illnesses, that seem to bother me more than the MS at times, and sometimes because the symptoms are so similar its hard to tell which is flaring when I am having a bad day. I have MS, Fibromyalgia, Hypothyroidism, Sleep Apnea, Endometriosis, Dercums [fatty painful tumors attached to fat, muscles, nerves, etc] Diabetes [under control by diet], and I just had blood work done to see if I might have Celiac disease [please pray I don’t]. I’ll get my test results probably by weeks end. The only meds I take are Oxycodone w/Tylenol [low dose to take the edge off my 24/7 pain], and Valium for the muscle spasms. I still fight fatigue more now, weakness, sometimes tingling in many areas, and hot and cold spells. I still maintain an acceptable cognitive ability but I have to make sure I force myself to think about what it is I need to do instead of being on automatic pilot. I have some spatial problems with not knowing where my feet are so I have to be careful when I walk. I’ve fallen several times and after the last one full force on my knees on a hard surface, I NEVER am without my walking table. The weather here is very unpredictable with the pacific ocean currents changing so much, so if its at all humid and warm it will zap me totally. I do much better in dryer and warmer weather. If its too cold and wet I stiffen up and get so cold I can hardly warm up. So my life consists of trying to manage all these variables and that takes a lot of effort. I only have the use of one hand now, so EVERYTHING gets done with it, and it is showing signs of wear and tear and many days I have to rest it so I can at least take care of some of my hygiene stuff. Those times will be the times you might not hear from me a lot. So that’s about it for me, if there are any questions, or just wanting to talk I am always just a keystroke away, and I want everyone to know you ALL are in my prayers daily! My e-addy is rubyjax@... if you want to talk privately. JHugs to all, Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2011 Report Share Posted July 18, 2011 Jackie, You will remain in my prayers. Hugs nne To the world you might be one person, but to one person you just might be the world " " May the Lord Bless you and keep you, May the Lord Make his face shine upon you, and give you Peace...Forever " Breast Cancer Patients Soul Mates for Life http://breastcancerpatientssoulmatesforlife.bravehost.com/ Anxiety Depression and Breast Cancer http://health.groups.yahoo.com/group/AnxietyDepressionandBreastCancer Angel Feather Loomer www.angelfeatherloomer.blogspot.com The Cancer Club www.cancerclub.com > A FAVOR PLEASE! :-) > > Hi everyone. I was wondering if it wouldn't be asking too much if > everyone > who is posting and hopefully those who aren't might start, would you do > another introductory of yourselves. I have noticed when I've been away > for a > while there's new people who join, and when I come back I don't know who > they are or anything about them. I think it would be advantageous to all > the > new people too. YES? J > > So I'll go first: > > I'm Jackie from the Northern part of Oregon. I live in a rural town, but > am > hoping to move closer into a town that has more to offer to disabled > people. > I am almost 61, and I've had MS since I was 31. My MS has been slow > progressive, and I can still get around, but with a walker and a power > chair. My husband Steve of almost 40 yrs, helps me with my bathing, > getting > up and down, and dressing me, and he is now chief cook and bottle washer > with my guidance on how to prepare and cook our meals. I am hoping to > move > to an area where I have family that might offer him some respite care. > When > we first moved out here 10 yrs ago I was still mobile enough that I > didn't > need assistance so it wasn't an issue. > > We have found the perfect manufactured home in a wonderful park where > Steve's sister lives there too. For those who pray please put us on your > list as we need someone to buy this house we are in now, so we can move > into > the other one ASAP. J > > > > I have 2 children, Tina 38, married to Jim and they have my only grandson > Christian 2yrs. my son 35, divorced but has full custody of > my > 2 granddaughters 11, and Skylar 9. We would be 10 mins away from > where he lives if we get the MFH. > > My journey with MS started in 1981, when I had a stroke like experience > that > left the right side of my body numb, and not being able to walk. I spent > 10 > days in the hosp, doing PT, and eventually I got the strength back in my > legs and could walk again. Over the years I've picked up a few more > illnesses, that seem to bother me more than the MS at times, and > sometimes > because the symptoms are so similar its hard to tell which is flaring > when I > am having a bad day. I have MS, Fibromyalgia, Hypothyroidism, Sleep > Apnea, > Endometriosis, Dercums [fatty painful tumors attached to fat, muscles, > nerves, etc] Diabetes [under control by diet], and I just had blood work > done to see if I might have Celiac disease [please pray I don't]. I'll > get > my test results probably by weeks end. > > The only meds I take are Oxycodone w/Tylenol [low dose to take the edge > off > my 24/7 pain], and Valium for the muscle spasms. I still fight fatigue > more > now, weakness, sometimes tingling in many areas, and hot and cold spells. > I > still maintain an acceptable cognitive ability but I have to make sure I > force myself to think about what it is I need to do instead of being on > automatic pilot. I have some spatial problems with not knowing where my > feet > are so I have to be careful when I walk. I've fallen several times and > after > the last one full force on my knees on a hard surface, I NEVER am without > my > walking table. > > The weather here is very unpredictable with the pacific ocean currents > changing so much, so if its at all humid and warm it will zap me totally. > I > do much better in dryer and warmer weather. If its too cold and wet I > stiffen up and get so cold I can hardly warm up. So my life consists of > trying to manage all these variables and that takes a lot of effort. I > only > have the use of one hand now, so EVERYTHING gets done with it, and it is > showing signs of wear and tear and many days I have to rest it so I can > at > least take care of some of my hygiene stuff. Those times will be the > times > you might not hear from me a lot. So that's about it for me, if there are > any questions, or just wanting to talk I am always just a keystroke away, > and I want everyone to know you ALL are in my prayers daily! My e-addy is > rubyjax@... if you want to talk privately. J > > Hugs to all, Jackie ____________________________________________________________ Publish your photos in seconds for FREE TRY IM TOOLPACK at http://www.imtoolpack.com/default.aspx?rc=if4 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2011 Report Share Posted July 18, 2011 JackieLife is hard for you and I'm so sorry. When will you and Steve decide if you are moving, or not? It would be nice to get to see the granddaughters more often!hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Mon, July 18, 2011 3:37:01 PMSubject: A FAVOR PLEASE! :-) Hi everyone. I was wondering if it wouldn’t be asking too much if everyone who is posting and hopefully those who aren’t might start, would you do another introductory of yourselves. I have noticed when I’ve been away for a while there’s new people who join, and when I come back I don’t know who they are or anything about them. I think it would be advantageous to all the new people too. YES? J So I’ll go first: I’m Jackie from the Northern part of Oregon. I live in a rural town, but am hoping to move closer into a town that has more to offer to disabled people. I am almost 61, and I’ve had MS since I was 31. My MS has been slow progressive, and I can still get around, but with a walker and a power chair. My husband Steve of almost 40 yrs, helps me with my bathing, getting up and down, and dressing me, and he is now chief cook and bottle washer with my guidance on how to prepare and cook our meals. I am hoping to move to an area where I have family that might offer him some respite care. When we first moved out here 10 yrs ago I was still mobile enough that I didn’t need assistance so it wasn’t an issue. We have found the perfect manufactured home in a wonderful park where Steve’s sister lives there too. For those who pray please put us on your list as we need someone to buy this house we are in now, so we can move into the other one ASAP. J I have 2 children, Tina 38, married to Jim and they have my only grandson Christian 2yrs. my son 35, divorced but has full custody of my 2 granddaughters 11, and Skylar 9. We would be 10 mins away from where he lives if we get the MFH. My journey with MS started in 1981, when I had a stroke like experience that left the right side of my body numb, and not being able to walk. I spent 10 days in the hosp, doing PT, and eventually I got the strength back in my legs and could walk again. Over the years I’ve picked up a few more illnesses, that seem to bother me more than the MS at times, and sometimes because the symptoms are so similar its hard to tell which is flaring when I am having a bad day. I have MS, Fibromyalgia, Hypothyroidism, Sleep Apnea, Endometriosis, Dercums [fatty painful tumors attached to fat, muscles, nerves, etc] Diabetes [under control by diet], and I just had blood work done to see if I might have Celiac disease [please pray I don’t]. I’ll get my test results probably by weeks end. The only meds I take are Oxycodone w/Tylenol [low dose to take the edge off my 24/7 pain], and Valium for the muscle spasms. I still fight fatigue more now, weakness, sometimes tingling in many areas, and hot and cold spells. I still maintain an acceptable cognitive ability but I have to make sure I force myself to think about what it is I need to do instead of being on automatic pilot. I have some spatial problems with not knowing where my feet are so I have to be careful when I walk. I’ve fallen several times and after the last one full force on my knees on a hard surface, I NEVER am without my walking table. The weather here is very unpredictable with the pacific ocean currents changing so much, so if its at all humid and warm it will zap me totally. I do much better in dryer and warmer weather. If its too cold and wet I stiffen up and get so cold I can hardly warm up. So my life consists of trying to manage all these variables and that takes a lot of effort. I only have the use of one hand now, so EVERYTHING gets done with it, and it is showing signs of wear and tear and many days I have to rest it so I can at least take care of some of my hygiene stuff. Those times will be the times you might not hear from me a lot. So that’s about it for me, if there are any questions, or just wanting to talk I am always just a keystroke away, and I want everyone to know you ALL are in my prayers daily! My e-addy is rubyjax@... if you want to talk privately. JHugs to all, Jackie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2011 Report Share Posted July 26, 2011 I am Anne – I live in Lawton – Fort Sill, OK – the Army Brat – proud of it – married Army twice – that was insanity – don’t tell my kids – a Reserve wife too – when I got divorced in 1984 I figured out what I wanted to do when I grew up – hey I had a sheltered childhood – went back to college in January of 1986 to December of 2001 college 3 undergraduate and a graduate degree – went to Red Cross to do messages for the troops in July of 2003 – the MS got me in June of 2004 – go to bed and wake up in a vise – had it since I was 17 in December of 1965 – dx ed in 2004 at 55 – still dealing with the monster My puter has been in the shop since the 6th – last week I over did and my pinched nerves in my back are screaming like banshees – on top of the flare the cable company started the 28th of June – the weather is still triple digits – 8 weeks and counting – finally had to brave the weather with the ice vest to get herbs for the pain and the cranberry pills – went beyond the nettle root tea Still have 4000 emails to deal with – another day – back to the couch after I eat From: MSersLife [mailto:MSersLife ] On Behalf Of Jackie Hanan Sent: Monday, July 18, 2011 5:37 PM To: MSersLife Subject: A FAVOR PLEASE! :-) Hi everyone. I was wondering if it wouldn’t be asking too much if everyone who is posting and hopefully those who aren’t might start, would you do another introductory of yourselves. I have noticed when I’ve been away for a while there’s new people who join, and when I come back I don’t know who they are or anything about them. I think it would be advantageous to all the new people too. YES? J So I’ll go first: I’m Jackie from the Northern part of Oregon. I live in a rural town, but am hoping to move closer into a town that has more to offer to disabled people. I am almost 61, and I’ve had MS since I was 31. My MS has been slow progressive, and I can still get around, but with a walker and a power chair. My husband Steve of almost 40 yrs, helps me with my bathing, getting up and down, and dressing me, and he is now chief cook and bottle washer with my guidance on how to prepare and cook our meals. I am hoping to move to an area where I have family that might offer him some respite care. When we first moved out here 10 yrs ago I was still mobile enough that I didn’t need assistance so it wasn’t an issue. We have found the perfect manufactured home in a wonderful park where Steve’s sister lives there too. For those who pray please put us on your list as we need someone to buy this house we are in now, so we can move into the other one ASAP. J I have 2 children, Tina 38, married to Jim and they have my only grandson Christian 2yrs. my son 35, divorced but has full custody of my 2 granddaughters 11, and Skylar 9. We would be 10 mins away from where he lives if we get the MFH. My journey with MS started in 1981, when I had a stroke like experience that left the right side of my body numb, and not being able to walk. I spent 10 days in the hosp, doing PT, and eventually I got the strength back in my legs and could walk again. Over the years I’ve picked up a few more illnesses, that seem to bother me more than the MS at times, and sometimes because the symptoms are so similar its hard to tell which is flaring when I am having a bad day. I have MS, Fibromyalgia, Hypothyroidism, Sleep Apnea, Endometriosis, Dercums [fatty painful tumors attached to fat, muscles, nerves, etc] Diabetes [under control by diet], and I just had blood work done to see if I might have Celiac disease [please pray I don’t]. I’ll get my test results probably by weeks end. The only meds I take are Oxycodone w/Tylenol [low dose to take the edge off my 24/7 pain], and Valium for the muscle spasms. I still fight fatigue more now, weakness, sometimes tingling in many areas, and hot and cold spells. I still maintain an acceptable cognitive ability but I have to make sure I force myself to think about what it is I need to do instead of being on automatic pilot. I have some spatial problems with not knowing where my feet are so I have to be careful when I walk. I’ve fallen several times and after the last one full force on my knees on a hard surface, I NEVER am without my walking table. The weather here is very unpredictable with the pacific ocean currents changing so much, so if its at all humid and warm it will zap me totally. I do much better in dryer and warmer weather. If its too cold and wet I stiffen up and get so cold I can hardly warm up. So my life consists of trying to manage all these variables and that takes a lot of effort. I only have the use of one hand now, so EVERYTHING gets done with it, and it is showing signs of wear and tear and many days I have to rest it so I can at least take care of some of my hygiene stuff. Those times will be the times you might not hear from me a lot. So that’s about it for me, if there are any questions, or just wanting to talk I am always just a keystroke away, and I want everyone to know you ALL are in my prayers daily! My e-addy is rubyjax@... if you want to talk privately. J Hugs to all, Jackie Quote Link to comment Share on other sites More sharing options...
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