vision........RE: Sharon.....RE: Frustrated! :-)

[Guest guest]

Hi ,…..i wonder if the vision thing is typical for MS’ers? And how many others here have the same reactions. I remember when mine started we were still up on Whidbey Island, and there’s a bridge called the Deception Pass Bridge that you could pull over and get out to look over the edge as it’s a big tourist attraction. When we first moved up there I had no problem doing that, but after the first MS attack I started noticing that heights affected me and I would get really dizzy. Now this is coming from a gal that had no problems climbing tall trees when she was a kid. The taller the better. Now I can’t even ride in a car without panic. I can’t go on any amusement rides either. I tried a few years back to go on the Ferris Wheel, and the Merry-go-round and thought I would die. What a different world this MS is. Not any fun either…[pouty lip] LYeah I’m going to call my neighbor this week and see what she says. If not her I can find someone from Angies list I’m sure. Hugs, Jackie Frustrated! :-) Hey everyone,……this weekend was a little stressful, but not too bad. I have been so sleepy, and felt like I slept Sat. away. Today Sunday wasn’t too bad. Legs are a little more painful again, but the weather is changing and I attribute to higher pain levels to that. But as my subject says I am frustrated. This is why……as I have talked about this many times I have been wanting to move closer into a town where there is more to offer me disability ways. Out here in the sticks there isn’t programs or even help that want to come out this far. I need house cleaning, and a house that is handicap friendly. We could remodel this place to accommodate my needs, or we could find a home closer to Steve’s work. The problem is with the way the housing market is we wouldn’t get what our house is really worth if we tried to sell, so we thought we would rent it out. They have rental agencies that do all the screening and preparations for a modest fee. But then we would need to find a place that would be set up to meet my needs, and I thought we found a manufactured home in the park where Steve’s sister lives, but he went over there today, and there’s just too much to do to get it handicap friendly. I am beginning to realize that unless you have a MFH made to specifications to accommodate your disabilities most of them are not. Too narrow of doors for a wide wheelchair, and tiny showers and garden tubs [really small], and if we bought one that needed work done then we might as well just stay here. So my frustration comes in mostly with trying to make up my mind what I want to give up? Closer in to amenities and Dr’s, where I could hopefully get out more, but not have the living areas fit my disability needs. Or stay out here where we’ve been here for 10 yrs, and little by little remodel this place into what I need. Like there would be plenty room for a walk in bath tub in one of the bathrooms, and a walk in shower too. But if we stay out here we give up close amenities. I don’t go out very much, and have gotten use to being by myself most of the time, and like it better now. Mainly because I don’t feel very well very often to have people over, and it all falls on Steve to get the house cleaned. I think I can get a housekeeper to come here, so that might not be an issue, but they would have to come on the weekend as I won’t have someone here by myself. The other pro’s for staying here is this is the house that my grandchildren are excited to come to, and are familiar with. Its like a safe zone for them. I had that at my grandmas when I was growing up, and it was my fondest memories. So I am torn to take that away from them. Heck says even Nugget gets excited when they come out here and he recognizes the area. Lol… another plus is we wouldn’t have any restrictions on how big a dog or how many we can have here. Plus we have a huge lake if we ever were out of power and the well pumps went out. Had to do that one winter and Steve braved the embankment to get us water for flushing, ect. We have a fireplace too, and a large yard for storage. Lol.. sounds like I am talking myself into staying here. I think because in the back of my mind I have been wanting to move closer in for a long time, but I never could convince Steve to go for it. If we would have moved before the housing market went TU, then we would have gotten a nice little profit from the sale. Plus I was still mobile enough I know I would have gotten out more then. So maybe I just need to let go of what could have been, and concentrate on doing what we can do here until Steve can retire in a couple years, then he would be home all the time. So what do any of you think? Thanks for taking the time to read this and letting me talk it thru. Hugs and love, Jackie ------------------------------------