Ok, a few questions please......

July 15, 2004

I am so nervous it's unreal. Today my back feels worse. It not only

hurts even taking Darvacet (sorry for spelling errors) but the

creepy crawlers I feel are worse today, plus my right leg doesn't

seem to be working right. It's weaker today and wants to collaps.

I'm still waiting to hear from the Spec in Pitts if they want to

risk doing that test. I wish I could remember what it was....lol

The questions I have are: What symptoms do you all have and what

tests need to be done? My dad had 3 aurisms in his head, but the

one that killed him was in his abdomin. What tests do I need to have

to be checked out???? Plus, do Anurisms in EDS patients just

appear? Or do anurisms take awhile to grow? This is what I thought

my whole life untill yesterday. I hear that sometimes they get

larger and then other days it can be smaller almost undetectable. Is

this true? Here are my symptoms:

Atheritis in back and ankles.

Bruse easily

cuts take longer to heal (still recovering from knee surgery from

last year)

Very flexable

I don't have the elastic skin

Mild Sculliosis

Family hystory of ruptured anurisms

Bad joints

I bled real bad with my last 2 children

My vains are real easy to see threw my skin

I also have at least 6 huriated disks and this hole in my spine

I know these aren't bad probably compaired to what some of you are

going threw. I just want to know what everyone has and if we have

any of this in common. I haven't been taking care of myself or

listening to my body cause I've always been taking care of the kids

first. But I know now I have to also get in tune with me so I can

hopefully skick around to care for my kids in the future. Thanks for

listening.

HUGGLES

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