Re: New Doctor visit today-Triggers and Coping

[Guest guest]

Yep, Bernie, it does help. It explains a lot of my family's behavior

over the years, too. Mom and Grandma always sat to peel veggies, cut

up fruit, etc. Mom always sat whenever possible when teaching and

folding clothes and ironing, etc. Mom always sits with her feet up.

Funny how they just knew what to do.

Hannah my number three seems to be most affected by low bp - she is

always lieing down at stores at times when she 'should' be standing.

Actually drives me crazy to have her lie down on the floor at the

grocery store. We've worked on her not lieing in the middle of an

isle - we've found that squatting will work in a pinch - or she can

sit on the bottom shelf of the cart, etc. I've also noticed that the

girls tend to go sit at the bench by the door while I'm checking out.

We homeschool and have always been rather relaxed so it's been easy

to lie on the bed and read or do math or whatever - and she can take

mornings at her own pace. Even though I didn't know what was going

on I've always been pretty in tune with what worked best for them. I

know I'm going to have to speak with her choir director so she knows

Hannah has trouble standing for long periods - I doubt it will be a

problem since she's almost passed out at the last two dress

rehearsals. The violin instructor is also very understanding and has

caught 'about ready to faint' episodes in two of the girls before

they really knew what was going on - he noticed that their color and

expression just wasn't right. Of course we had no idea why it was

happening - but he has fibromyalsia so he understands undiagnosed

symptoms.

I'm going to watch the mood thing and see if outbursts are connected

to low bp times. Thanks for that tip.

Naomi has low bp, too, but I think she mostly combats it by never,

never being still. She, too, has done some instinctive compensating -

like sitting while practicing her violin instead of standing like

she is 'suppose to'. She's found that it is harder to concentrate

when she stands up.

Being understood hasn't been a problem for them - they are such good

kids that the few teachers that have noticed never believe they are

faking. Another homeschool blessing. I do absolutely agree that

acknowledgement is one of the keys in coping with chronic diseases

such as this one.

So ya'll do anything nutritionally that helps? Any and all

tips,nutritionally and otherwise, welcome.