Re: Yet another Question........

[Guest guest]

In a message dated 8/26/2004 4:48:05 PM Pacific Standard Time,

gracieb1@... writes:

I have a print-out from a

book. It was given to me by a cardiologist. On it, is a little

sentence under the symptoms of Ehlers. It says that Autism is

an " other " of the occasional abnormalities. Could Aspergers also be

listed with the abnormalities?

I've also heard someone's doctor said Tourette's Syndrome, which is rampant

in my family, is more common with EDS. Apparently the genes involved may be in

the same area? So I would think there's a chance Aspergers is another

related disorder. Just doubt anyone is looking for any such link.....

Liza

[Guest guest]

Yet another Question........

My oldest son was just diagnosed with Aspergers Syndrome today.

Also depression.

~~~~~

Grace, Aspergers is a part of autism. Aspergers Syndrome is considered " high

level functioning " autism. AS kids need to be taught how to deal with social

issues, organization, and not focusing entirely on whatever they are good at

(think of BIll Gates - he supposedly has AS).

If he isn't getting therapy in school, do write a letter NOW to the school

district for services. Age 3 and over get services from the school district at

no cost to you. However, if you have health insurance, you may want to

supplement his therapy with therapists (OT, PT, Speech) who specialize in AS.

Good luck! BTW, I'm a speech language pathologist with an EDS Variant.

[Guest guest]

Oh Grace!

I am so very sorry to hear this.

Did anyone give you information about this when he was diagnosed?

I will do a search for you if you want and send it off line if you think you

are up to reading bunches.

I am sending tons of blessings and prayers for your son.

What is his name so that I can put him on the prayer chain at my church (If

that is OK with you)

Debbi

AKA: jetskideb

SoCal EDSer

Yet another Question........

My oldest son was just diagnosed with Aspergers Syndrome today.

Also depression. Untill I took matters into my own hands and decided

to ask questions, every said he had ADHD and he was on meds for

that. Anyways....My question is this: I have a print-out from a

book. It was given to me by a cardiologist. On it, is a little

sentence under the symptoms of Ehlers. It says that Autism is

an " other " of the occasional abnormalities. Could Aspergers also be

listed with the abnormalities? Not sure if anyone has the answer to

this but thought I would ask. Thanks a bunch!!! Hope everyone had a

good day. Or at least as good as we can have....lol

HUGGLES,

Grace

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

[Guest guest]

To be clear.

Were you given more than just a print out from a book?

Debbi

AKA: jetskideb

SoCal EDSer

Yet another Question........

My oldest son was just diagnosed with Aspergers Syndrome today.

Also depression. Untill I took matters into my own hands and decided

to ask questions, every said he had ADHD and he was on meds for

that. Anyways....My question is this: I have a print-out from a

book. It was given to me by a cardiologist. On it, is a little

sentence under the symptoms of Ehlers. It says that Autism is

an " other " of the occasional abnormalities. Could Aspergers also be

listed with the abnormalities? Not sure if anyone has the answer to

this but thought I would ask. Thanks a bunch!!! Hope everyone had a

good day. Or at least as good as we can have....lol

HUGGLES,

Grace

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

[Guest guest]

Grace~~

Here are some sites that looked helpful to me.

http://www.isn.net/~jypsy/whataspe.htm

http://maxweber.hunter.cuny.edu/pub/eres/EDSPC715_MCINTYRE/AspergersSyndrome

..html

http://www.udel.edu/bkirby/asperger/

Debbi

AKA: jetskideb

SoCal EDS'er

Yet another Question........

My oldest son was just diagnosed with Aspergers Syndrome today.

Also depression. Untill I took matters into my own hands and decided

to ask questions, every said he had ADHD and he was on meds for

that. Anyways....My question is this: I have a print-out from a

book. It was given to me by a cardiologist. On it, is a little

sentence under the symptoms of Ehlers. It says that Autism is

an " other " of the occasional abnormalities. Could Aspergers also be

listed with the abnormalities? Not sure if anyone has the answer to

this but thought I would ask. Thanks a bunch!!! Hope everyone had a

good day. Or at least as good as we can have....lol

HUGGLES,

Grace

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

[Guest guest]

No, I was only given a print out of about 2 pages.

Grace

EDS, It's a Life Thing

http://www.ehlersdanlos.ca/whateds.htm

RE: Yet another Question........

To be clear.

Were you given more than just a print out from a book?

Debbi

AKA: jetskideb

SoCal EDSer

[Guest guest]

No, I was only given a print out of about 2 pages.

Grace

EDS, It's a Life Thing

http://www.ehlersdanlos.ca/whateds.htm

RE: Yet another Question........

To be clear.

Were you given more than just a print out from a book?

Debbi

AKA: jetskideb

SoCal EDSer

[Guest guest]

No, I was only given a print out of about 2 pages.

Grace

EDS, It's a Life Thing

http://www.ehlersdanlos.ca/whateds.htm

RE: Yet another Question........

To be clear.

Were you given more than just a print out from a book?

Debbi

AKA: jetskideb

SoCal EDSer

[Guest guest]

LOL....Should have finished reading before sending off the other. My oldest son

is just now being diagnosed with the Aspergers and we where told that he

probably has EDS as well. His name is . Could I ask you to add my youngest

too? He has so many problems. Hydrocephalus, Enlarged aorta, Autism, Restless

Leg syndrome, GERD/Reflux, and EDS. There are a few smaller things that we are

working on. His name is Micah. Thank you so much for the prayers!!!!! And yes I

would love any info you can send my way!

Thanks a bunch!!!!

HUGGLES,

Grace

EDS, It's a Life Thing

http://www.ehlersdanlos.ca/whateds.htm

RE: Yet another Question........

Oh Grace!

I am so very sorry to hear this.

Did anyone give you information about this when he was diagnosed?

I will do a search for you if you want and send it off line if you think you

are up to reading bunches.

I am sending tons of blessings and prayers for your son.

What is his name so that I can put him on the prayer chain at my church (If

that is OK with you)

Debbi

AKA: jetskideb

SoCal EDSer

[Guest guest]

I'm interested to hear what kind of information is found on this as well. My

nephew has been diagnosed with Aspergers syndrome, although they say he could be

bi-polar. He's also being medicated for ADHD.

[Guest guest]

Dear Grace,

I am so glad that you were able to find out what is going on with your son.

Still, I know that it must be disturbing to hear sosmething that sounds so

scary.

I worked with a small number of kids who received that diagnosis during the

time I worked as a counselor to elementary aged kids. I have seen these bright

kids, more often than not, move on to succeed with their personal

relationships and academics in a highly competitive envirnment. This disorder,

like most

everything, can run gamult in terms of severity so please do not allow it to

scare you.

Find a good person to help you understand it further annd a good person that

you son can relate to and that will give you feedback on parennting skills

with your son.

Isn't it good to know what you are dealing with?

Take care,

diana