Re: Re: I can't stand it anymore!/JO

[Guest guest]

Thanks Jo,

Thank you Jo for you insightful thoughts . You too are hurting and suffering

so much!Thank you and God Bless!

Love to you too!

S.

Re: I can't stand it anymore!

> Oh , I am so sorry that you are feeling so sore and down

> tonight - wish I cold give you a great big proper hug. I really

> don't know what to say about the NIH situation, that really is a

> pain how long things are dragging on...and it's doubly annoying when

> other things are hanging on those results too. I can sure understand

> your frustration Darl.

>

> As for the county, I'm not sure how things work over there but I was

> wondering if one of your doctors, maybe a GP, surgeon or even the

> NIH guys could write a letter explaining your physical and emotional

> condition due your EDS and whether that would give you some leniency

> and possibly even some allowances and assistance in maintaining

> things to the levels they expect? It's just a thought but it might

> be worth a try.

>

> Hang in there and please know that all your family is here for

> you always. Thinking of you and keeping you in my thoughts and

> prayers.

>

> Love and hugs....Jo

> xxx

>

>

>

>

> To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

>

[Guest guest]

Thanks Jo,

Thank you Jo for you insightful thoughts . You too are hurting and suffering

so much!Thank you and God Bless!

Love to you too!

S.

Re: I can't stand it anymore!

> Oh , I am so sorry that you are feeling so sore and down

> tonight - wish I cold give you a great big proper hug. I really

> don't know what to say about the NIH situation, that really is a

> pain how long things are dragging on...and it's doubly annoying when

> other things are hanging on those results too. I can sure understand

> your frustration Darl.

>

> As for the county, I'm not sure how things work over there but I was

> wondering if one of your doctors, maybe a GP, surgeon or even the

> NIH guys could write a letter explaining your physical and emotional

> condition due your EDS and whether that would give you some leniency

> and possibly even some allowances and assistance in maintaining

> things to the levels they expect? It's just a thought but it might

> be worth a try.

>

> Hang in there and please know that all your family is here for

> you always. Thinking of you and keeping you in my thoughts and

> prayers.

>

> Love and hugs....Jo

> xxx

>

>

>

>

> To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

>

[Guest guest]

Hi ,

I'm so sorry that you are feeling so overwhelmed with no where to turn. I

understand completely. I would love to have things looking nicer too but I just

can't do it and my husgand can't or won't keep up with it all.

I know that my biopsies were sent away, unlike yours but it took a very very

long time to hear anything also. It really is rotten that you can't have the

surgeon help you in anyway until you hear back. I can understand their wanting

to take it careful but it's inhumane not to try and help.

I hope that you hear something soon.

Diand