Re: from Dr. McDonnell regarding Connective Tissue Study

[Guest guest]

Dear Dr. Naz:

Welcome to our family. It's our pleasure to have you with us & want you to

know how much we appreciate, not only yours & Dr. Francomano's interest, but

your true kindness & caring, to us all. We all look forward to a long, pleasant

& productive relationship. Again, welcome!

With tremendous gratitude,

C. Schoenberg, RN

North Central NJ EDNF

Ehlers Danlos Syndrome

It's a way of life

P,S. I truly enjoyed our conversation & am very happy that we spoke of CEDA &

that you have now joined us. Will see you on Dec. 19th at NIH & if I can

personally assist you in anyway both before & after, please feel free to contact

me.

~~~~~~~~~~~~~~~~~~~~~~

In a message dated 8/26/2004 1:38:30 PM Eastern Daylight Time,

mcdonnellna@... writes:

Dear EDS'ers,

We have room for about 100 participants with a diagnosis of EDS in

our study. So far those of you who have written to us and called us

will all be able to participate. I have about 50 calls to make in

response to all the calls and emails I have received so far, so

please be patient with us as we are trying to organize this.

For those of you who are in financial need, we might be able to get

some help through an organization called " angel Flights " . I am hoping

this will work out since some of you live quite far.

We should be able to get you all scheduled in the next week or two so

don't get anxious if you don't hear anything for a few days!

Cheers,

Dr. Naz

[Guest guest]

Welcom Dr. Naz,

So nice to see you here and taking such an interest in us Odd Bods.

It is a pity you can't pass on your enthusiasm and knowledge to

Aussie Doctors.

Sharon (Shazinoz)

Canberra, Australia

HEDS ???

> Dear EDS'ers,

> We have room for about 100 participants with a diagnosis of EDS in

> our study. So far those of you who have written to us and called us

> will all be able to participate. I have about 50 calls to make in

> response to all the calls and emails I have received so far, so

> please be patient with us as we are trying to organize this.

>

> For those of you who are in financial need, we might be able to get

> some help through an organization called " angel Flights " . I am

hoping

> this will work out since some of you live quite far.

>

> We should be able to get you all scheduled in the next week or two

so

> don't get anxious if you don't hear anything for a few days!

> Cheers,

> Dr. Naz