Re: from Dr. McDonnell regarding Connective Tissue Study

[Guest guest]

In a message dated 8/26/2004 10:36:34 AM Pacific Standard Time,

bonnieh4455@... writes:

Dear EDS'ers,

We have room for about 100 participants with a diagnosis of EDS in

our study.

We should be able to get you all scheduled in the next week or two so

don't get anxious if you don't hear anything for a few days!

Cheers,

Dr. Naz

I just got that email also! So & I will get to go!

Liza

[Guest guest]

In a message dated 8/26/2004 10:36:34 AM Pacific Standard Time,

bonnieh4455@... writes:

Dear EDS'ers,

We have room for about 100 participants with a diagnosis of EDS in

our study.

We should be able to get you all scheduled in the next week or two so

don't get anxious if you don't hear anything for a few days!

Cheers,

Dr. Naz

I just got that email also! So & I will get to go!

Liza

[Guest guest]

In a message dated 8/26/2004 10:36:34 AM Pacific Standard Time,

bonnieh4455@... writes:

Dear EDS'ers,

We have room for about 100 participants with a diagnosis of EDS in

our study.

We should be able to get you all scheduled in the next week or two so

don't get anxious if you don't hear anything for a few days!

Cheers,

Dr. Naz

I just got that email also! So & I will get to go!

Liza

[Guest guest]

from Dr. McDonnell regarding Connective Tissue Study

Dear EDS'ers,

We have room for about 100 participants with a diagnosis of EDS in

our study.

We should be able to get you all scheduled in the next week or two so

don't get anxious if you don't hear anything for a few days!

Cheers,

Dr. Naz

~~~~~

Welcome Dr. Naz! We look forward to meeting you and having you on the board.

Bonnie Heintskill

EDS Variant

Milwaukee WI area

[Guest guest]

from Dr. McDonnell regarding Connective Tissue Study

Dear EDS'ers,

We have room for about 100 participants with a diagnosis of EDS in

our study.

We should be able to get you all scheduled in the next week or two so

don't get anxious if you don't hear anything for a few days!

Cheers,

Dr. Naz

~~~~~

Welcome Dr. Naz! We look forward to meeting you and having you on the board.

Bonnie Heintskill

EDS Variant

Milwaukee WI area

[Guest guest]

Re: from Dr. McDonnell regarding Connective Tissue Study

I just got that email also! So & I will get to go!

Liza

~~~~~

Congrats Liza!!

[Guest guest]

Re: from Dr. McDonnell regarding Connective Tissue Study

I just got that email also! So & I will get to go!

Liza

~~~~~

Congrats Liza!!

[Guest guest]

Re: from Dr. McDonnell regarding Connective Tissue Study

I just got that email also! So & I will get to go!

Liza

~~~~~

Congrats Liza!!

[Guest guest]

Welcome Dr. McDonnell!

Welcome to our CEDAfamily!

I for one am just super happy and very proud have you here with us.

I am anxious to meet you in person when I come to the study.

You have gained such a wonderful reputation in such a short while.

See you soon!

Debbi Brown

AKA: jetskideb

from Dr. McDonnell regarding Connective Tissue Study

Dear EDS'ers,

We have room for about 100 participants with a diagnosis of EDS in

our study. So far those of you who have written to us and called us

will all be able to participate. I have about 50 calls to make in

response to all the calls and emails I have received so far, so

please be patient with us as we are trying to organize this.

For those of you who are in financial need, we might be able to get

some help through an organization called " angel Flights " . I am hoping

this will work out since some of you live quite far.

We should be able to get you all scheduled in the next week or two so

don't get anxious if you don't hear anything for a few days!

Cheers,

Dr. Naz

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

[Guest guest]

Welcome Dr. McDonnell!

Welcome to our CEDAfamily!

I for one am just super happy and very proud have you here with us.

I am anxious to meet you in person when I come to the study.

You have gained such a wonderful reputation in such a short while.

See you soon!

Debbi Brown

AKA: jetskideb

from Dr. McDonnell regarding Connective Tissue Study

Dear EDS'ers,

We have room for about 100 participants with a diagnosis of EDS in

our study. So far those of you who have written to us and called us

will all be able to participate. I have about 50 calls to make in

response to all the calls and emails I have received so far, so

please be patient with us as we are trying to organize this.

For those of you who are in financial need, we might be able to get

some help through an organization called " angel Flights " . I am hoping

this will work out since some of you live quite far.

We should be able to get you all scheduled in the next week or two so

don't get anxious if you don't hear anything for a few days!

Cheers,

Dr. Naz

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

[Guest guest]

Dr. Naz,

Welcome to the CEDA family. You are a real special person to take

such an interest in EDS and related connective tissue disorders.

Please know that you make ask any questions you have. We will

always try our best to answer them.

It is great to have you as part of our family. I look foward to

meeting you in October.

Hugs,

Jen

EDS, III

Phoenix, AZ

> Dear EDS'ers,

> We have room for about 100 participants with a diagnosis of EDS in

> our study. So far those of you who have written to us and called

us

> will all be able to participate. I have about 50 calls to make in

> response to all the calls and emails I have received so far, so

> please be patient with us as we are trying to organize this.

>

> For those of you who are in financial need, we might be able to

get

> some help through an organization called " angel Flights " . I am

hoping

> this will work out since some of you live quite far.

>

> We should be able to get you all scheduled in the next week or two

so

> don't get anxious if you don't hear anything for a few days!

> Cheers,

> Dr. Naz

[Guest guest]

Welcome to the Family! I'm semi-new but already have been welcomed with open

arms. So many of my questions have been answered. I still have many but I know

in time things will be answered. Thank you so much for caring so much to be

apart of this family. It takes a very special person, let alone busy Doctor to

do this. Thank you, from the bottom of my heart! Hope you don't get to swamped

with emails. )

HUGGLES,

Grace

EDS, It's a Life Thing

http://www.ehlersdanlos.ca/whateds.htm

from Dr. McDonnell regarding Connective Tissue Study

Dear EDS'ers,

We have room for about 100 participants with a diagnosis of EDS in

our study. So far those of you who have written to us and called us

will all be able to participate. I have about 50 calls to make in

response to all the calls and emails I have received so far, so

please be patient with us as we are trying to organize this.

For those of you who are in financial need, we might be able to get

some help through an organization called " angel Flights " . I am hoping

this will work out since some of you live quite far.

We should be able to get you all scheduled in the next week or two so

don't get anxious if you don't hear anything for a few days!

Cheers,

Dr. Naz

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

[Guest guest]

Welcome to the Family! I'm semi-new but already have been welcomed with open

arms. So many of my questions have been answered. I still have many but I know

in time things will be answered. Thank you so much for caring so much to be

apart of this family. It takes a very special person, let alone busy Doctor to

do this. Thank you, from the bottom of my heart! Hope you don't get to swamped

with emails. )

HUGGLES,

Grace

EDS, It's a Life Thing

http://www.ehlersdanlos.ca/whateds.htm

from Dr. McDonnell regarding Connective Tissue Study

Dear EDS'ers,

We have room for about 100 participants with a diagnosis of EDS in

our study. So far those of you who have written to us and called us

will all be able to participate. I have about 50 calls to make in

response to all the calls and emails I have received so far, so

please be patient with us as we are trying to organize this.

For those of you who are in financial need, we might be able to get

some help through an organization called " angel Flights " . I am hoping

this will work out since some of you live quite far.

We should be able to get you all scheduled in the next week or two so

don't get anxious if you don't hear anything for a few days!

Cheers,

Dr. Naz

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

[Guest guest]

Thanks so much for the message -- so glad you are part of our family here. You

are indeed a very special person and I so look forward to being a part of your

study (I'm somewhere in the + or - 50 calls to be made!!!!!)

Patti Melcher

Vascular EDS (Type IV)

from Dr. McDonnell regarding Connective Tissue Study

Dear EDS'ers,

We have room for about 100 participants with a diagnosis of EDS in

our study. So far those of you who have written to us and called us

will all be able to participate. I have about 50 calls to make in

response to all the calls and emails I have received so far, so

please be patient with us as we are trying to organize this.

For those of you who are in financial need, we might be able to get

some help through an organization called " angel Flights " . I am hoping

this will work out since some of you live quite far.

We should be able to get you all scheduled in the next week or two so

don't get anxious if you don't hear anything for a few days!

Cheers,

Dr. Naz

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

[Guest guest]

Dear Dr. Naz:

Welcome to our family. It's our pleasure to have you with us & want you to

know how much we appreciate, not only yours & Dr. Francomano's interest, but

your true kindness & caring, to us all. We all look forward to a long, pleasant

& productive relationship. Again, welcome!

With tremendous gratitude,

C. Schoenberg, RN

North Central NJ EDNF

Ehlers Danlos Syndrome

It's a way of life

P,S. I truly enjoyed our conversation & am very happy that we spoke of CEDA &

that you have now joined us. Will see you on Dec. 19th at NIH & if I can

personally assist you in anyway both before & after, please feel free to contact

me.

~~~~~~~~~~~~~~~~~~~~~~

In a message dated 8/26/2004 1:38:30 PM Eastern Daylight Time,

mcdonnellna@... writes:

Dear EDS'ers,

We have room for about 100 participants with a diagnosis of EDS in

our study. So far those of you who have written to us and called us

will all be able to participate. I have about 50 calls to make in

response to all the calls and emails I have received so far, so

please be patient with us as we are trying to organize this.

For those of you who are in financial need, we might be able to get

some help through an organization called " angel Flights " . I am hoping

this will work out since some of you live quite far.

We should be able to get you all scheduled in the next week or two so

don't get anxious if you don't hear anything for a few days!

Cheers,

Dr. Naz