Re: Re: Lana - NIH/Prosthetics/Jo

[Guest guest]

Jo get in the NIH with Dr. Francomano and Dr. Nazli Mc!

McDonnellNa @grc.nia.nih.gov

or

Love, S.

Re: Lana - NIH/Prosthetics

> Jo, I'm sure they get patients from all over the WORLD! I know Mayo

> does anyway!!! Hang in there, we're pulling for you!

>

> Love Lana

>

>

>

> > Lana, thanks so much for the brainstorming Darl, I really

> appreciate

> > your thoughts and concerns for me! Was just curious as to whether

> > Mayo or the NIH study would be an option for me with me living in

> UK

> > rather than America? Do they accept patients from overseas? I a

> > hoping to get more info and support form Prof when I stay at the

> > hospital next month, but if I don't get much joy there than the

> > above may just become a bigger possibility for me.

> >

> > Bless you Lana, the prosthetic information is just as appreciated

> as

> > I know that may also be an option eventually too. You're such a

> gem

> > and I am truly blessed to have such a wonderful friend :-)

> >

> > Love and hugs....Jo

> > xxx

>

>

>

>

> To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

>

[Guest guest]

Jo,

Go for it!! They know there stuff and can make recommendations that our

normal Dr's don't know about or what to look for. They are excellent! They

can help us all!

Hugs and Love Jo!

S.

Re: Lana - NIH/Prosthetics/Jo

> Thanks , I seriously considering it now! Have even discussed

> the option with my parents and plan to get more info at the very

> least. Can't hurt can it?!

>

> Love and hugs...Jo

> xx

>

>

>

>

> To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

>