Guest guest Posted May 23, 2004 Report Share Posted May 23, 2004 Bonnie, This is not the general rule actually, it sounds like this little fella's wrap is too tight. It can be loosened with a dilator and ought to be depending upon when he had this procedure done. The procedure is not designed to prevent vomiting and burping, but if the wrap is too tight, this happens. Typically, it's adjusted at a later time, after the surgical site has healed well. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2004 Report Share Posted May 23, 2004 Bonnie, This is not the general rule actually, it sounds like this little fella's wrap is too tight. It can be loosened with a dilator and ought to be depending upon when he had this procedure done. The procedure is not designed to prevent vomiting and burping, but if the wrap is too tight, this happens. Typically, it's adjusted at a later time, after the surgical site has healed well. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2004 Report Share Posted May 23, 2004 Thanks for the info Jill... like I said..I don't have much experience with them' Re: Fundoplication Bonnie, This is not the general rule actually, it sounds like this little fella's wrap is too tight. It can be loosened with a dilator and ought to be depending upon when he had this procedure done. The procedure is not designed to prevent vomiting and burping, but if the wrap is too tight, this happens. Typically, it's adjusted at a later time, after the surgical site has healed well. Jill To learn more about EDS, visit our website: http://www.ehlersdanlos.ca ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2004 Report Share Posted May 23, 2004 Thanks for the info Jill... like I said..I don't have much experience with them' Re: Fundoplication Bonnie, This is not the general rule actually, it sounds like this little fella's wrap is too tight. It can be loosened with a dilator and ought to be depending upon when he had this procedure done. The procedure is not designed to prevent vomiting and burping, but if the wrap is too tight, this happens. Typically, it's adjusted at a later time, after the surgical site has healed well. Jill To learn more about EDS, visit our website: http://www.ehlersdanlos.ca ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 23, 2004 Report Share Posted May 23, 2004 it is common for children who have this but less so in adults. It is a procedure of last resort though, most definitely. Jill Re: Fundoplication Thanks for the info Jill... like I said..I don't have much experience with them' Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2004 Report Share Posted July 21, 2004 duv002; Thank you for your reply to my question. " almost weighs too much " ; that is amazing. They had my girl on ensure for awhile; but she refuses to drink it now. She still has not been to the gi specialist for several reasons and will go on the 30th. (I don't hold a great deal of hope for them finding anything; as I no longer have confidence in doctors. I don¹t want them doing an upper gi; much less surgery.) She has put on a few pounds but quickly loses them. She is still eating high carb/protein bars in the middle of the night. Eating takes up a majority of her day: finding food she can eat; eating it; recovering from it. She gets so frustrated. We all do. Thanks again for the reply On 7/21/04 3:42 AM, " ceda " ceda > wrote: > > Subject: Re: Fundoplication > > >> Hello all >> >> Doctors have been thinking of doing a fundoplication (to > strenghten the LES >> - Lower Esophageal Sphincter). Has anyone had this done? How far > does one >> let it go before they do this surgery? Anyone with any other > suggestions? >> I was told (in my own case) that should Barrett's esophagus be > found that >> one would need a endoscopy every six months -- do they do this in > EDS cases >> with Barrett's? > > I was researching something when I came across this question of > yours about fundoplication. I have a nephew who had this done at age > three. He had had a bad case of reflux as an infant. They found out > he was born without the scphinchter at the bottom of the esophagus. > They made one for him and called it a 'fundoplication'. ... > Anyway--my dear nephew became healthy and grew through the years > needing a new surgery to replace the gadget to fit every few years. > Once at age 16, a kid at school socked him in the gut ~ so he had to > have emergency surgery. He's now in his early 20's and doing great-- > is almost weighing too much (shhh). He's a wonderfully bright and > sucessful young man. That's my experince with Fundoplication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2004 Report Share Posted July 21, 2004 duv002; Thank you for your reply to my question. " almost weighs too much " ; that is amazing. They had my girl on ensure for awhile; but she refuses to drink it now. She still has not been to the gi specialist for several reasons and will go on the 30th. (I don't hold a great deal of hope for them finding anything; as I no longer have confidence in doctors. I don¹t want them doing an upper gi; much less surgery.) She has put on a few pounds but quickly loses them. She is still eating high carb/protein bars in the middle of the night. Eating takes up a majority of her day: finding food she can eat; eating it; recovering from it. She gets so frustrated. We all do. Thanks again for the reply On 7/21/04 3:42 AM, " ceda " ceda > wrote: > > Subject: Re: Fundoplication > > >> Hello all >> >> Doctors have been thinking of doing a fundoplication (to > strenghten the LES >> - Lower Esophageal Sphincter). Has anyone had this done? How far > does one >> let it go before they do this surgery? Anyone with any other > suggestions? >> I was told (in my own case) that should Barrett's esophagus be > found that >> one would need a endoscopy every six months -- do they do this in > EDS cases >> with Barrett's? > > I was researching something when I came across this question of > yours about fundoplication. I have a nephew who had this done at age > three. He had had a bad case of reflux as an infant. They found out > he was born without the scphinchter at the bottom of the esophagus. > They made one for him and called it a 'fundoplication'. ... > Anyway--my dear nephew became healthy and grew through the years > needing a new surgery to replace the gadget to fit every few years. > Once at age 16, a kid at school socked him in the gut ~ so he had to > have emergency surgery. He's now in his early 20's and doing great-- > is almost weighing too much (shhh). He's a wonderfully bright and > sucessful young man. That's my experince with Fundoplication. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2004 Report Share Posted July 21, 2004 Clear DayI am age 38 and have HEDS... I had a Fundoplication in 1995 after years of problems and medication. I was advised to have the surgery as there was a possability that the damage caused by the continual acid reflux may cause cancer in later life. I'm happy to answer any questions. Vee UK .................................................................. > Doctors have been thinking of doing a fundoplication (to strenghten the LES > - Lower Esophageal Sphincter). Has anyone had this done? How far does one > let it go before they do this surgery? Anyone with any other suggestions? > I was told (in my own case) that should Barrett's esophagus be found that > one would need a endoscopy every six months -- do they do this in EDS cases > with Barrett's? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2004 Report Share Posted July 22, 2004 Clear DayHi Bernie I'm sorry your daughter is having these problems. As a child I was very similar to how your daughter is as in being very underweight, only being able to eat small amounts at a time. Nausea, heartburn. When I was 22 I began to have more problems as in having episodes of abdominal pain and vomiting. I was actually working at the time on a Gastrointestinal Ward and I got some good advice from the doctors there. I had already been prescribed various meds by my GP - Cimetidine, Domperidome, Ranitidine, Pyrogastrone - you name it I tried it. I then had a Gastroscopy and was told I had a Hiatus Hernia and was prescribed Prepulsid (Cisapride) - this Med has now been withdrawn due to severe side-effects but I still receive it via a named patient basis direct from he manufacturer as I am severely intolerant to all the other meds which are used to treat the symptoms as they are Phenothiazines. Things did temporarily settle then worsened and that's when it was decided I needed the Fundo... Has this surgery been suggested to your daughter ? Sorry but I've missed some threads. I do still need to take meds as things have worsened again - I was told the tightening may have slackened - I take 20mg Cispride twice daily and 40mg Nexium (Esomeprazole) daily. Hope this helps ! Vee (UK) ................................................... ----- Message: 20 Date: Wed, 21 Jul 2004 17:42:06 -0400 Subject: RE: Fundoplication Hi Vee: I'm interested in what symptoms you were having. My 17 yr old is an exceedingly picky eater, very underweight, can only eat tiny amts. at some sittings, lots of nausea after meals or during (all the time), heartburn but over last few months is having food come up into her mouth so forcefully it will go up the back of her nose during a meal or also afterwards......needs to drink extra fluid with meals but no real episodes of vomiting. I know she is not eating enough and has particular difficulty tolerating meat, handles rare roast beef and steak best. Does any of this sound familiar. What if any medications or strategies were helpful. Bernie Quote Link to comment Share on other sites More sharing options...
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