Fundoplication

[Guest guest]

Clear DayI am age 38 and have HEDS... I had a Fundoplication in 1995 after years

of problems and medication.

I was advised to have the surgery as there was a possability that the damage

caused by the continual acid reflux may cause cancer in later life.

I'm happy to answer any questions.

Vee

UK

..................................................................

> Doctors have been thinking of doing a fundoplication (to

strenghten the LES

> - Lower Esophageal Sphincter). Has anyone had this done? How far

does one

> let it go before they do this surgery? Anyone with any other

suggestions?

> I was told (in my own case) that should Barrett's esophagus be

found that

> one would need a endoscopy every six months -- do they do this in

EDS cases

> with Barrett's?

[Guest guest]

Clear DayHi Bernie

I'm sorry your daughter is having these problems.

As a child I was very similar to how your daughter is as in being very

underweight, only being able to eat small amounts at a time. Nausea, heartburn.

When I was 22 I began to have more problems as in having episodes of abdominal

pain and vomiting. I was actually working at the time on a Gastrointestinal

Ward and I got some good advice from the doctors there. I had already been

prescribed various meds by my GP - Cimetidine, Domperidome, Ranitidine,

Pyrogastrone - you name it I tried it. I then had a Gastroscopy and was told I

had a Hiatus Hernia and was prescribed Prepulsid (Cisapride) - this Med has now

been withdrawn due to severe side-effects but I still receive it via a named

patient basis direct from he manufacturer as I am severely intolerant to all the

other meds which are used to treat the symptoms as they are Phenothiazines.

Things did temporarily settle then worsened and that's when it was decided I

needed the Fundo... Has this surgery been suggested to your daughter ? Sorry

but I've missed some threads.

I do still need to take meds as things have worsened again - I was told the

tightening may have slackened - I take 20mg Cispride twice daily and 40mg Nexium

(Esomeprazole) daily.

Hope this helps !

Vee

(UK)

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----- Message: 20

Date: Wed, 21 Jul 2004 17:42:06 -0400

Subject: RE: Fundoplication

Hi Vee:

I'm interested in what symptoms you were having. My 17 yr old is an

exceedingly picky eater, very underweight, can only eat tiny amts. at

some sittings, lots of nausea after meals or during (all the time),

heartburn but over last few months is having food come up into her mouth

so forcefully it will go up the back of her nose during a meal or also

afterwards......needs to drink extra fluid with meals but no real

episodes of vomiting. I know she is not eating enough and has

particular difficulty tolerating meat, handles rare roast beef and steak

best. Does any of this sound familiar. What if any medications or

strategies were helpful.

Bernie