EDS III bladder and foot surgery

July 6, 2004

dear all,

does any one know if there is anything known on HEDS and bladder

surgery?

THe doctor is wanting to start with borax injections 20 in total in

the wall of my bladder

if that is not working he is gona have to try something else ( dont

know what that would be though)

but is this something that can be complicated by EDS?

Are there any artikels on bladder problems with EDS people?

Then the ortho is having trouble treating my leg

i have night splints for fascia plantaris infections(inflammation?)

but we can not put enough traction on it cuz my nerves are not long

enough and everything goes to sleep

so he put me in day splints as well but that is messing up my good

knee terribly becuz the walking makes me over extend my knee and it is

to the point where i ve already seem to have quite alot of damage on

the cartilage

one option he gave me was to treet the fascia with laser therapy ( he

described it like he was going to grind something with the laser like

kidney stones) but it is an expensive therapy so i wunder if any one

has any experience with it.

Is there any other option for fascia problems?

In the mean time does any one have any idea what to do with the knee,

i have a regular genutrain S knee brace that is a soft hinged

kneebrace but it seems like i m still hyperextending

thanks

take care

ina

orthobeer@...

July 6, 2004

Ina -

You mentioned a couple of problem areas - bladder and foot. Is

there some connection between HEDS and bladder problems? I don't

know for certain but suspect there is just from the number of posts

in the last few months discussing things like bladder prolapse. And

this makes logical sense because of the ligamentous attachments to

the bladder that hold and suspend it within the abdominal cavity.

The other complication is the number of women who have had

hysterectomies. This allows the visceral organs (including the

bladder) to shift from their natural position just to fill the

resulting void space. Are there non-surgical alternatives? Most

definitely, but it depends on what your specific bladder problem is

and you don't say in your post. Feel free to email me off-list if

you are not comfortable discussing it via open post. We will be on

the road most of the day today with an expected ETA Memphis of

sometime around 7:00 tonight. We will then be there until the

morning of the 8th and I expect to be spending quite a bit of time

tomorrow on the laptop.

You also asked about fascia concerns involving your foot.

Specifically, " Is there any other option for fascia problems? "

besides surgery and expensivelaser treatments. Depending on just

exactly what your problem is, there most definitely are effective,

non-invasive and relatively inexpenisve options. Again, however, I

need more detail to adequately respond to your question.

And I will end with one of my own...where do you live?

> dear all,

>

> does any one know if there is anything known on HEDS and bladder

> surgery?

> THe doctor is wanting to start with borax injections 20 in total in

> the wall of my bladder

> if that is not working he is gona have to try something else ( dont

> know what that would be though)

> but is this something that can be complicated by EDS?

> Are there any artikels on bladder problems with EDS people?

>

> Then the ortho is having trouble treating my leg

> i have night splints for fascia plantaris infections(inflammation?)

> but we can not put enough traction on it cuz my nerves are not long

> enough and everything goes to sleep

> so he put me in day splints as well but that is messing up my good

> knee terribly becuz the walking makes me over extend my knee and

it is

> to the point where i ve already seem to have quite alot of damage

on

> the cartilage

> one option he gave me was to treet the fascia with laser therapy (

he

> described it like he was going to grind something with the laser

like

> kidney stones) but it is an expensive therapy so i wunder if any

one

> has any experience with it.

> Is there any other option for fascia problems?

>

> In the mean time does any one have any idea what to do with the

knee,

> i have a regular genutrain S knee brace that is a soft hinged

> kneebrace but it seems like i m still hyperextending

>

> thanks

> take care

> ina

> orthobeer@s...

July 6, 2004