Re:pain in hips & Need info re:scoliosis in adults. Having surgery

[Guest guest]

________________________________________________________________________

>Dear Marla, I go through something similar with my

hips. It is hard to get going in the am, but my pain

is the worst and i can hardly walk by the time it's 2

or3 pm. Recently I went to my ortho because I have

been in so much pain and it's gone into my lower back

too. I have had upper and mid back pain for years.

two years ago I had a cervical fusion. I need to have

some more surgery done to improve my curve the

thoracolumbar and my kyposis. My doctor is a teacher

at UC where they have a scoliosis center. I am

hoping the he will get somw geed feedback for our next

appt. in late August. I am writing to all of you in

the hopes that someone has had surgery for

degenerative scoliosis with hypermoble EDS aas well.

The doctors are so afraid of my poor healing factors,

etc, etc... Any info that you might share with me

will be so helpful. I will try and write more often,

but I have been very down:( and writing and phoning

are not wasy for me. Getting out of the house is ver

hard, so I am housebound most days. I will miss all

of you that are going to be at the learning conf. If

there uis someone I can contact with regard to getting

some conf. info, who whould that be? Thanks for

listening. I hope to hear from you soon.

(((HUGS)))

Rickie

Murphey________________________________________________________________________

>

> Message: 1

> Date: Mon, 17 May 2004 19:34:52 -0700

>

> Subject: Re: Clunking hip(s)? Or hip(s) jamming?

>

> This sounds like me. It happens every morning when I

> get up. It's

> usually my left hip. It hurts and I have to hobble

> around until it

> " pops " , then it's ok. I can actually hear & feel the

> " pop " . It will also

> happen after I've been sitting awhile ( which I try

> not to do). My right

> hip is affected by my sciatic nerve, so getting out

> of bed in the

> morning is a real eye opener due to the pain at

> first. Then of course my

> left knee (which I had surgery on last year) has to

> go through it's

> popping too. Don't know of anything to do for this.

> I've never asked my

> doc, just figured it was loose ligaments. And with

> me being pregnant,

> I've had even more looseness. So I guess we are

> destined to " snap,

> crackle & pop " .

>

> Marla

> HEDS

> CA

>

> Rhea wrote:

>

> >Hi Everyone,

> >

> >Anyone else have hips that will clunk or even grate

> at times while

> >walking? What about hips getting stuck in one

> position? Right from

> >the age of 9 my R hip would seem to slip a bit

> while I was lying

> >down. It would get stuck somewhere in joint where

> I couldn't

> >physically sit up until I wiggeled around a bit and

> got it unjammed.

> >In the last 2-3 years its started to pull this

> trick when I get up

> >off a sofa/bench/toliet and I have to push on the

> front of my thigh

> >until it clunks and I'm fine. Other times even

> while walking it

> >won't get completely stuck but will all of a sudden

> change positions

> >slightly just so that weightbearing is incredibly

> painful until it

> >goes back to whatever position it likes to be in.

> My hips are next

> >in line for my physical therapist (poor guy! At

> least I gave him a

> >forewarning this time ;-) ) who thinks its more

> likely that my hip is

> >slipping around a little and jamming in the socket

> (much like my

> >shoulder does) but doesn't actually dislocate as

> hips are usually the

> >hardest joint to pop out in a passive way. But he

> hasn't done his

> >official assessment on them yet. I'm just curious

> to see if others

> >have hip issues too that sound similar to this.

> >

> >I was just out doing shopping at Walmart with my

> service dog Hannah

> >(who has come leaps and bounds with her people

> shyness and is turning

> >into the best little s-dog ever!) and I did 30 mins

> slow walking

> >(ermm limping) and a bit of standing in line before

> sitting for

> >another 30 mins or so at Mcs and now have had

> to take a

> >percocet for the hip pain. Some days it just gets

> stiff with

> >shopping while my spine, knees, and ankles are the

> worst, but usually

> >the hips are pretty tempermental.

> >

> >Soo...someone please tell me that they can clone us

> new bodies!

> >

> >BTW any other Canadians getting a bit of this heat

> wave? **grin**

> >

> >((((HUGS)))) and many thanks for the support from

> my special CEDA

> >family.

> >

> >-Rhea

> >

> >

> >

> >To learn more about EDS, visit our website:

> http://www.ehlersdanlos.ca

> >