Re: feeling awful... failing BHR or not???

May 27, 2004

Dear Sunita,

First of all, I'm glad you consulted with Dr. DeSmet. I would get

the tests even if I had to pay for them so you can " know " what the

problem is. And now, even though I know it's tons easier to say

than do, try to not worry until you get the test results. And then,

if there is a problem, you can get it treated.

I would keep closely in touch with Dr. DeSmet and do whatever he

recommends. He is just so so experienced.

Would it make you feel any better to ask Dr. DeSmet what treatment

there is if you should have either of those problems? Then maybe he

can reassure you that there is a treatment that will be ok and not

as bad as you imagine.

Good luck to you and let us know what happens!

Susie

> This will mean even more to and Lari and Elenore who have had

problems recovering and maybe some others out there but I need to

talk about it!

> As some of you know I have had pain and " slow " recovery from the

start (R BHR January 6, 2004 with De Smet); lately though it seemed

like I was going slowly uphill and I was hopeful and then two weeks

ago after a slightly longer walk than usual I started to have more

pain and since then it has even increased and I cannot do my daily

walks (which were about 20 minutes); if I want to walk more than one

or two blocks I have to go back to the cane.

> Yesterday I saw a surgeon here in Vancouver who dismissed my

concerns saying that healing can take up to 9 months to a year.

Never heard of such thing on this board though! then I sent an email

to De Smet to tell him what was happening and he responded right

away saying I should have a bonescan and blood test to check if I

don't have AVN or infection. So now I am scared and so so so

disapointed about the whole thing! On top of this, I will have to

fight to get these tests done here and even probably will have to

pay myself to have it done in a timely manner.

>

> Here it is in writing how awful I feel and the future looks blink

at this point. However who knows?

>

> thanks for listening

> Sunita

>

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