Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 , I'm not sure it's a 'proven' fact or not, but I do think that MOST EDSers have low bone density, especially the older ones. I also have bone-on-bone and bone spurs and large areas of herniation in my cervical spine, diagnosed as moderately severe cervical spinal stenosis. I wasn't all that surprised that Dylan had low bone density. Cindy said Brady also has cervical spinal stenosis, which I 'assume' means that he too has low bone density. In fact, if Cindy has never had a bone density test for HERSELF, I think she should be having one done, since they said there's not doubt she has EDS too! Love Lana > I thought it interesting that the Doctors said Dylan probably has low bone density. > > had a bone density test not long ago because she broke her ribs from coughing. > It confirmed that she does have low bone density. > > For now, she just has to take calcium pills. She has to be rechecked often, they say. > > She was x-rayed in the urgent care last week after getting bounced around in her friend's jeep while 4-wheeling. It showed no spaces between her vertebrae in the thoracic area, and what looked to be the start of bone spurs. > I'm not quite sure what to think about that! > > I haven't heard anyone mention low bone density in EDS before. But, the doctor in urgent care was asking all about me and , cause he's treated many times before, and mentioned EDS. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 > I haven't heard anyone mention low bone density in EDS before. But, the doctor in urgent care was asking all about me and , cause he's treated many times before, and mentioned EDS. , There are two studies on bone density in EDS. You can read them both here: http://www.edstoday.org/newsletter/Issue3.htm Click the link for Full Text Online. It will open the PDF file of the Spring-Summer issue of EDS Today. -Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 The EDNF board had several posts from folks with low bone density, so it's not unusual. My question is just why we get it more easily? Couple of theories.....if our intestines are messed up, it's possible we are not absorbing enough calcium or magnesium from our diets. Malabsorption is very common in many auto-immune disorders, which many EDS symptoms mimic. Also, many drugs we could be taking interfere with calcium absorption and/or leach calcium from our systems (asthma steroidal drugs in my case) Just taking calcium supplements isn't effective also, if there isn't enough magnesium, boron, zinc & vitamin D to get it where it is actually needed...a good supplement will have more than just calcium. Also, since it takes weight-bearing activity to build strong bones, if we're hurting and not exercising anough, we aren't replacing normal bone loss due to aging at the very least! Also, many dietary habits can leach calcium from bones very quickly. Anyone who drinks soda for instance should be supplementing with good calcium. Dairy products aren't the best sources of calcium....too many folks can't properly digest the dairy for one....and green veggies are a better, more absorbable source too! Liza Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 The EDNF board had several posts from folks with low bone density, so it's not unusual. My question is just why we get it more easily? Couple of theories.....if our intestines are messed up, it's possible we are not absorbing enough calcium or magnesium from our diets. Malabsorption is very common in many auto-immune disorders, which many EDS symptoms mimic. Also, many drugs we could be taking interfere with calcium absorption and/or leach calcium from our systems (asthma steroidal drugs in my case) Just taking calcium supplements isn't effective also, if there isn't enough magnesium, boron, zinc & vitamin D to get it where it is actually needed...a good supplement will have more than just calcium. Also, since it takes weight-bearing activity to build strong bones, if we're hurting and not exercising anough, we aren't replacing normal bone loss due to aging at the very least! Also, many dietary habits can leach calcium from bones very quickly. Anyone who drinks soda for instance should be supplementing with good calcium. Dairy products aren't the best sources of calcium....too many folks can't properly digest the dairy for one....and green veggies are a better, more absorbable source too! Liza Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2004 Report Share Posted August 21, 2004 In a message dated 8/19/2004 9:49:09 A.M. US Mountain Standard Time, kdavis@... writes: http://www.edstoday.org/newsletter/Issue3.htm I am not able to read these articles. I am 38 years old and am already on medication for osteoperosis. I was told my bones are extremely brittle in my hip and spinal areas. Any info would be appreciated. Thanks Joanna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 21, 2004 Report Share Posted August 21, 2004 In a message dated 8/19/2004 9:49:09 A.M. US Mountain Standard Time, kdavis@... writes: http://www.edstoday.org/newsletter/Issue3.htm I am not able to read these articles. I am 38 years old and am already on medication for osteoperosis. I was told my bones are extremely brittle in my hip and spinal areas. Any info would be appreciated. Thanks Joanna Quote Link to comment Share on other sites More sharing options...
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