Guest guest Posted July 25, 2011 Report Share Posted July 25, 2011 Just heard from the clinic - apparently the MRI of my brain (yay, I've got proof I've got one!) are " normal " . Next step is neuro consults... at least they found enough weirdnesses on physical exam the other day to not just think I'm crazy.... T in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com " You get a wonderful view from the point of no return... " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2011 Report Share Posted July 25, 2011 Well, its a good news/bad news thing, right? Good news that things are normal, bad news that they don't know what it is yet. At least they found enough abnormal that they are still looking. Good luck.Tina Just heard from the clinic - apparently the MRI of my brain (yay, I've got proof I've got one!) are " normal " . Next step is neuro consults... at least they found enough weirdnesses on physical exam the other day to not just think I'm crazy.... T in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com " You get a wonderful view from the point of no return... " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2011 Report Share Posted July 26, 2011 It seems like you should have and MRI of your spine, too. My daughter has all sorts of symptoms but nothing shows up on MRIs for her. Hang in there!hugs SharonThis email is a natural hand made product. The slight variations in spelling and grammar enhance its individual character and beauty and in no way are to be considered flaws or defects. To: MSersLife Sent: Monday, July 25, 2011 6:10 PMSubject: MRI results Just heard from the clinic - apparently the MRI of my brain (yay, I've gotproof I've got one!) are "normal". Next step is neuro consults... atleast they found enough weirdnesses on physical exam the other day to notjust think I'm crazy....T in WY Practical Blackwork Designs http://practicalblackwork.comhttp://practical-blackwork.blogspot.com "You get a wonderful view from the point of no return..." ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2011 Report Share Posted July 26, 2011 .., I'm confused here. You mean you've never had an actual diagnosis of MS? What are your symptoms? I would think having a clear scan would be a good thing ... hugs, Cait RE: Re: MRI results Just the brain so far - one of the things they were looking for wasevidence of strokes.Actually, thank God they DIDN'T want to do the spine in this particularmachine - my shoulders were smushed up like a taco shell just to get my headfar enough in! They're going to have to send me elsewhere for spine...We'll see... in WYPractical Blackwork Designshttp://practicalblackwork.comhttp://practical-blackwork.blogspot.com "You get a wonderful view from the point of no return..."-----Original Message-----From: MSersLife [mailto:MSersLife ] On BehalfOf Reb DSent: Tuesday, July 26, 2011 2:40 AMTo: MSersLife Subject: Re: MRI results Did they do an MRI of the spine as well? Some times the lesions on the spineseem to cause more significant problems than those in the brain. Anyway,it's good they keep investigating, hopefully they will find some answers. There is also a possibility of the diagnosis "atypical MS" (or whatever theequivalent would be in English). It's a diagnosis used when someone hassymptoms of MS, but not enough clinical findings to support a "typical" MSdiagnosis. The reason for that is because studies have shown that the peoplewith atypical MS are helped by MS medication just as much as those with thetypical findings. Therefor it makes sense to use a diagnosis that will"allow" the use of those medications. Congratulations and good luck!love/Reb>> Just heard from the clinic - apparently the MRI of my brain (yay, I've got> proof I've got one!) are "normal". Next step is neuro consults... at> least they found enough weirdnesses on physical exam the other day to not> just think I'm crazy....> > T> > in WY > Practical Blackwork Designs > http://practicalblackwork.com> http://practical-blackwork.blogspot.com > > "You get a wonderful view from the point of no return..."> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2011 Report Share Posted July 26, 2011 .., I'm confused here. You mean you've never had an actual diagnosis of MS? What are your symptoms? I would think having a clear scan would be a good thing ... hugs, Cait RE: Re: MRI results Just the brain so far - one of the things they were looking for wasevidence of strokes.Actually, thank God they DIDN'T want to do the spine in this particularmachine - my shoulders were smushed up like a taco shell just to get my headfar enough in! They're going to have to send me elsewhere for spine...We'll see... in WYPractical Blackwork Designshttp://practicalblackwork.comhttp://practical-blackwork.blogspot.com "You get a wonderful view from the point of no return..."-----Original Message-----From: MSersLife [mailto:MSersLife ] On BehalfOf Reb DSent: Tuesday, July 26, 2011 2:40 AMTo: MSersLife Subject: Re: MRI results Did they do an MRI of the spine as well? Some times the lesions on the spineseem to cause more significant problems than those in the brain. Anyway,it's good they keep investigating, hopefully they will find some answers. There is also a possibility of the diagnosis "atypical MS" (or whatever theequivalent would be in English). It's a diagnosis used when someone hassymptoms of MS, but not enough clinical findings to support a "typical" MSdiagnosis. The reason for that is because studies have shown that the peoplewith atypical MS are helped by MS medication just as much as those with thetypical findings. Therefor it makes sense to use a diagnosis that will"allow" the use of those medications. Congratulations and good luck!love/Reb>> Just heard from the clinic - apparently the MRI of my brain (yay, I've got> proof I've got one!) are "normal". Next step is neuro consults... at> least they found enough weirdnesses on physical exam the other day to not> just think I'm crazy....> > T> > in WY > Practical Blackwork Designs > http://practicalblackwork.com> http://practical-blackwork.blogspot.com > > "You get a wonderful view from the point of no return..."> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2011 Report Share Posted July 26, 2011 My darling, until a couple of weeks ago I had not seen a doctor of any kind for anything except a couple of " spot repairs " (stitches, emergency eye surgery) since 1986. After military doctors using me as a " teaching device " (look how easily her joints come apart! Look how far her skin stretches! ) or trying to kill me (ask me about bleeding to death, or how it feels to still be sort of conscious with a blood glucose of 26 ) I would have been very very happy to never experience Medical Care again. But in the last few years, I've experienced pretty much every classic symptom but paralysis and TN, and the symptomology doesn't really " go " with anything else. A clear brain scan IS good on a couple of levels - I ain't got no giant brain tumor, and I apparently have NOT been having strokes. Alas, it's not necessarily indicative of NOT having MS or MG either one (or both!) - just means I don't have visible lesions in my brain.... I don't like to be touched by strangers, I don't like explaining symptoms over and over, I can't stand to travel any more (and every medical resource available to me is at LEAST an hour and a half away on a nice summer day) So I was really really praying for Instant Obvious Diagnosis. T in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com " You get a wonderful view from the point of no return... " Re: Re: MRI results .., I'm confused here. You mean you've never had an actual diagnosis of MS? What are your symptoms? I would think having a clear scan would be a good thing ... hugs, Cait Re: MRI results Did they do an MRI of the spine as well? Some times the lesions on the spine seem to cause more significant problems than those in the brain. Anyway, it's good they keep investigating, hopefully they will find some answers. There is also a possibility of the diagnosis " atypical MS " (or whatever the equivalent would be in English). It's a diagnosis used when someone has symptoms of MS, but not enough clinical findings to support a " typical " MS diagnosis. The reason for that is because studies have shown that the people with atypical MS are helped by MS medication just as much as those with the typical findings. Therefor it makes sense to use a diagnosis that will " allow " the use of those medications. Congratulations and good luck! love /Reb > > Just heard from the clinic - apparently the MRI of my brain (yay, I've got > proof I've got one!) are " normal " . Next step is neuro consults... at > least they found enough weirdnesses on physical exam the other day to not > just think I'm crazy.... > > T > > in WY > Practical Blackwork Designs > http://practicalblackwork.com > http://practical-blackwork.blogspot.com > > " You get a wonderful view from the point of no return... " > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2011 Report Share Posted July 26, 2011 My darling, until a couple of weeks ago I had not seen a doctor of any kind for anything except a couple of " spot repairs " (stitches, emergency eye surgery) since 1986. After military doctors using me as a " teaching device " (look how easily her joints come apart! Look how far her skin stretches! ) or trying to kill me (ask me about bleeding to death, or how it feels to still be sort of conscious with a blood glucose of 26 ) I would have been very very happy to never experience Medical Care again. But in the last few years, I've experienced pretty much every classic symptom but paralysis and TN, and the symptomology doesn't really " go " with anything else. A clear brain scan IS good on a couple of levels - I ain't got no giant brain tumor, and I apparently have NOT been having strokes. Alas, it's not necessarily indicative of NOT having MS or MG either one (or both!) - just means I don't have visible lesions in my brain.... I don't like to be touched by strangers, I don't like explaining symptoms over and over, I can't stand to travel any more (and every medical resource available to me is at LEAST an hour and a half away on a nice summer day) So I was really really praying for Instant Obvious Diagnosis. T in WY Practical Blackwork Designs http://practicalblackwork.com http://practical-blackwork.blogspot.com " You get a wonderful view from the point of no return... " Re: Re: MRI results .., I'm confused here. You mean you've never had an actual diagnosis of MS? What are your symptoms? I would think having a clear scan would be a good thing ... hugs, Cait Re: MRI results Did they do an MRI of the spine as well? Some times the lesions on the spine seem to cause more significant problems than those in the brain. Anyway, it's good they keep investigating, hopefully they will find some answers. There is also a possibility of the diagnosis " atypical MS " (or whatever the equivalent would be in English). It's a diagnosis used when someone has symptoms of MS, but not enough clinical findings to support a " typical " MS diagnosis. The reason for that is because studies have shown that the people with atypical MS are helped by MS medication just as much as those with the typical findings. Therefor it makes sense to use a diagnosis that will " allow " the use of those medications. Congratulations and good luck! love /Reb > > Just heard from the clinic - apparently the MRI of my brain (yay, I've got > proof I've got one!) are " normal " . Next step is neuro consults... at > least they found enough weirdnesses on physical exam the other day to not > just think I'm crazy.... > > T > > in WY > Practical Blackwork Designs > http://practicalblackwork.com > http://practical-blackwork.blogspot.com > > " You get a wonderful view from the point of no return... " > Quote Link to comment Share on other sites More sharing options...
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