temperature regulation

[Guest guest]

Temperature regulation problems?

Yes but not as you describe.

I have dysautonomia and my hot and cold is all whacky.

My brother when he was a very little boy used to spike temps as you

describe.

50+ years ago all they did was a spinal tap and that was neg.

No temp problems for him since then.

He gets really bad migraines like me and my dad used to too. Not sure if

that is at all related.

My temp spikes have more to do with environmental issues coupled with my

autonomic system overreacting. more complicated that that but that will do

for now.

I run a low normal @ -97 degree but I have heard that is pretty typical for

most of us.

Debbi

AKA: jetskideb

SoCal EDS'er

questions

Hi all, I have a few questions.

My daughter Kaitlyn, was dx Oppositional defiance disorder in june. Does

anyone know if this could have anything to do w EDS? Also does anyone else

have temperature regulation problems? When we get a fever it skyrockets and

can easily produce febrile seizures. My son Lodin was given singulair

granules to begin treatring his athsma. He is 15 months. We gave him 1 dose

and he got hotter and hotter, and went from being healthy to seizing from a

105-106 temp. he was seizing for almost 2 minutes and was rushed to the

hospital in an ambulance. according to the papers that came along with the

meds it said fever was a serious side effect, and possibly seizures, however

the dr.'s have sworn up and down that there is no way that it could have

caused this. However within 4 or 5 hrs after this happened and he slept for

most of this time he was perfectly healthy again. I have not given him more

after that one dose.

Any ideas? I applied for my hubby and both kids when I sent my info to nih.

Thanks in advance,

Autumn