Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 Once again, we have an opportunity here to talk about what it means to be part of the EDS FAMILY. And we ARE a family, with everything that entails. There is a high probability that most of you reading this will not have a clue as to what it is about because the involved post was almost immediately removed from the archives. I would not have known about it either if Barb had not forwarded it to me off-list last night. In brief, TJ was writing an off-list, personal email to her mother. She was using previous posts as examples of her earlier perceptions of me compared to after I met with her. In her words via off-list to me last night: " A letter in the past that had went through the group - had given me the impression that you were too " into yourself " which was changed by letters following but the reason is simple- , your letter at that time was " hurried " due to having to get back on the road. I was showing her the difference- because of my first opinion and how that opinion was changed- the group had no idea of what conversation had been exchanged between my mother or myself .' In other words, she thought she was off-list when she was in fact still live on the CEDA list when she hit send. How many of us have NOT in the past done the " Oooops – hit send too soon " routine? I vividly remember a couple of instances myself in recent months where I came very, very close to unsubcribing myself for the very same reason. But because of that " finger slip " and TJ's incorrect assumption that I am going to have hurt feelings over it, she has decided to remove herself from the list. By this open post and off-list email to her personally, I am asking (pleading, begging?) that she not take herself off. We ARE A FAMILY and the loss of one diminishes us all. Truth of the matter is that I AM highly opinionated, and for very good reason. Had this not come up, I would have totally missed Carole Ehlers' post. And Carole made a statement that cuts to the heart of everything I am and am trying to do. " Since there is no doctor in western medicine that specializes in soft tissue and since our soft tissues are so fragile we need to be looking for more alternatives for this type of pain relief. " Not only do western medicine doctors not specialize in soft tissue issues, they are NOT EVEN TRAINED IN IT in medical school. There is ZERO meaningful teaching in medical schools in the United States on Fascia, Lymphatics, or the Cranialsacral system. I know this from talking to nurses and doctors. And if they don't teach about something they at least recognize exists, how much less training do you think they get about aspects of the body which they DENY exists? Specifically, I refer to the energetic components which are the foundation of Eastern based medicine. Simply put, they can't treat what they don't understand. The ONLY things they know how to do are surgery and drugs. There ARE alternatives, and some of them are extremely effective. That has been the underlying purpose of this two and a half month road trip – to try to get a better grip on those alternatives which have the most potential for successful results for soft tissue issues. Not only are these alternatives non-invasive, many of them can be easily taught for self-use, without having to take drugs or make expensive trips to see a doctor. In wrapping this up, I also need to make one other comment. None of this is about ME. It has never been about ME. It is about US. I started developing some ideas and theories over a year ago. I needed people to work on who actually had the various conditions to test/prove/disprove them. In the last six weeks, I have worked on in excess of 70 people and put in more than 120 hours of " hands-on " time, while driving over 9000 miles in 27 states. Some of the results have simply defied belief and I will be the first to admit it. Have I " proved " anything yet? Not to the satisfaction of " western medicine, " although I did get the serious attention of at least one heavy hitter in the field. Have I " proved " anything to myself yet? Absolutely. If not an absolute answer, I am now totally convinced that this is the right approach and that very serious efforts need to be made in this direction. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2004 Report Share Posted August 3, 2004 Thanks, Mike, for the clarification. TJ, please do not feel like you need to remove yourself from this family! As Mike stated, " We ARE A FAMILY and the loss of one diminishes us all. " You have been very helpful on the list, and that's what it's all about - not about making mistakes. I'm also sure that all of us have, at one time or another, hurt another of their family's feelings, and hopefully were forgiven - especially because they ARE family. We all make mistakes, and you do not need to seek forgiveness for being a member of this family - in my opinion, anyway. Love Lana > Once again, we have an opportunity here to talk about what it means > to be part of the EDS FAMILY. And we ARE a family, with everything > that entails. > > There is a high probability that most of you reading this will not > have a clue as to what it is about because the involved post was > almost immediately removed from the archives. I would not have > known about it either if Barb had not forwarded it to me off-list > last night. In brief, TJ was writing an off-list, personal email to > her mother. She was using previous posts as examples of her earlier > perceptions of me compared to after I met with her. In her words > via off-list to me last night: > > " A letter in the past that had went through the group - had given me > the impression that you were too " into yourself " which was changed > by letters following but the reason is simple- , your letter at that > time was " hurried " due to having to get back on the road. > > I was showing her the difference- because of my first opinion and > how that opinion was changed- the group had no idea of what > conversation had been exchanged between my mother or myself .' > > In other words, she thought she was off-list when she was in fact > still live on the CEDA list when she hit send. > > How many of us have NOT in the past done the " Oooops – hit send too > soon " routine? I vividly remember a couple of instances myself in > recent months where I came very, very close to unsubcribing myself > for the very same reason. > > But because of that " finger slip " and TJ's incorrect assumption that > I am going to have hurt feelings over it, she has decided to remove > herself from the list. By this open post and off-list email to her > personally, I am asking (pleading, begging?) that she not take > herself off. > > We ARE A FAMILY and the loss of one diminishes us all. > > Truth of the matter is that I AM highly opinionated, and for very > good reason. Had this not come up, I would have totally missed > Carole Ehlers' post. And Carole made a statement that cuts to the > heart of everything I am and am trying to do. > > " Since there is no doctor in western medicine that specializes in > soft tissue and since our soft tissues are so fragile we need to be > looking for more alternatives for this type of pain relief. " > > Not only do western medicine doctors not specialize in soft tissue > issues, they are NOT EVEN TRAINED IN IT in medical school. There is > ZERO meaningful teaching in medical schools in the United States on > Fascia, Lymphatics, or the Cranialsacral system. I know this from > talking to nurses and doctors. And if they don't teach about > something they at least recognize exists, how much less training do > you think they get about aspects of the body which they DENY > exists? Specifically, I refer to the energetic components which are > the foundation of Eastern based medicine. Simply put, they can't > treat what they don't understand. The ONLY things they know how to > do are surgery and drugs. > > There ARE alternatives, and some of them are extremely effective. > That has been the underlying purpose of this two and a half month > road trip – to try to get a better grip on those alternatives which > have the most potential for successful results for soft tissue > issues. Not only are these alternatives non-invasive, many of them > can be easily taught for self-use, without having to take drugs or > make expensive trips to see a doctor. > > In wrapping this up, I also need to make one other comment. None of > this is about ME. It has never been about ME. It is about US. I > started developing some ideas and theories over a year ago. I > needed people to work on who actually had the various conditions to > test/prove/disprove them. In the last six weeks, I have worked on > in excess of 70 people and put in more than 120 hours of " hands- on " > time, while driving over 9000 miles in 27 states. Some of the > results have simply defied belief and I will be the first to admit > it. Have I " proved " anything yet? Not to the satisfaction > of " western medicine, " although I did get the serious attention of > at least one heavy hitter in the field. Have I " proved " anything to > myself yet? Absolutely. If not an absolute answer, I am now > totally convinced that this is the right approach and that very > serious efforts need to be made in this direction. Quote Link to comment Share on other sites More sharing options...
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