Re: Are there any dislocated hip resurfacers out there?

[Guest guest]

Hi Linton

Congratulations and best wishes.

Who was the OS who said nothing could be done. It may help others to know -

did he do resurfacing or total hip replacement

Rog BHR both hips 2001 Treacy

Are there any dislocated hip resurfacers out there?

> Is there anyone in the group who has had a resurfacing following a

> dislocated hip? ie. the femural head being forced through the

> acetabulum.

> This happened to me in a road traffic accident and having had my

> pelvis reconstructed my hip almost immediately completely seized up

> with heterotopic ossification(ectopic bone formation) leaving me

> completely unable to walk without crutches or a very short distance

> with a stick. My OS here in the UK told me there was nothing he

> could do and was concerned the head may die(AVN)in which case he

> would fuse the hip together!!

> Obviously I was devastated.

> Since then I found Dr De Smet's site and after I read his

> publication on heterotopic ossification I contacted him and sent him

> my x-rays. He thinks I probably also have OA and now suddenly I'm

> nearly 6 weeks away from becoming a fellow surfacehippy. Everything

> I have heard about the good doctor gives me hope but obviously I've

> got worries.

> Has anyone in the group had any similar experience?, from the

> messages I have read so far I seem to be a bit of a rare case.

>

> Any comments appreciated.

>

> Linton

>

>

>

>

>

>

[Guest guest]

Hi Linton

Congratulations and best wishes.

Who was the OS who said nothing could be done. It may help others to know -

did he do resurfacing or total hip replacement

Rog BHR both hips 2001 Treacy

Are there any dislocated hip resurfacers out there?

> Is there anyone in the group who has had a resurfacing following a

> dislocated hip? ie. the femural head being forced through the

> acetabulum.

> This happened to me in a road traffic accident and having had my

> pelvis reconstructed my hip almost immediately completely seized up

> with heterotopic ossification(ectopic bone formation) leaving me

> completely unable to walk without crutches or a very short distance

> with a stick. My OS here in the UK told me there was nothing he

> could do and was concerned the head may die(AVN)in which case he

> would fuse the hip together!!

> Obviously I was devastated.

> Since then I found Dr De Smet's site and after I read his

> publication on heterotopic ossification I contacted him and sent him

> my x-rays. He thinks I probably also have OA and now suddenly I'm

> nearly 6 weeks away from becoming a fellow surfacehippy. Everything

> I have heard about the good doctor gives me hope but obviously I've

> got worries.

> Has anyone in the group had any similar experience?, from the

> messages I have read so far I seem to be a bit of a rare case.

>

> Any comments appreciated.

>

> Linton

>

>

>

>

>

>

[Guest guest]

Hi ,

Thanks for your support.

I know my OS does THA, I don't know whether he does resurfacing but

when he told me if I developed AVN he would fuse the hip and said he

would put a silver lining in I asked a bit naively and

desperately " is that resurfacing? " , he just said no.

I assume that means he does'nt do resurfacing ??

Linton

> Hi Linton

> Congratulations and best wishes.

> Who was the OS who said nothing could be done. It may help others

to know -

> did he do resurfacing or total hip replacement

>

> Rog BHR both hips 2001 Treacy

>

> Are there any dislocated hip resurfacers

out there?

>

>

> > Is there anyone in the group who has had a resurfacing following

a

> > dislocated hip? ie. the femural head being forced through the

> > acetabulum.

> > This happened to me in a road traffic accident and having had my

> > pelvis reconstructed my hip almost immediately completely seized

up

> > with heterotopic ossification(ectopic bone formation) leaving me

> > completely unable to walk without crutches or a very short

distance

> > with a stick. My OS here in the UK told me there was nothing he

> > could do and was concerned the head may die(AVN)in which case he

> > would fuse the hip together!!

> > Obviously I was devastated.

> > Since then I found Dr De Smet's site and after I read his

> > publication on heterotopic ossification I contacted him and sent

him

> > my x-rays. He thinks I probably also have OA and now suddenly I'm

> > nearly 6 weeks away from becoming a fellow surfacehippy.

Everything

> > I have heard about the good doctor gives me hope but obviously

I've

> > got worries.

> > Has anyone in the group had any similar experience?, from the

> > messages I have read so far I seem to be a bit of a rare case.

> >

> > Any comments appreciated.

> >

> > Linton

> >

> >

> >

> >

> >

> >

[Guest guest]

Hi Linton,

I had a fused hip for 35 years.......... it is something to be

avoided........... it is only a long term solution if there isn't any other

possibilities and one is at least 65............ They really only have a

10-15 year life time before they cause unending troubles to the rest of the

body and generally have to be taken down..........the term they use to

convert to a hip replacement............ So you can wonder why they wouldn't

just do a THR.............or more ideally a Resurface.

I think you will find the good Dr DeSmet will do grafts etc to the other

side to make the cup stable and you will get a lot of your life

back.......... and you may as well start with a Resurface, if at all

possible, because it will help keep bone and later options..........

As for the silver lining............ you have no idea how much just reading

that in a line with the word fused hip caused my body to wince............

While he could be saying that they would put something in there that would

make it easier to unpick later - my OS is the only one in Aust capable of

doing that so you are talking rare events - there isn't much about a fused

hip that makes for seeing silver linings............. though I guess it is

better than a wheel chair short term.........

Edith LBHR Dr. L Walter Syd Aust 8/02

> Hi ,

>

> Thanks for your support.

>

> I know my OS does THA, I don't know whether he does resurfacing but

> when he told me if I developed AVN he would fuse the hip and said he

> would put a silver lining in I asked a bit naively and

> desperately " is that resurfacing? " , he just said no.

> I assume that means he does'nt do resurfacing ??

>

> Linton

[Guest guest]

Hi Linton,

I had a fused hip for 35 years.......... it is something to be

avoided........... it is only a long term solution if there isn't any other

possibilities and one is at least 65............ They really only have a

10-15 year life time before they cause unending troubles to the rest of the

body and generally have to be taken down..........the term they use to

convert to a hip replacement............ So you can wonder why they wouldn't

just do a THR.............or more ideally a Resurface.

I think you will find the good Dr DeSmet will do grafts etc to the other

side to make the cup stable and you will get a lot of your life

back.......... and you may as well start with a Resurface, if at all

possible, because it will help keep bone and later options..........

As for the silver lining............ you have no idea how much just reading

that in a line with the word fused hip caused my body to wince............

While he could be saying that they would put something in there that would

make it easier to unpick later - my OS is the only one in Aust capable of

doing that so you are talking rare events - there isn't much about a fused

hip that makes for seeing silver linings............. though I guess it is

better than a wheel chair short term.........

Edith LBHR Dr. L Walter Syd Aust 8/02

> Hi ,

>

> Thanks for your support.

>

> I know my OS does THA, I don't know whether he does resurfacing but

> when he told me if I developed AVN he would fuse the hip and said he

> would put a silver lining in I asked a bit naively and

> desperately " is that resurfacing? " , he just said no.

> I assume that means he does'nt do resurfacing ??

>

> Linton

[Guest guest]

Hi Edith,

I think there is a little confusion. My OS wants to permanently fuse

my hip if I develop AVN, it seems almost barbaric! He offered me no

alternative.

Dr De Smet is going to cut out the ectopic bone that has caused my

hip to sieze up and then resurface the hip due to the damage caused

when it dislocated.

Like me I assume you must have lost a lot of muscle while your hip

was fused. How much did you manage to get back afterwards?

Linton

> Hi Linton,

>

> I had a fused hip for 35 years.......... it is something to be

> avoided........... it is only a long term solution if there isn't

any other

> possibilities and one is at least 65............ They really only

have a

> 10-15 year life time before they cause unending troubles to the

rest of the

> body and generally have to be taken down..........the term they

use to

> convert to a hip replacement............ So you can wonder why

they wouldn't

> just do a THR.............or more ideally a Resurface.

>

> I think you will find the good Dr DeSmet will do grafts etc to the

other

> side to make the cup stable and you will get a lot of your life

> back.......... and you may as well start with a Resurface, if at

all

> possible, because it will help keep bone and later

options..........

>

> As for the silver lining............ you have no idea how much

just reading

> that in a line with the word fused hip caused my body to

wince............

> While he could be saying that they would put something in there

that would

> make it easier to unpick later - my OS is the only one in Aust

capable of

> doing that so you are talking rare events - there isn't much about

a fused

> hip that makes for seeing silver linings............. though I

guess it is

> better than a wheel chair short term.........

>

> Edith LBHR Dr. L Walter Syd Aust 8/02

>

> > Hi ,

> >

> > Thanks for your support.

> >

> > I know my OS does THA, I don't know whether he does resurfacing

but

> > when he told me if I developed AVN he would fuse the hip and

said he

> > would put a silver lining in I asked a bit naively and

> > desperately " is that resurfacing? " , he just said no.

> > I assume that means he does'nt do resurfacing ??

> >

> > Linton

[Guest guest]

Hi Edith,

I think there is a little confusion. My OS wants to permanently fuse

my hip if I develop AVN, it seems almost barbaric! He offered me no

alternative.

Dr De Smet is going to cut out the ectopic bone that has caused my

hip to sieze up and then resurface the hip due to the damage caused

when it dislocated.

Like me I assume you must have lost a lot of muscle while your hip

was fused. How much did you manage to get back afterwards?

Linton

> Hi Linton,

>

> I had a fused hip for 35 years.......... it is something to be

> avoided........... it is only a long term solution if there isn't

any other

> possibilities and one is at least 65............ They really only

have a

> 10-15 year life time before they cause unending troubles to the

rest of the

> body and generally have to be taken down..........the term they

use to

> convert to a hip replacement............ So you can wonder why

they wouldn't

> just do a THR.............or more ideally a Resurface.

>

> I think you will find the good Dr DeSmet will do grafts etc to the

other

> side to make the cup stable and you will get a lot of your life

> back.......... and you may as well start with a Resurface, if at

all

> possible, because it will help keep bone and later

options..........

>

> As for the silver lining............ you have no idea how much

just reading

> that in a line with the word fused hip caused my body to

wince............

> While he could be saying that they would put something in there

that would

> make it easier to unpick later - my OS is the only one in Aust

capable of

> doing that so you are talking rare events - there isn't much about

a fused

> hip that makes for seeing silver linings............. though I

guess it is

> better than a wheel chair short term.........

>

> Edith LBHR Dr. L Walter Syd Aust 8/02

>

> > Hi ,

> >

> > Thanks for your support.

> >

> > I know my OS does THA, I don't know whether he does resurfacing

but

> > when he told me if I developed AVN he would fuse the hip and

said he

> > would put a silver lining in I asked a bit naively and

> > desperately " is that resurfacing? " , he just said no.

> > I assume that means he does'nt do resurfacing ??

> >

> > Linton

[Guest guest]

Hi,

I would totally agree that permanently fusing your hip or anyones hip is a

tad barbaric in this day and age......... At the worst if one looses

everything in the future I am going to opt for having a jello lump.........

rather than let them re-fuse it........ I have heard of people getting by

with that and figure it better than the stress of a fused hip.......... In

fact I think I would even take to a wheel chair at this point rather than go

through it again.....

Great that you have found a Dr in De Smet who will help.......... there are

some wonderful surgeons out there who just see things like this as a normal

daily challenge rather than impossible.......... and I for one owe a great

deal to them.......... Mine set out to pick the fused hip apart before he

put the resurface on........not an easy feat after 35 years and only a

glimmer of a line to follow on an xray to where it had been.....

Yes most of the muscle had gone.......... shaddows appeared on the MRI and

the best he could promise me pre op was a dreadful limp.......... My son was

somewhat terrified as he studies these things at uni and all the texts

suggest long term atrophied muscles simply don't rebuild.......... but there

is always this unexpected thing about humans and what the texts say........

I refused to read them and/or believe it and just went to work to reclaim my

leg............

Almost 2 years later I have a hotch potch of muscles that continue to grow

stronger.......... some developed faster than others and parts of my leg

looks a bit like a weight lifters where there is pits in other bits where

not

a lot is happening yet.......... but I refuse to give up on those bits and

will soon get more specific about tackling various ones......... I am going

to take up learning about muscle development via hydratherepy which will

help me as well........ I walk with less and less limp and at times inside

hardly notice it now........... the leg still easily tires though which

suggests that the muscles are still fairly weak but my son tells me that

will improve with time........ And I can swim 12 laps of a big pool so it

isn't too bad........

The ROM has been the biggest battle......... not doing too well there at

all - though the surgeon seems to think I am doing well.......... Being hard

on myself I guess..........but it seems difficult to get anything stretched

past 75 deg........ so it seems the muscles will come back strength wise

well before they come back flexible..........which I think is about what

everyone else here finds.........

All the best with your endeavours and again so glad Dr. DeSmet will

help..........

Edith LBHR Dr. L Walter Syd Aust 8/02

>

> I think there is a little confusion. My OS wants to permanently fuse

> my hip if I develop AVN, it seems almost barbaric! He offered me no

> alternative.

>

> Dr De Smet is going to cut out the ectopic bone that has caused my

> hip to sieze up and then resurface the hip due to the damage caused

> when it dislocated.

>

> Like me I assume you must have lost a lot of muscle while your hip

> was fused. How much did you manage to get back afterwards?

>

> Linton

>

>

> > Hi Linton,

[Guest guest]

Hi,

I would totally agree that permanently fusing your hip or anyones hip is a

tad barbaric in this day and age......... At the worst if one looses

everything in the future I am going to opt for having a jello lump.........

rather than let them re-fuse it........ I have heard of people getting by

with that and figure it better than the stress of a fused hip.......... In

fact I think I would even take to a wheel chair at this point rather than go

through it again.....

Great that you have found a Dr in De Smet who will help.......... there are

some wonderful surgeons out there who just see things like this as a normal

daily challenge rather than impossible.......... and I for one owe a great

deal to them.......... Mine set out to pick the fused hip apart before he

put the resurface on........not an easy feat after 35 years and only a

glimmer of a line to follow on an xray to where it had been.....

Yes most of the muscle had gone.......... shaddows appeared on the MRI and

the best he could promise me pre op was a dreadful limp.......... My son was

somewhat terrified as he studies these things at uni and all the texts

suggest long term atrophied muscles simply don't rebuild.......... but there

is always this unexpected thing about humans and what the texts say........

I refused to read them and/or believe it and just went to work to reclaim my

leg............

Almost 2 years later I have a hotch potch of muscles that continue to grow

stronger.......... some developed faster than others and parts of my leg

looks a bit like a weight lifters where there is pits in other bits where

not

a lot is happening yet.......... but I refuse to give up on those bits and

will soon get more specific about tackling various ones......... I am going

to take up learning about muscle development via hydratherepy which will

help me as well........ I walk with less and less limp and at times inside

hardly notice it now........... the leg still easily tires though which

suggests that the muscles are still fairly weak but my son tells me that

will improve with time........ And I can swim 12 laps of a big pool so it

isn't too bad........

The ROM has been the biggest battle......... not doing too well there at

all - though the surgeon seems to think I am doing well.......... Being hard

on myself I guess..........but it seems difficult to get anything stretched

past 75 deg........ so it seems the muscles will come back strength wise

well before they come back flexible..........which I think is about what

everyone else here finds.........

All the best with your endeavours and again so glad Dr. DeSmet will

help..........

Edith LBHR Dr. L Walter Syd Aust 8/02

>

> I think there is a little confusion. My OS wants to permanently fuse

> my hip if I develop AVN, it seems almost barbaric! He offered me no

> alternative.

>

> Dr De Smet is going to cut out the ectopic bone that has caused my

> hip to sieze up and then resurface the hip due to the damage caused

> when it dislocated.

>

> Like me I assume you must have lost a lot of muscle while your hip

> was fused. How much did you manage to get back afterwards?

>

> Linton

>

>

> > Hi Linton,

[Guest guest]

Hi Linton,

Well very best of luck with it..........and from all we hear Dr. DeSmet is

about the best place to start to get some resolution..........

I cringe thinking about a dislocation, 'relocation' followed by major pelvic

reconstruction......... I think you are right, getting a resurface and

getting better will be a piece of cake after that..............

Keep us all posted.............

Edith LBHR 8/02

>

> Sorry I'm late replying, managed to get away for a few days.......I

> guess if you got your leg moving after 35 years I stand a reasonable

> chance after 10 months..........and hopefully nothing can be worse

> than overcoming the dislocation, " relocation " followed by major

> pelvic reconstruction I went through over an 8 day period, it was a

> bit of an ordeal !! Tomorrows the day I send Dr De Smet the money

> then there's no going back........less than 4 weeks now till I fly

> out. I'm just hoping the surgeons over here in UK did'nt do

> something that will make Dr De Smet's work impossible......I'll

> think about your struggles when I'm out and trying to get things

> moving again.

>

> Linton

[Guest guest]

Hi Linton,

Well very best of luck with it..........and from all we hear Dr. DeSmet is

about the best place to start to get some resolution..........

I cringe thinking about a dislocation, 'relocation' followed by major pelvic

reconstruction......... I think you are right, getting a resurface and

getting better will be a piece of cake after that..............

Keep us all posted.............

Edith LBHR 8/02

>

> Sorry I'm late replying, managed to get away for a few days.......I

> guess if you got your leg moving after 35 years I stand a reasonable

> chance after 10 months..........and hopefully nothing can be worse

> than overcoming the dislocation, " relocation " followed by major

> pelvic reconstruction I went through over an 8 day period, it was a

> bit of an ordeal !! Tomorrows the day I send Dr De Smet the money

> then there's no going back........less than 4 weeks now till I fly

> out. I'm just hoping the surgeons over here in UK did'nt do

> something that will make Dr De Smet's work impossible......I'll

> think about your struggles when I'm out and trying to get things

> moving again.

>

> Linton

[Guest guest]

Hi Linton,

Well very best of luck with it..........and from all we hear Dr. DeSmet is

about the best place to start to get some resolution..........

I cringe thinking about a dislocation, 'relocation' followed by major pelvic

reconstruction......... I think you are right, getting a resurface and

getting better will be a piece of cake after that..............

Keep us all posted.............

Edith LBHR 8/02

>

> Sorry I'm late replying, managed to get away for a few days.......I

> guess if you got your leg moving after 35 years I stand a reasonable

> chance after 10 months..........and hopefully nothing can be worse

> than overcoming the dislocation, " relocation " followed by major

> pelvic reconstruction I went through over an 8 day period, it was a

> bit of an ordeal !! Tomorrows the day I send Dr De Smet the money

> then there's no going back........less than 4 weeks now till I fly

> out. I'm just hoping the surgeons over here in UK did'nt do

> something that will make Dr De Smet's work impossible......I'll

> think about your struggles when I'm out and trying to get things

> moving again.

>

> Linton