update on Crystal

[Guest guest]

No one has to read this i just thought I'd kinda update you on

Crystal. The past few days she has not been herself she is normally a

very perky person always willing to help. I've noticed shes just

stayed in bed alot and shes not eating much at all. She has been

throwing up alot and this morning I caught her and she was throwing

up blood. I took her to the emergency room and her Dr's are still not

sure what it is but they said they know it has to do with her EDS.

Her heart rate has been low her Dr's say she has just fought her

whole life with her cancer she had and all and she is just exausted

her body just doesnt want to fight hard anymore. But Crystal want to

come home and she fights her Dr's till she gets her way. So I'll

bring her home in the morning. Her dr did tell me though she really

should stay in touch with others that have EDS and all of you are the

only ones i know. She has never really stayed in touch with anyone

particular. Her dr says it's just hard for her to explain to all of

us even him about her EDS because we dont have it and dont knpw how

she feels or what it's like. and we know there is alot she wont tell

us shes just not one to complain. I know she'll get on the computer

when she gets home tomarrow I'm just hoping she'll talk to you guys

more or maybe if someone emails her I'm not sure i just know she

needs the support I and her family and Dr's try but not having EDS

makes it hard to understand at times. I get angery ate her at times

for not doing something forgetting that she is different because her

sydrome until she walks is not very visible on the outside. i just

feel awful when i do that because she never fights me back. But just

thought if someone had the time they could throw her an email but if

not i understand.

Thanks, Tammy