Re: Re: Cardiac problems/Jo

[Guest guest]

Jo --

I know it is very hard not to be upset with the doctors like your GP - and you

have right to be bitter towards him. Your cardiologists seem to really want to

get to the bottom of this and find out what is going on - they are on your side

and sound like they will do all they can to help. I know the cardiologist I

deal with is very thorough and has become familar with VEDS. He rigorously

explores any symptoms I have and told me he will not take any chances with me

because of the VEDS and the dissections. So, try to have some faith in your

cardiologists - they will find out what is wrong (this is, after all, their

field!!).

Any time you want to talk, I'm here. Having dealt with cardiac issues in the

past, I may be able to help (at least, lend you a shoulder to lean on!!)

You can email me off list if you want -- pmelcher@...

Take care,

Love, Patti

Re: Cardiac problems/Jo

I just wanted to thank everyone for their support and encouragement

following my cardiac issues on Thursday, you really have been a huge

help to me. I have to confess that I am struggling to get my head

around it all and I'm incredibly scared and emotional. I spent this

afternoon talking it all over with my parents and for the first time

we all admitted out in the open just how scared we all are of what

is happening to me. I am trying hard to stay positive but I just

feel consumed by my fears at the moment.

I am very tired of all the tests but I don't mind going through as

many as needed to get to the bottom of this and hopefully get some

help managing or controlling it. I think the hardest part for me is

knowing how my GP has ignored this issue for so long telling me it

was nothing to worry about....the cardiologists are horrified this

hasn't been investigated properly. This Go has constantly told me he

doesn't think it's anything important and the best of all was his

statement that I have " too high an expectation of the medical

profession for wanting to know what is causing this " !! I just can't

help thinking that if he'd done his job I may not have ended up in

collapsing and being told I probably had a dissection. Bitter? Too

right I'm bitter.....

Anyway, I am trying not to get wound up as he isn't worth putting

myself back in hospital with another attack of whatever is wrong

with my heart. But it is hard not to feel angry.

Thanks again for all of your care, consideration and wonderful

support - it means the world to me.

Love and hugs....Jo

xxx

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