RE: NIH findings so far//Cindy

[Guest guest]

Do you know if NIH provide you with the actual copies of the blood tests

and copies of the Echo, MRA etc. reports?

Cindy, you must be exhausted form assimilating what all this information

means for Dylan's future. Did they provide or hint at prognosis with

each of these different identified problems....or were they even willing

to venture an educated guess?

Bernie

Re: NIH findings so far/

In a message dated 8/19/2004 1:56:40 PM Eastern Daylight Time,

c-clark05@... writes:

All the other tests, we already have the results for. We will have a

complete

written report in about a month. But the Dr will email me today with all

the

findings in so far,

Hi Cindy,

I really enjoyed talking with you today! I hope we didn't use up your

month's

supply of minutes on your cell!

Don't forget that there is a TON of blood tests that they did or are

doing.

MOst of those will be for research purposes only but will be interesting

to see

what they come up with.