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Re: ..... list members passed away /Gail I.?Cindy H

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Dear Cindy,

If you feel it appropriate, as I've said, please pass on my note to ,

with my e-mail included. I included my e-mail at the end of the note in case

he wants to get in touch at any time in the future.

So, please send from the beginning of my note to , to the end of my

post, which includes my e-mail addy, if you would be so kind.

The last thing I want to feel is he ought to reply; there is no need, I

only sincerely hope it will help him at this difficult time to know how many

people his Mum reached, including our family in the U.K. Should he ever want

to get in touch, I included my e-mail " just in case " he wanted to know more

about the EDS & Chiari association at some future date. I know more now,

which might be helpful to ; a paper is going to be published on this

association later this year by the Drs. at the Chiari Institute in N.Y.

Cindy, thank you for your kind reply & understanding. I'm so pleased to read

that you & Doris became such great friends, & you were there for her. I know

I feel privileged to have known her " just a little " from the ceda list, &

will not forget her,

Thinking of you,

Gail

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