re: jo and cardiac problems

[Guest guest]

Dear Jo,

Am so sorry you are going through all this. I had similar problems back

about 18 years ago, winding up with a heart catherization. I eventually was

put on 2 different medications, both affecting the heart in different ways-a

calcium channel blocker and a beta blocker. They worked well for many years.

Eventually, about 6 years ago I was taken off all my heart meds. Then, this

spring I had chest pain-the first time I attributed it to having moved the

wrong way. (Last year I was able--thank God--to return to my passion,

working in Open Heart Surgery ICU as an RN). Then, about 3 days later, it

happened at work. My rhythm was stable-PVCs or extra beats are quite common,

but my blood pressure was high. One of the cardiologists I work with

suggested a stress test and he felt the results were a false positive. Then,

in August, I was given a new test called a CCTA (coronary CT arteriogram).

It is a new type of diagnostic scan that shows plaque and blockages with

just a small amount of dye injected. This CT takes 16 pictures a second. It

showed two 50% blockages, one in a major vessel. Now I am on meds again and

no recurrance of the pain or pressure.

I am in my late 50's, but wanted to tell you that I understood what you

are feeling and how scary it is!

Hang in there! Things will get better. SVT can make you feel like you

are coming out of your skin, I hope all is under control now and that you

will be feeling better soon!.

Gentle hugs,

Sue J.

[Guest guest]

Hi Sue: Your note re obtaining excellent medical investigation and

treatment was so encouraging. I find that getting the docs to take a 17

yr. olds complaints seriously and following up with proper investigation

so frustrating but am so glad to hear that perseverance resulted in good

treatment for you. Hang in there Jo! Despite the annoyance of all

these upcoming tests, obviously they can lead to effective treatment.

Bernie

re: jo and cardiac problems

Dear Jo,

Am so sorry you are going through all this. I had similar problems

back

about 18 years ago, winding up with a heart catherization. I eventually

was

put on 2 different medications, both affecting the heart in different

ways-a

calcium channel blocker and a beta blocker. They worked well for many

years.

Eventually, about 6 years ago I was taken off all my heart meds. Then,

this

spring I had chest pain-the first time I attributed it to having moved

the

wrong way. (Last year I was able--thank God--to return to my passion,

working in Open Heart Surgery ICU as an RN). Then, about 3 days later,

it

happened at work. My rhythm was stable-PVCs or extra beats are quite

common,

but my blood pressure was high. One of the cardiologists I work with

suggested a stress test and he felt the results were a false positive.

Then,

in August, I was given a new test called a CCTA (coronary CT

arteriogram).

It is a new type of diagnostic scan that shows plaque and blockages with

just a small amount of dye injected. This CT takes 16 pictures a second.

It

showed two 50% blockages, one in a major vessel. Now I am on meds again

and

no recurrance of the pain or pressure.

I am in my late 50's, but wanted to tell you that I understood what

you

are feeling and how scary it is!

Hang in there! Things will get better. SVT can make you feel like

you

are coming out of your skin, I hope all is under control now and that

you

will be feeling better soon!.

Gentle hugs,

Sue J.

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

[Guest guest]

Hi Sue: Your note re obtaining excellent medical investigation and

treatment was so encouraging. I find that getting the docs to take a 17

yr. olds complaints seriously and following up with proper investigation

so frustrating but am so glad to hear that perseverance resulted in good

treatment for you. Hang in there Jo! Despite the annoyance of all

these upcoming tests, obviously they can lead to effective treatment.

Bernie

re: jo and cardiac problems

Dear Jo,

Am so sorry you are going through all this. I had similar problems

back

about 18 years ago, winding up with a heart catherization. I eventually

was

put on 2 different medications, both affecting the heart in different

ways-a

calcium channel blocker and a beta blocker. They worked well for many

years.

Eventually, about 6 years ago I was taken off all my heart meds. Then,

this

spring I had chest pain-the first time I attributed it to having moved

the

wrong way. (Last year I was able--thank God--to return to my passion,

working in Open Heart Surgery ICU as an RN). Then, about 3 days later,

it

happened at work. My rhythm was stable-PVCs or extra beats are quite

common,

but my blood pressure was high. One of the cardiologists I work with

suggested a stress test and he felt the results were a false positive.

Then,

in August, I was given a new test called a CCTA (coronary CT

arteriogram).

It is a new type of diagnostic scan that shows plaque and blockages with

just a small amount of dye injected. This CT takes 16 pictures a second.

It

showed two 50% blockages, one in a major vessel. Now I am on meds again

and

no recurrance of the pain or pressure.

I am in my late 50's, but wanted to tell you that I understood what

you

are feeling and how scary it is!

Hang in there! Things will get better. SVT can make you feel like

you

are coming out of your skin, I hope all is under control now and that

you

will be feeling better soon!.

Gentle hugs,

Sue J.

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

[Guest guest]

Hi Sue: Your note re obtaining excellent medical investigation and

treatment was so encouraging. I find that getting the docs to take a 17

yr. olds complaints seriously and following up with proper investigation

so frustrating but am so glad to hear that perseverance resulted in good

treatment for you. Hang in there Jo! Despite the annoyance of all

these upcoming tests, obviously they can lead to effective treatment.

Bernie

re: jo and cardiac problems

Dear Jo,

Am so sorry you are going through all this. I had similar problems

back

about 18 years ago, winding up with a heart catherization. I eventually

was

put on 2 different medications, both affecting the heart in different

ways-a

calcium channel blocker and a beta blocker. They worked well for many

years.

Eventually, about 6 years ago I was taken off all my heart meds. Then,

this

spring I had chest pain-the first time I attributed it to having moved

the

wrong way. (Last year I was able--thank God--to return to my passion,

working in Open Heart Surgery ICU as an RN). Then, about 3 days later,

it

happened at work. My rhythm was stable-PVCs or extra beats are quite

common,

but my blood pressure was high. One of the cardiologists I work with

suggested a stress test and he felt the results were a false positive.

Then,

in August, I was given a new test called a CCTA (coronary CT

arteriogram).

It is a new type of diagnostic scan that shows plaque and blockages with

just a small amount of dye injected. This CT takes 16 pictures a second.

It

showed two 50% blockages, one in a major vessel. Now I am on meds again

and

no recurrance of the pain or pressure.

I am in my late 50's, but wanted to tell you that I understood what

you

are feeling and how scary it is!

Hang in there! Things will get better. SVT can make you feel like

you

are coming out of your skin, I hope all is under control now and that

you

will be feeling better soon!.

Gentle hugs,

Sue J.

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca