Re: New Jersey/

[Guest guest]

,

Whoops! I gotta start wearing my progressive glasses when I get on line. I

keep making boo boo's all the time, hit the wrong one to reply to.Sorry!

Thanks for forwarding it to !

Sincerely, S.

Re: New Jersey

>

>

> > In a message dated 8/13/2004 2:27:59 PM Eastern Daylight Time,

> > sleepymom515@... writes:

> > Hi All

> > Is there anyone out there in NJ or close by, I'm trying to find at

> > least one doctor that knows something about EDS, I really need a GP, but

> I'm

> > afraid to even start looking. I just came from the rheumatologist and

she

> > changed my anti-inflammatory. I have to go for an MRI of both knees. I

> also have

> > to check my blood pressure daily because of the new meds, and she won't

>

> give

> > me anything for pain, she told me to see someone in pain management. Any

> ideas

> > from anyone would be helpful, I'm basically just starting out here

> although I

> > was diagnosed a few years ago.

> >

> > Thanks

> > Ann

> >

> > PS My prayers are with all of you, as I am only experiencing some of

> > the pain some of you are dealing with daily.

> > Hi Ann:

> > Hopefully I can help you in some manner. As you likely know, we really

> > aren't supposed to refer anyone to a specific physician, but I'm sure we

> could chat

> > & I could head you in the correct direction to get the appropriate care

> you

> > need. I'm concerned @ you & surely can empathize about your various

> medical

> > issues & would be more then happy to help you. It is scary out there

when

> you

> > first start, because unfortunately there really aren't a whole lot of

Docs

> that

> > really know very much @ EDS.

> > Where are you located? I live in Central NJ (Cliffwood Beach) & have

run

> > the group in North & Central NJ since we first started having them. So,

I

> do

> > know several people in different areas that have dealt with various

> people.

> >

> > Actually, all of my personal surgeons are in NYC. It just sort of

> developed

> > that way. The only Docs I see in NJ are my general internist & my pain

> > specialist, who I only see on rare occasions, because once he set up my

> general

> > " plan " , my internist took over writing my monthly RX's. Of course my

> dentist is

> > here too, but unfortunately, I make a regular " trek " into the city to

see

> > everyone else.

> >

> > If you'd like to chat on the phone, please feel free to call. All of my

> info

> > is on the ednf.org site at the North/Central NJ Group. If you're closer

> to

> > South Jersey, Cathy Bowen is just outside of Atlantic City & I'm sure

> she'd be

> > happy to help you as well. Please be in touch.... Hang in there!

> >

> > All the best,

> >

>

>

> Luv 'Ya,

>

>

>