Re: is RIGHT/Journaling

[Guest guest]

In a message dated 8/26/04 10:31:10 AM Eastern Daylight Time,

ceda writes:

> everyone!! How come no one picked on any of what they are

> doing and had to offer before though? I thought I let you all know how

> wonderful they were each time I went. Anyways, I'm glad for you all now. I

> will be

> back up there Wed. , Nov 10th if anyone is going to be there then. Clair and

> I

> are hoping to have lunch then.

> Hugs,

>

>

, , ....You have told me for years to go and Garnet and you

were there for me every step of the way. BUT....there is an obstacle of FEAR

that we all have to overcome before we make the choice. I know I could have

done

this years ago Di, and you were my influence, but to know that they wanted so

many of us and really really cared by showing this...then the shields fell.

I always thought others should go, I can deal with what I have...STUBBORNNESS

is also EDS related you guys!!! But now we are strength in numbers. You

were close and you went for it....we listened but were dealing with other

issues too. Now we know, before we can deal with other issues in our lives we

must

deal with and heal ourselves....It is called learning. We all learn at our own

pace....your Faster!!

So buy me lunch when I am there too!!!

As far as journaling....As Publisher of the Grand EDS TODAY, our job is to

get all the info we can about EDS out there to Doctors and other EDsers. By

Journaling my experiences I am hoping it will help others stop there fear of

Dr.s

and let them know they are not the only ones that feel the same feelings. I

plan on journaling from the day I leave, the flight, how sick to the stomach I

feel. What emotional and physical breakthroughs I go through and so on......I

know Barb and Jen and others are also attempting this. Hopefully I will have

the courage to Publish this is the Spring EDS TODAY since the Fall/Winter one is

wrapping up as we chat. Remember to help us out by getting all articles in

on time....others need this...Especially the Doctors and those without CEDA and

Internet connections! I know many doctors read our newsletter as I had a

several calls from Dr.s while I was in Buffalo waiting for me after a meeting

with

someone from ENF. They wanted newsletters and wanted me to fly out on to

advise them on there dime(I must add with pride) to help them to help others

with

Ehlers Danlos of all types!!! What a true blessing huh!!

So, sorry for rambling but Dianne your right and I " expect " you to write for

EDS TODAY about your experiences!! All of you try your best....that is all we

all can ask of one another, Let Barb know if you want to participate in

allowing your journals to be published in our Spring EDITION.......Congrats all

and

thanks Lana.....Hugs