Re: Stuff!- A Need To Connect

[Guest guest]

Hi all,

Haven't been posting much at all of late. Three strokes this year since

Xmas.

Many heart problems (throwing blood clots to the brain); weakness and some

permanent vision loss from Amorosous Fugas type strokes. Quit 5 medications

to try and quiten my nervous system (or, sanity) - you know; anti-this,

anti-that, and stopped taking strong narcotic pain meds. Tough grind, that

one! Taking a moment to say that I care very much for you all, and I am

just typing at this moment, I think, to try and reinforce that I 'AM'

still.....still here. Jo...have been following your posts, and feel so, so,

deeply for you, and pray for you each and every night when I retire.

This syndrome surely does test one's mental and physical endurance. God

bless

you all.

Love,

[Guest guest]

Oh ,

I am so sorry to hear you've had so much to cope with this year,

please know that your are firmly in my thoughts and prayers too my

dear friend and that I am always here for you whenever you need

to " connect " or just need a virtual hug. Thank you so much for your

kind thoughts and prayers and may God Bless you with some of

the relief you desperately need and deserve from the testing

syndrome we endure.

Love and hugs....Jo

xx

[Guest guest]

Oh my God, , I am so sorry to hear this!! This is awful! I had

wondered where you were, and now I'm sorry I hadn't asked. I will be

praying for you, , I have missed you! Please take good care and

know you are thought of and prayed for by all.

Love Lana

> Hi all,

> Haven't been posting much at all of late. Three strokes this year

since

> Xmas.

[Guest guest]

Oh , this is terrible news. I am so sorry that you are going through

this, as you said to Jo, EDS is a trial mentally and physically - and you

more than many, are testament to that!

Please hang in there!

Jill

[Guest guest]

--

I am so sorry of all you have been going thru this year --- I hope things get

better soon and settle down for you.

Love, Patti

Re: Stuff!- A Need To Connect

Hi all,

Haven't been posting much at all of late. Three strokes this year since

Xmas.

Many heart problems (throwing blood clots to the brain); weakness and some

permanent vision loss from Amorosous Fugas type strokes. Quit 5 medications

to try and quiten my nervous system (or, sanity) - you know; anti-this,

anti-that, and stopped taking strong narcotic pain meds. Tough grind, that

one! Taking a moment to say that I care very much for you all, and I am

just typing at this moment, I think, to try and reinforce that I 'AM'

still.....still here. Jo...have been following your posts, and feel so, so,

deeply for you, and pray for you each and every night when I retire.

This syndrome surely does test one's mental and physical endurance. God

bless

you all.

Love,

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

[Guest guest]

- I'm soooo sorry to hear about the strokes in the eyes and the brain.

Does the doctor think it's due to the EDS?

HOw's your swallowing ability with the strokes? How has this affected you? Being

a speech language pathologist, I'm very interested in what you have to say about

this. Answer when you can.

Bonnie

Re: Stuff!- A Need To Connect

Hi all,

Haven't been posting much at all of late. Three strokes this year since

Xmas.

[Guest guest]

Blessings to you .

If you do not mind, I would like to put your name on our prayer chain at my

church. A wonderful bunch of prayer warrior that seem to effect change when

they have a mind to it.

Thinking of you and hoping your days are better even if it is tiny bits at a

time.

Debbi

Re: Stuff!- A Need To Connect

Hi all,

Haven't been posting much at all of late. Three strokes this year since

Xmas.

Many heart problems (throwing blood clots to the brain); weakness and some

permanent vision loss from Amorosous Fugas type strokes. Quit 5 medications

to try and quiten my nervous system (or, sanity) - you know; anti-this,

anti-that, and stopped taking strong narcotic pain meds. Tough grind, that

one! Taking a moment to say that I care very much for you all, and I am

just typing at this moment, I think, to try and reinforce that I 'AM'

still.....still here. Jo...have been following your posts, and feel so, so,

deeply for you, and pray for you each and every night when I retire.

This syndrome surely does test one's mental and physical endurance. God

bless

you all.

Love,

To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

[Guest guest]

And , you're in my prayers, my friend....