update on Crystal

[Guest guest]

Well we were gone for almost 3 weeks. Crystal has had so much done

she looks worse than when we first began. The purpos of this was to

see if we could find out a little bit more about Crystal's so called

one of a kind EDS and even the 3 new genetic Dr's that saw her are

shocked they say she is the rarest case of EDS they have ever seen. I

dont understand what makes her so unique. But they are just saying at

the fact that she actually fits in every type. the stuck her with

needles and everything else. i dont know about some of you guys but

with crystal she is almost impossible to hit a vein. they roll very

bad and you cant explain that to anyone they try and then when they

miss her vein the just wiggle the needle Crysta's arms are noth

bruised awful. I brought her home just so she could rest and she was

just in so much pain from her joints she still wont eat much. I start

back to waork tomarrow and on my EMT job i wok 24 hors Crystal will

be home alone we dont have many people to help and Crystal is

independent as she can be she knows not to get up and move much. We

actually FINALLY got her approved for her power chair scooter. But i

just thought I'd update everyone Crystal may try to get on tomarrow

and if anyone asks her she always just says fine but thats my girl.

Thanks for the support

Tammy