Oh &^%*

[Guest guest]

Well, I knew it was going to happen.  I was off Copaxone for three weeks before starting the blessed Tysabri.  Missing 5 doses in one month started my relapse in January.  So of course not being medicated for three weeks would.  Of course, it's too early for the Tysabri to have prevented it - just had the Tysabri last Wednesday. 

For the past couple of days I've had nagging signs of an oncoming attack.  It started with wrist pain, and in bed, I would have to be very careful about how I positioned my arm or it would get the tingling.  Yesterday, I started getting pain and cramping when I was typing.  Today, all that, plus cramping when using both hands, pain in my shoulder.  The muscle spasming and weakness.  It can't be from the heat because I didn't actually get HOT today except for maybe 20 minutes.  As today is hubby's birthday, I cheerfully ignored the signs, until the pain in my shoulder hit, and then when I noticed the superficial numbness in my hand.

I guess I call the doctor tomorrow if the symptoms are still there when I get up.  She'll need to know about it anyway, even if it's not a bad one, because the Tysabri nurses ask about relapses before each infusion - if the doctor doesn't know about it, they won't do the infusion, and they'll page her.  And well, if this gets worse, as my relapses have been this year, then I may need steroids....and well, it plain worries me that this started up 5 days after Tysabri.  So I want to make sure.

God, I was sooooo hoping that this wouldn't happen, that I would make it through the washout period without any relapses.  My relapse in January was four weeks, and it took another six to recover from it.  My relapse in what was it, April, May, was 6 weeks.  When I first started my MS journey out, my diagnosing flare came six months after my first symptoms.  Even on Avonex, it was averaging six months between relapses - so after I was on Copaxone hubby and I figured it was like I wasn't even medicated, that the six month interval was probably my normal relapse interval.  This is my third relapse in what six, seven months?

Tina