Guest guest Posted July 31, 2004 Report Share Posted July 31, 2004 Hi all -- Well, after many calls back and forth and to the hospital here in Portland, ME, I finally found out that the hospital did not send a copy of my CT scan (done in May to check my iliac aneurysm) to my doctor at Mass General even though I asked them three times and gave them his address. Oh, well --------!!!!!!!!!!!!!!!!! They did finally send him a copy of the film and he sent me a nice note. Everything is stable (which I knew), but now my doctor in Boston wants my CT scans done at Mass General - I guess he is not happy with the hospital up here in the " sticks " (LOL!!!!!!!!). Of course, I love the " sticks " !!!!!! So now I need to decide if I want to go to Boston once a year for this or just stick with the people here in Maine. I have never had a doctor out-of-state before, so am not sure exactly what to do. I still want to keep my vascular doctor here, because you never know when an " emergency " might happen - but I want my doctor in Boston to have all the info he needs because he will be the one who will fix it if it gets any bigger. I'm thinking of going and talking with my doctor here and make sure he is OK with this -- I'm sorta leaning towards doing the Boston thing. Any advice/suggestions would be greatly appreciated. Thanks. Love, Patti Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 , I have been through that twice this past year and both times they decided it was not cancer, just progression of the PSC and my cirrhosis. I too was freaked out when they called and said that they needed to rule out cancer. I never thought the diagnosis of " progression of the PSC " would sound so sweet, but it sure brought a smile to our face. My hep at Baylor All Saints knew we were stressed out, so after she told us it was only progression of the disease she said, " Now get out of my office and go do something fun " . I hope you too get " good news " . PSC 5/07 Listed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 , I have been through that twice this past year and both times they decided it was not cancer, just progression of the PSC and my cirrhosis. I too was freaked out when they called and said that they needed to rule out cancer. I never thought the diagnosis of " progression of the PSC " would sound so sweet, but it sure brought a smile to our face. My hep at Baylor All Saints knew we were stressed out, so after she told us it was only progression of the disease she said, " Now get out of my office and go do something fun " . I hope you too get " good news " . PSC 5/07 Listed Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 Hi , You are being followed at Baylor All Saints? I’m at Baylor Dallas. Nita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 Hi , You are being followed at Baylor All Saints? I’m at Baylor Dallas. Nita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 Hi , You are being followed at Baylor All Saints? I’m at Baylor Dallas. Nita Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Hi ,My husband has had PSC for 18 years but always remained stable. The first part of November they found cancer on his liver. It's called HCC (Hepatic Cellular Carcinoma). After consultations and more scans he was moved to the top of the transplant list about the middle of November. He got his first call for a possible transplant the day after Thanksgiving (8 days after going to the top of the list). It turned out that they couldn't use the liver for my husband but then we got another call in another 5 days. That was on December 3. The surgery went very well and he's feeling good. We've had a problem with rejection but that seems to be better. I told you our story to let you know that in our case, cancer got my husband a new start. Good luck to you and God bless. Judy from Central Illinois (Ron PSC 1/91, transplant 12/3/08)To: Sent: Thursday, January 15, 2009 5:06:48 PMSubject: CT Scan Just wondering I had an abdominal/liver ultrasound done early December followed by a colonoscopy the next day. A couple of weeks later, I was called by my hepatologist to complete a CT scan (coming up in 2 weeks). It turns out they're looking to clarify whether I have nodules on my liver. Anyone had those? Should I be concerned? Very little of what I've read online about nodules has anything positive to say as it mostly talks about cancer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Hi ,My husband has had PSC for 18 years but always remained stable. The first part of November they found cancer on his liver. It's called HCC (Hepatic Cellular Carcinoma). After consultations and more scans he was moved to the top of the transplant list about the middle of November. He got his first call for a possible transplant the day after Thanksgiving (8 days after going to the top of the list). It turned out that they couldn't use the liver for my husband but then we got another call in another 5 days. That was on December 3. The surgery went very well and he's feeling good. We've had a problem with rejection but that seems to be better. I told you our story to let you know that in our case, cancer got my husband a new start. Good luck to you and God bless. Judy from Central Illinois (Ron PSC 1/91, transplant 12/3/08)To: Sent: Thursday, January 15, 2009 5:06:48 PMSubject: CT Scan Just wondering I had an abdominal/liver ultrasound done early December followed by a colonoscopy the next day. A couple of weeks later, I was called by my hepatologist to complete a CT scan (coming up in 2 weeks). It turns out they're looking to clarify whether I have nodules on my liver. Anyone had those? Should I be concerned? Very little of what I've read online about nodules has anything positive to say as it mostly talks about cancer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Hi ,My husband has had PSC for 18 years but always remained stable. The first part of November they found cancer on his liver. It's called HCC (Hepatic Cellular Carcinoma). After consultations and more scans he was moved to the top of the transplant list about the middle of November. He got his first call for a possible transplant the day after Thanksgiving (8 days after going to the top of the list). It turned out that they couldn't use the liver for my husband but then we got another call in another 5 days. That was on December 3. The surgery went very well and he's feeling good. We've had a problem with rejection but that seems to be better. I told you our story to let you know that in our case, cancer got my husband a new start. Good luck to you and God bless. Judy from Central Illinois (Ron PSC 1/91, transplant 12/3/08)To: Sent: Thursday, January 15, 2009 5:06:48 PMSubject: CT Scan Just wondering I had an abdominal/liver ultrasound done early December followed by a colonoscopy the next day. A couple of weeks later, I was called by my hepatologist to complete a CT scan (coming up in 2 weeks). It turns out they're looking to clarify whether I have nodules on my liver. Anyone had those? Should I be concerned? Very little of what I've read online about nodules has anything positive to say as it mostly talks about cancer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Hi > I never thought the diagnosis of " progression of the PSC " would sound so sweet, but it sure brought a smile to our face. Well that sounds positive. I'm hoping that's all it ends up being. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Hi > I never thought the diagnosis of " progression of the PSC " would sound so sweet, but it sure brought a smile to our face. Well that sounds positive. I'm hoping that's all it ends up being. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Hi > I never thought the diagnosis of " progression of the PSC " would sound so sweet, but it sure brought a smile to our face. Well that sounds positive. I'm hoping that's all it ends up being. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Hi > In liver cirrhosis, benign nodules can often develop. It is important to distinguish between these non-cancerous nodules and pre- malignant or malignant nodules, which would be more serious. The following article suggests that magnetic resonance (MR) imaging may be better than CT in distinguishing between them: Thanks for the info. As far as I know, there's no cirrhosis yet since my PSC doesn't seem to be that advanced yet. However, depending on the outcome of the CT scan, I'll see about getting the MRI done as well. I'd say it doesn't hurt to be too cautious in identifying this one. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Hi > In liver cirrhosis, benign nodules can often develop. It is important to distinguish between these non-cancerous nodules and pre- malignant or malignant nodules, which would be more serious. The following article suggests that magnetic resonance (MR) imaging may be better than CT in distinguishing between them: Thanks for the info. As far as I know, there's no cirrhosis yet since my PSC doesn't seem to be that advanced yet. However, depending on the outcome of the CT scan, I'll see about getting the MRI done as well. I'd say it doesn't hurt to be too cautious in identifying this one. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Hi > In liver cirrhosis, benign nodules can often develop. It is important to distinguish between these non-cancerous nodules and pre- malignant or malignant nodules, which would be more serious. The following article suggests that magnetic resonance (MR) imaging may be better than CT in distinguishing between them: Thanks for the info. As far as I know, there's no cirrhosis yet since my PSC doesn't seem to be that advanced yet. However, depending on the outcome of the CT scan, I'll see about getting the MRI done as well. I'd say it doesn't hurt to be too cautious in identifying this one. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Thanks everyone for the speedy reply. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Thanks everyone for the speedy reply. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.