General Update/Waffle!

[Guest guest]

Just a quick general update or waffle which ever way you look at it!

Firstly I'd like to thank everyone who was praying for or thinking

of my friend during his difficult surgery this morning. The

operation went very well and the surgeon is happy that he has

managed to removed all of the tumour in his throat - the best news

of all though is that is talking already and is showing no

signs of any nerve damage! Hopefully his recovery will go smoothly

form here on and he will be home soon. Thank you so much for the

added prayer power, I'm sure it helped.

I'd also like to thank you for your kind thoughts following my

barium swallow, the taste is fading thankfully although the texture

is going to take a little longer to erase from my memory. I have

always had a real horror of milk and cream, possibly because I was

very allergic to cows milk as a baby. It always gets me strange

looks at hotels as I'm the weirdo eating " dry " cornflakes! lol

Apart from the awful aftermath of the " sour milk " substance, I'm

afraid the barium swallow has also left another mark on me. For one

of the tests I had to lie on my front with my right arm above my

head, then drink barium from a straw. On straightening up afterwards

I felt an ominous twang in my neck and shoulder, but hoped it was

just a small reaction to the positioning. When I woke this morning

however it seems I've pulled or torn the trapezium - so I'm feeling

very sore and finding getting around difficult with it being

my " good arm " that I crutch with. Grrr...hope it heals up and I

don't have to mention it to Mac next week as I think we are going to

have plenty of other things to discuss.

I still have no news on my wrist MRI or my cardiac tests as yet, but

it looks like my stay in the hospital with Prof Bird may be

happening soon. I had a call from the hospital today and if Mac

gives the go ahead I can call back next week to arrange a date,

probably mid to late August. I'm eager to get it done now as my body

is throwing so many strange issues at me, but I'm also very nervous

at playing lab rat for a week in a hospital 3 hours drive away. Oh

well, it's a small price to pay if they can help me manage this

condition a little more.

I've also developed a rather strange problem with an old wound too -

would you believe that a scar from 1988 has broken down and over the

course of the past 7 weeks, in site of antibiotics and creams

developed into a large, deep sore that shows no sign of healing. I

am now having to have it packed and dressed to avoid infection and

will probably need it excising and stitching again. I know that with

EDS scars can break down but I have to admit to finding it very odd

with a 16 year old wound! Very weird...but then again I shouldn't be

surprised by that these days should I? lol

Anyway, enough rambling - thank you for letting me talk. I

appreciate the support and friendship I get here so much and it

helps me more than you'll ever realise. Thinking of you all.

Love and hugs....Jo

xxx