Re: Update and thanks Lana :-)

[Guest guest]

Hi Lana,

I should have mailed you, but haven't gotten to it yet.... I read

your mails which you sent while I was in Denmark though...

The neck is doing a whole lot better than it was, but I have some

episodes. I hope to get to getting a docs appointment soon, but with

the car gone, I haven't gotten anywhere I haven't had to go. And I

need my own car to go there, because I can't get in with my

wheelchair and I have to park just outside the door so I can take the

crutches to go in. I can't bring my crutches on my lap in the manual

chair, and leave the chair on the street... Nope... If things have

been really bad and I can't make it in there, I am allowed to go to

the ER in the day, even if you are obligated to go to your doc first

in the day, but they make an exception for you in such a situation

when you have him as a doc. They know that there's no elevator there.

But for this I want to talk to my own doc first. And since it has

calmed down quite a lot, I haven't been that worried. And the

episodes haven't been as bad as it was, so it is not urgent. But I

need to get down there quite soon...

I'm really glad to hear that the PT has been making a difference. How

wonderful!!! Nothing is better than that. But you just have to set

limits as to how much they can do... That is a bit difficult at

first, because you have to find out what works and what doesn't...

Takes a bit of time... I sure hope it will make a real difference

over time too!!!!!

Talk to you later!!!!

hugs,

Aase Marit

>

>> Sorry, I just got excited and had to share when this was

>mentioned...

>> It is just so fun to hear that what you have been sure has been the

>> case, has been proven scientifically!!! Cool!!!!

>

>That's GREAT, Aase! I keep telling my husband that most of YOU know

>a lot more than most of my DOCTORS! And it's true!

>

>So, Aase, how is the neck doing??? Are you still behaving yourself?

>Mine is doing OK. I do have to admit the PT has helped, as long as

>they don't overdo it and try to do too much weight stuff too soon.

>

>I do hope you're feeling better and taking good care of yourself!

>Thinking of you!

>

>Love Lana

>

>

>

>To learn more about EDS, visit our website: http://www.ehlersdanlos.ca

>

[Guest guest]

And since it has

> calmed down quite a lot, I haven't been that worried. And the

> episodes haven't been as bad as it was, so it is not urgent. But I

> need to get down there quite soon...

So glad to hear this Aase!!! Give Peanut doggy kisses from Bucky -

have a nice walk!!!

Only a couple months to go!! WOOHOO!!!!

Love Lana